Tags » Bone Disease

Ryan’s Story

We are all told to stay away from “Dr. Google”; however, in the case of our son’s diagnosis ofHypophosphatasia (HPP), we were glad that we did an internet search. 1,297 more words

HPP

Mei Mei’s Story

Not long ago, Becky Raguso and her husband adopted a little baby girl, Mei Mei, from China. When she was first adopted, doctors were worried that Mei Mei had a syndrome because of her club hands, club feet, and short stature. 510 more words

HPP

My "Normal"

Normal. It is a six letter word. It is a word that I think is used far too often, and can have such different meanings to a wide variety of people. 474 more words

Bumpy Bones