Tags » Behcet's Disease

In the key of Contacts

Since the 4th grade I’ve had trouble with my vision. I wore glasses as sparingly as possible until they said I needed to wear them all the time. 460 more words

The Sound of Music

How do I know when I’m starting to feel better? When I have enough energy to do the things I love.

One of them is music. 655 more words

A Song of Small Successes

I’m celebrating myself today for small, tiny, insignificant victories to most but they felt big to me.

Today I spent the day providing child are for some sweet little girls. 243 more words

I Don't Know how to Sing this Song

I don’t know how to sing this song. The one where I live with my parents and depend on them for everything. The one where I daily feel like a burden and spend my day thinking up ways to carry my weight and make them proud. 342 more words

Fibro Flares.

This is what I feel like doing


Jennifer Brown-Leslie reblogged this on Under the Elephant Tree and commented:

This is so true! How I wish we could outrun the flares! Featured Image -- 46

Dealing with trials of drugs and treatment options - Lyrica

Over the last week or so I’ve been really struggling with the brain fog and fatigue. My doctor and I are trialing an increase in my Lyrica doses and so far I’ve seen little to no improvement in the pain levels (the reason for the Lyrica) and a massive increase in the brain fog/fatigue department. 774 more words


Jennifer Brown-Leslie reblogged this on Under the Elephant Tree and commented:

I have recently started Lyrica and it has been a miracle drug for me in terms of pain management. I think I am one of the lucky ones as many people have side effects that make the drug intolerable.

Information and inspiration for the chronically ill

I added another tab for the navigation menu. Thought I’d call attention to it. This one is for folks living with chronic illnesses of all kinds. 768 more words


Jennifer Brown-Leslie reblogged this on Under the Elephant Tree and commented:

Interesting insight into one person's experience with chronic illness/es. There is so much still unknown about auto-immune diseases and the terrible toll they take on the sufferer and their friends and families. It is very difficult being told "but you don't look sick" when you feel like utter rubbish and have barely been able to get out of bed. Holistic treatments are very much coming to the forefront as conventional medicine fails sufferers of these awful auto-immune diseases. I suffer from Behcet's Syndrome and also have associated fibromyalgia. I was misdiagnosed for nearly 20 years - often believing I was going crazy as I could not get a diagnosis. I have been on various immune-suppressants which have all been a failure. I am hoping there may be some other alternatives that can lower my inflammatory levels to a normal level and I have started taking ginger and tumeric in a tablet form (Pain Ease). The wonderful Spoon Theory http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/ is a great way to try to explain how an illness such as Behcet's, Rheumatoid Arthritis, Lupus, Fibromyalgia or any other chronic disease that depletes you of energy, controls your activities.