Blogs about: Angelman
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ASF Funds $1 million in grants in 2009
Angelman Syndrome Foundation Funds More Than $1 Million in Research Grants for 2009 AURORA, Ill. (October 1, 2009) – The Angelman Syndrome Foundation further solidified its dedication to research by i… more →
Emilie's Blog
ASF Funds $1 million in grants in 2009
emiliem wrote 1 month ago: Angelman Syndrome Foundation Funds More Than $1 Million in Research Grants for 2009 AURORA, Ill. (Oc … more →
Q & A with Dept of Ed on paraprofessionals/aides
emiliem wrote 8 months ago: In case this might help someone else, I will share some answers I received from the US Dept of Ed l … more →
article: coping with diagnosis
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emiliem wrote 9 months ago: A great interview with Louise Gane from U.C. Davis, M.I.N.D. Institute. Scoop Essentials: Coping … more →
Merry Christmas!
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emiliem wrote 11 months ago: Best wishes to everyone for a Merry Christmas and a happy & healthy 2009! … more →
Ugh!
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emiliem wrote 12 months ago: I prob already have a post with this title! Mad’s having a bad day at school. As much as I lo … more →
AS and the flu vaccine
emiliem wrote 1 year ago: from the ASF… This is to advise those in the Angelman community that the 2008-9 information bu … more →
What was Maddie like at 3?
emiliem wrote 1 year ago: Thanks to Cindy for the questions. At three, Maddie was still not actually diagnosed with Angelman S … more →
08 ASF Walk-A-Thon reached the $1,000,000 mark!
emiliem wrote 1 year ago: from the ASF website: www.angelman.org 2008 ASF National Walk-A-Thon Record-Breaking Results! The 20 … more →
The jig is up! (and the jar is empty)
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emiliem wrote 1 year ago: Maddie’s type of Angelman Syndrome is rarer, caused by a UBE3A mutation (more common is a ge … more →
Play Ball - wrap up!
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emiliem wrote 1 year ago: Maddie finished her season of softball this past week. I couldn’t have asked for a better expe … more →
Swimmer's Ear update
emiliem wrote 1 year ago: Of course I was puked on! Of course it was swimmer’s ear! Of course they could have easily ca … more →
Swimmer's Ear
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emiliem wrote 1 year ago: Maddie, aka my waterbug, has this kind of ear infection. She just started complaining yesterday (Mo … more →
I'm taking liberties with someone else's poem.
emiliem wrote 1 year ago: I’m not sure of the title of this poem, but I deleted a few lines I found offensive. I jus … more →
"What smells?"
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emiliem wrote 1 year ago: Why is there no therapy for being overly sensitive to smells? Somebody come up with an answer to tha … more →
Summer School
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emiliem wrote 1 year ago: Maddie attends typical summer school as her Extended School Year services. She also receives summer … more →
Inclusive Musical Chairs
emiliem wrote 1 year ago: A Seat on the Bus: Reversing Musical Chairs Goal: To show children how they can turn exclusive situ … more →
Another day ruined by puke!
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emiliem wrote 1 year ago: My best friend’s house is 3.2 billion times cleaner and tidier than my house. On those days w … more →
St. Louis, one year later
emiliem wrote 1 year ago: Its been almost one year since the last Angelman Syndrome Foundation Conference. I was not an activ … more →
Awesome article
emiliem wrote 1 year ago: A really great article on Heather’s son Chance in West Virginia. This is great for raising awa … more →
