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One of the biggest mysteries of the Ashley case: Did the hospital intentionally lie at the May 2007 press conference?

huahima wrote 2 days ago:  Did the hospital lie at the May 2007 press conference? Dr. Diekema and Dr. Fost wrote two papers th … more →

Tags: Ashley's father, Dr. Diekema's explanation, generalization of growth attenuation, Ashley, ashley treatment, Bioethics, disabilities, Disability Rights, Dr. Diekema

Reading “Ashley Revisited: A Response to the Critics” by Dr. Diekema and Dr. Fost

huahima wrote 1 week ago: Reading the article “Ashley Revisited: A Response to the Critics” written by Dr. Diekema and Dr. Fos … more →

Tags: Dr. Diekema's explanation, The doctors' medical paper, the special ethics committee, Ashley, ashley treatment, Ashley X, Bioethics, Diekema, disabilities

Revisiting the father’s blog: his unique interpretation of law and Ryan’s article

huahima wrote 1 month ago: The other day, I was revisiting the blog started by Ashley’s father in search for some information u … more →

Tags: Ashley's father, ashley treatment, ethics, Bioethics, Pillow-Angel, disabilities, Disability Rights, growth attenuation, hysterectomy

A legal article says that courts should take new standards and approve the “Ashley Treatment” because the therapy can be more important than non-person’s fundamental rights

huahima wrote 1 month ago: I know Peter Singer’s assertion that children with profound mental disabilities are not entitled to … more →

Tags: Ashley's father, Dr. Diekema's explanation, generalization of growth attenuation, Information, ashley treatment, Ashley X, Bioethics, disabilities, Disability Rights

Links 9: CNN interview with the parents in 2008

huahima wrote 1 month ago: CNN stories  ’Pillow angel’ parents answer CNN’s questions CNN, March 12, 2008 Dis … more →

Tags: Information, ashley treatment, Ashley X, Bioethics, disabilities, Disability Rights, Dr. Diekema, ethics, growth attenuation

Links 8: Dr. Diekema’s lecture at Calvin College in January 2008

huahima wrote 2 months ago: Dr. Diekema gave a lecture, “Live, Jusitce, & Humility: A Bioethicist Meets the ‘Pillow Angel’” … more →

Tags: Dr. Diekema's explanation, Information, ashley treatment, Ashley X, Bioethics, breast bud, Calvin University, Calvin University January Series, disabilities

The Seattle Children’s and the Gates Foundation are hand in hand as “global health leaders”

huahima wrote 2 months ago: According to this article of April 24, 2009 on the Medical News Today, the Seattle Children’s Hospit … more →

Tags: Ashley's father, Dr. Diekema's explanation, generalization of growth attenuation, Money, the special ethics committee, ashley treatment, Ashley X, Bioethics, disabilities

The mystery of the definition of profound cognitive disability in the new growth attenuation paper

huahima wrote 5 months ago:   In their paper published in the June issue of the Pediatrics, the authors define profound cognitiv … more →

Tags: Dr. Diekema's explanation, generalization of growth attenuation, The doctors' medical paper, ashley treatment, Ashley X, Bioethics, disabilities, Disability Rights, Dr. Diekema

The new growth attenuation paper by Dr. Diekema, Dr. Fost with others

huahima wrote 5 months ago: I read the full text of the growth-attenuation paper written by Dr. Diekema and Dr. Fost with others … more →

Tags: Dr. Diekema's explanation, the WPAS report, The doctors' medical paper, generalization of growth attenuation, ashley treatment, ethics, Bioethics, Ethics Committee, Seattle Children's

Dr. Diekema in the Hauser controversy

huahima wrote 6 months ago: “Parents’ Rights, Judges’ Rules”. It is the title of a Newsweek story of May 19. The story is about … more →

Tags: Dr. Diekema's explanation, ashley treatment, ethics, Bioethics, parental decision making, Pillow-Angel, disabilities, Disability Rights, growth attenuation

Links 6:Dr. Gunther’s suicide

huahima wrote 6 months ago: News articles   Oct. 10, 2007   http://seattlepi.nwsource.com/local/335019_gunther11.html?source=rss … more →

Tags: Information, ashley treatment, ethics, Bioethics, Pillow-Angel, disabilities, Disability Rights, growth attenuation, hysterectomy

A new “public engagement” version of the hospital’s Ashley story

huahima wrote 6 months ago: The new January 2009 version of the Seattle Children’s Ashley story told by Dr. Wilfond at the begin … more →

Tags: generalization of growth attenuation, ashley treatment, ethics, Bioethics, Pillow-Angel, disabilities, Disability Rights, growth attenuation, hysterectomy

The damage the Ashley case has done and damages it can still do

huahima wrote 7 months ago: I have been following the Ashley case for more than 2 years. I have been reading about other cases a … more →

Tags: the special ethics committee, The Media, generalization of growth attenuation, ashley treatment, ethics, Bioethics, Pillow-Angel, disabilities, Disability Rights

Links 5:the Katie Thorpe case in UK

huahima wrote 7 months ago:   January, 2007: Alison Thorpe in the Ashley case    http://www.telegraph.co.uk/news/main.jhtml?xml= … more →

Tags: Information, The doctors' medical paper, Alison Thorpe, ashley treatment, disabilities, Disability Rights, ethics, growth attenuation, hysterectomy

What Dr. Diekema spoke and wrote right after the joint press conference of May 8, 2007

huahima wrote 8 months ago: Deikema told CNN the ethics committee recognized that Washington state law was not perfectly clear w … more →

Tags: Dr. Diekema's explanation, the WPAS report, Information, Investigation, ashley treatment, ethics, Bioethics, Pillow-Angel, disabilities

Did the hospital back down on the agreement with WPAS?

huahima wrote 8 months ago:    I have pointed out here that the Seattle Children’s Hospital agreed with WPAS on May 8, 2007 that … more →

Tags: the WPAS report, Investigation, ashley treatment, ethics, Bioethics, Seattle Children's, Pillow-Angel, disabilities, WPAS

Links 4: May 2007; illegality admission, WPAS investigation, symposium

huahima wrote 8 months ago:   Joint press conference by the hospital and WPAS (May 8, 2007)   The hospital press release http:// … more →

Tags: Information, ashley treatment, ethics, Bioethics, Pillow-Angel, disabilities, Disability Rights, growth attenuation, hysterectomy

Behind the tightly closed door of the special ethics committee

huahima wrote 8 months ago:   I have recently posted two entries of links to information in the very early stage of the controve … more →

Tags: the special ethics committee, ashley treatment, ethics, Bioethics, Ethics Committee, Ashley, Seattle Children's, University of Washington, Pillow-Angel

Links 2: the early stage of the controversy; news stories without comments by the involved

huahima wrote 8 months ago: News stories in general   January 4, 2007   http://www.cbsnews.com/stories/2007/01/04/health/main233 … more →

Tags: Information, ethics, Bioethics, Ashley, Pillow-Angel, disabilities, Disability Rights, growth attenuation, hysterectomy


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