Tags » Amyotrophic Lateral Sclerosis

New Page: Resources

Last post, I mentioned a project in the works. It may not look like much, but considering I did it all with my eyes, I feel pretty good about it! 307 more words


ALS is more than an Ice Bucket Challenge

The ALS ice bucket challenge has recently taken social media by storm. Hollywood celebrities, local stars, local politicians, and even ordinary people literally pitched in to support and fund research on the condition that is also known as Lou Gehrig’s Disease. 242 more words


Setting Goals

At our MDA ALS Support Group, our therapist David encourages each of us PALS to set specific goals for the coming weeks. Sometimes I have a hard time with this. 343 more words


The Theory of Everything: Trailer

Written by Anthony McCarten and directed by James Marsh, The Theory of Everything is a biographical film that’s inspired by the memoir Travelling to Infinity: My Life with Stephen by Jane Wilde Hawking (Felicity Jones), which deals with her relationship with her ex-husband… 88 more words


I Miss Bells

I really miss bells.

Unless you have played in a handbell ensemble, it’s unlikely you can sympathize. That’s okay. Handbell players know they are somewhat unique. 672 more words


A Day Full of Love

And now these three remain: faith, hope and love. But the greatest of these is love.
I Corinthians 13:13


This week I have been the happy recipient of so much love.

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You gave her the world

I hate ALS.  Amyotrophic lateral sclerosis.  Lou Gehrig’s Disease.  It traps a person in her body – the muscles no longer respond to the nerve cells and impulses the brain sends to them.  478 more words