Tags » Caretaker

Thank Your Caretaker Day

This month is National Caregiver Month; November 13th, thank your supporters, family, nurses, and full-time caregiver.

When we are so focused on survival, pain and illness, we can feel as though we are going this journey alone. 321 more words

Spoonie

How Did We Get Here?

The ALS Diagnosis blind sided me.  There were signs for years before the diagnosis came about but when you hear horse hooves you think horses not zebras. 418 more words

ALS

What's In A Name?

It has been 4 months since my mom was diagnosed with first Primary Muscular Atrophy (PMA), then Amyotrophic Lateral Sclerosis (ALS), and finally Primary Muscular Atrophy. 402 more words

ALS