Tags » Amyotrophic Lateral Sclerosis

Cornell scientists show that ALS is a protein aggregation disease.

Using a technique that illuminates subtle changes in individual proteins, chemistry researchers at Cornell and Scripps Research Institute have uncovered new insight into the underlying causes of Amyotrophic Lateral Sclerosis (ALS). 569 more words


Orphan Drugs: 2 New FDA Designations

This Blog Post discusses two new FDA Orphan Drug Designations (ODDs) for the following two indications:

•   Amyotrophic Lateral Sclerosis (ALS)

•   Retinitis Pigmentosa (RP). 397 more words

Orphan Drug Development

ALS: Fast, Slow, or ?

Before I was formally diagnosed with ALS, I remember thinking that it couldn’t be that. The cases I’d heard about all progressed so quickly. Whatever I had was moving so slowly. 283 more words


The Uncommon Cold

Back when I was healthy and active, before ALS, I remember getting colds now and then and thinking they were really no big deal. But that was pre-diagnosis. 906 more words


Sterke Leeuw

Richard Branson’s “screw it, let’s do it” is typerend voor ondernemerschap, gewoon doen en de onmogelijkheden oplossen wanneer ze zich voordoen. Ikzelf zeg altijd dat ondernemen draait om 3 dingen; mensen, geld en omstandigheden. 417 more words


There is Joy Still

I just reread a post I wrote two years ago, shortly after receiving my ALS diagnosis. Sometimes it’s hard to see my disease progression because it’s fairly slow. 546 more words


Scientists link ALS progression to increased protein instability.

A new study led by scientists from The Scripps Research Institute (TSRI) suggests a cause of amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease. 1,029 more words