Tags » Behcet's Disease

I Don't Know how to Sing this Song

I don’t know how to sing this song. The one where I live with my parents and depend on them for everything. The one where I daily feel like a burden and spend my day thinking up ways to carry my weight and make them proud. 342 more words

Fibro Flares.

This is what I feel like doing.


Jennifer Brown-Leslie reblogged this on Under the Elephant Tree and commented:

This is so true! How I wish we could outrun the flares! Featured Image -- 46

Dealing with trials of drugs and treatment options - Lyrica

Over the last week or so I’ve been really struggling with the brain fog and fatigue. My doctor and I are trialing an increase in my Lyrica doses and so far I’ve seen little to no improvement in the pain levels (the reason for the Lyrica) and a massive increase in the brain fog/fatigue department. 774 more words


Jennifer Brown-Leslie reblogged this on Under the Elephant Tree and commented:

I have recently started Lyrica and it has been a miracle drug for me in terms of pain management. I think I am one of the lucky ones as many people have side effects that make the drug intolerable.

Information and inspiration for the chronically ill

I added another tab for the navigation menu. Thought I’d call attention to it. This one is for folks living with chronic illnesses of all kinds. 749 more words


Jennifer Brown-Leslie reblogged this on Under the Elephant Tree and commented:

Interesting insight into one person's experience with chronic illness/es. There is so much still unknown about auto-immune diseases and the terrible toll they take on the sufferer and their friends and families. It is very difficult being told "but you don't look sick" when you feel like utter rubbish and have barely been able to get out of bed. Holistic treatments are very much coming to the forefront as conventional medicine fails sufferers of these awful auto-immune diseases. I suffer from Behcet's Syndrome and also have associated fibromyalgia. I was misdiagnosed for nearly 20 years - often believing I was going crazy as I could not get a diagnosis. I have been on various immune-suppressants which have all been a failure. I am hoping there may be some other alternatives that can lower my inflammatory levels to a normal level and I have started taking ginger and tumeric in a tablet form (Pain Ease). The wonderful Spoon Theory http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/ is a great way to try to explain how an illness such as Behcet's, Rheumatoid Arthritis, Lupus, Fibromyalgia or any other chronic disease that depletes you of energy, controls your activities.

Me in the Key of Weakness

Over the past six months I have struggled through my first major flare of Behcet’s Disease.

“Everyday is a new adventure” has been my standard response when people ask how am I’m doing. 338 more words