Tags » Ataxia Telangiectasia

A 3 month whirlwind...

Well, it’s been three months since I received the worst news of our lives. Not much has changed, my heart is still broken for my baby and I struggle to maintain a sense of normalcy. 736 more words


The beginning...

Hope for Brian – A Mother’s Desperate Search

On December 29, 2010, our beautiful baby boy Brian came into this world and I was instantly in love. 1,120 more words



Steps falter, grief hangs around my neck.

“Run for us” the doctor’s say.

Wobbling, almost falling, he runs.

They are kind.

“Are you sure? Are you sure? 55 more words