Tags » Brain Cancer

A Prescription for Pinot Noir Please

As I was almost getting to the end of my treatment it was time for another MRI scan to measure tumour progression as part of the assessment of my general health, tolerance for the vaccine I was taking and whether it was doing me any good. 1,639 more words

Compassionate Use

You may remember the #SaveJosh news articles in the spring of 2014 where little Josh Hardy’s family mounted, as a last ditch effort, a social media campaign to get him into a clinical trial that St. 804 more words

Childhood Cancer

One to Four Weeks

It’s never fun to receive early morning texts that say “call me when you get a moment.” Your mind always goes to the worst.

On Sunday I got that text from my sister. 233 more words


At the Mercy of Fatigue

In mid-July, I went for my regular MRI check-up. I’ve been going to ballet classes and my balance, memory, spatial awareness and timing all feel like they have been improving. 581 more words

Brain Tumor

Living with Brain Tumors

As a lot of you know, I volunteer actively in the brain tumor community.  I serve as the Kansas Lead Advocate for the National Brain Tumor Society, and I am President of the Dragon Master Foundation. 210 more words

Unhappy Trails To You

Todd Trickle awoke one morning in the Happy Trails Nursing Home in a cold sweat. He had yet another nightmare in which he reflected on his past. 1,078 more words

College Stuff

Never Bloody Happy

I was now approaching 6 months post diagnosis and therefore 6 months closer to my early death. However, despite this I felt fine physically and felt that I was getting sharper and more confident in my mental abilities as each day went by. 1,939 more words