Tags » Ataxia Telangiectasia

Running for Dan

I’ve been running since August.  I’ve always loved running, but haven’t been able to do it consistently since I had back surgery in my 20’s.  Fibromyalgia pain on top of that made running seem impossible.   291 more words

Writing

A 3 month whirlwind...

Well, it’s been three months since I received the worst news of our lives. Not much has changed, my heart is still broken for my baby and I struggle to maintain a sense of normalcy. 736 more words

Ataxia-telangiectasia

The beginning...

Hope for Brian – A Mother’s Desperate Search

On December 29, 2010, our beautiful baby boy Brian came into this world and I was instantly in love. 1,120 more words

Ataxia-telangiectasia