Blogs about: Ataxia Telangiectasia
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A Brief Word From Stella’s Mother
“Unlike many national groups (UCP, Susan G. Komen)..we have nothing!!! We rely on folks like you for everything!!!! On behalf of the 300 families…THANK YOU..you give us all HOPE!!!”… more →
Run4Stella
Stem Cell Model of Neurodegenerative Disease Elucidates Potential New Treatments
wrote 2 weeks ago: Researchers say they have used induced pluripotent stem cells (iPSCs) to advance disease-in-a-dish m … more →
Meet Braden
wrote 2 months ago: This Braden and he has Ataxia-Telangiectasia. That’s pronounced Ay-Tack-See-Uh Teh-Lan-Jick-Tay-Sha. … more →
LA LUCHA DE LAS FAMILIAS FRENTE A LAS “ENFERMEDADES RARAS”
wrote 4 months ago: Según la Unión Europea las enfermedades raras son enfermedades potencialmente mortales, o debilitant … more →
The Write Life
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wrote 5 months ago: The one thing I’ve done consistently throughout my life is write. It has always been a source … more →
New day, new job
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wrote 6 months ago: Today I start work for the first time outside our home in two years. I was up until 1:00, up again … more →
Rare disease holds key to cancer
wrote 8 months ago: International Ataxia Awareness Day: September 25 By understanding a rare disease, QIMR researchers … more →
wrote 8 months ago: In 1994, Rachel was diagnosed with a disease known as ataxia telangiectasia. A-T is a progressive, d … more →
The Italian Consulate General and the Italian Cultural Institute of Los Angeles Invite You to Support A-T
wrote 1 year ago: The Charity night will take place at the Italian Cultural Institute fo Los Angeles on May 16, 2012 a … more →
Rare but Strong Together
wrote 1 year ago: Happy February 29th! A rare day that comes only once every 4 years. Talking about rare – today is a … more →
Examination of Newborn - Part 2 (Newborn Screening)
wrote 1 year ago: … more →
Morbidity and mortality from ataxia-telangiectasia are associated with ATM genotype
wrote 1 year ago: Journal of Allergy and Clinical Immunology, 06/14/2011 Mico R et al.– Morbidity and mortality among … more →
The A-T Society
wrote 2 years ago: The A-T Society of Britain recently approached Horse to assist with fundraising, which she has oblig … more →
Hope Will Find You, a Book by Rabbi Naomi Levy
wrote 2 years ago: I am in the midst of reading the Book, Hope Will Find You, by Rabbi Naomi Levy. This is an amazing … more →
I Have Tried My Hardest, O Lord
wrote 2 years ago: In the Name of God, the Kind, the Beautiful John Mayer – who, by the way, has a number of grea … more →
Losing battles
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wrote 3 years ago: Confronting the reality of my son’s condition as fatal is a battle that has taken me to the br … more →
A Brief Word From Stella's Mother
wrote 3 years ago: “Unlike many national groups (UCP, Susan G. Komen)..we have nothing!!! We rely on folks like y … more →
Jared Digby Interview with John Hopkins MD
wrote 3 years ago: Join Jared Digby (A-T) patient with Dr. Howard Lederman from Johns Hopkins Medicine as he provides u … more →
Stella: The Sweet Girl who Loves Pink!
wrote 3 years ago: Stella is an amazing 11 year old girl from Birmingham, Alabama who loves life! She has some fancy ho … more →
Who I Am by Thomas with A-T
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wrote 3 years ago: Who I Am Thomas Roberts-Wierzbowski My wish to walk is just out of reach Like an apple too high on … more →
