Blogs about: Cfsac
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CFSAC public comment due May 15th! Speak Up!
Our community usually has common priorities that it would be good for the CFSAC to hear (from as many people as possible). An obvious one for the May 2013 meeting is thanking the FDA for the recent Dr… more →
Speak Up About ME
CFSAC public comment due May 15th! Speak Up!
wrote 4 days ago: Our community usually has common priorities that it would be good for the CFSAC to hear (from as man … more →
Register for CFSAC May 2013 attendance and for public comment
wrote 2 weeks ago: The Spring 2013 CFSAC meeting will be held May 22–23, 2013 Registration is open: http://www.blsmeeti … more →
The spring 2013 CFSAC Meeting will be held Wednesday May 22 and Thursday May 23, 2013 at HHS
wrote 2 months ago: The spring 2013 CFSAC Meeting will be held Wednesday May 22 and Thursday May 23, 2013 at the … more →
CFSAC's Swift Response
wrote 2 months ago: On February 18th, Ms. Spotila (on OccupyCFS) had this post http://www.occupycfs.com/2013/02/18/a-pub … more →
Reposted from OccupyCFS
wrote 2 months ago: Thank you Ms. Spotila for drawing attention to this! A Public Citizen February 18th, 2013 Jennie Spo … more →
Sending good thoughts to the ME Association of Denmark
wrote 6 months ago: The Danish ME Association http://www.me-foreningen.dk/ posted a question and answer session http://w … more →
Message for the ME/CFS community
wrote 6 months ago: On June 5, 2012, an alliance of ME/CFS patient organizations and advocates sent a joint request to S … more →
CDC's insistence on retaining and promulgating misinformation (!) harms patients!
wrote 7 months ago: Once again we urge you to read a post at the OccupyCFS blog. http://www.occupycfs.com/2012/10/17/thi … more →
October 2012 CFSAC videos
wrote 7 months ago: (Sorry if these are not in order…. the last link is to a page that has all of the videos) … more →
wrote 7 months ago: The public comment presented at the CFSAC meeting October 3 and 4, 2012 was strong, and some excelle … more →
Link for CFSAC LiveStream
wrote 7 months ago: On Wednesday October 3rd and Thursday October 4th, the CFSAC meeting will be LiveStreamed. Th … more →
FDA, CFSAC, and Voting
wrote 7 months ago: FDA comment deadline Remember that your comments, questions, etc. about the FDA teleconference held … more →
Very interesting.....
wrote 7 months ago: Another link to the OccupyCFS blog by Ms. Spotila. http://www.occupycfs.com/2012/09/21/how-did-they- … more →
Announcement: Position Paper in Support of the CFSAC Recommendations on the CDC CFS Toolkit and the IACFS/ME Primer (updated 12 Sept 2012)
wrote 8 months ago: On September 10, 2012, an alliance of ME/CFS patient organizations and independent advocates submitt … more →
Registration for CFSAC is open as is registration for public comment!
wrote 8 months ago: http://www.hhs.gov/advcomcfs/ http://www.blsmeetings.net/CFSACOctober2012/ … more →
CFSAC public comment (slightly revised)
wrote 8 months ago: The next CFSAC meeting will be on October 3 (Wednesday) and 4 (Thursday), 2012.The meeting will take … more →
News via Phoenix Rising
wrote 9 months ago: http://phoenixrising.me/archives/13145 The “Obama Promise” Fulfilled: Obama Requests NIH Elev … more →
Our August 8, 2012 follow-up letter to Sec. Sebelius
wrote 9 months ago: August 8, 2012 To: Secretary Kathleen Sebelius CC: Assistant Secretary Howard Koh, Deputy Assistant … more →
Next meeting of the ICD-9-CM Coordination and Maintenance Committee
wrote 9 months ago: Next Meeting of the ICD-9-CM Coordination and Maintenance Committee The next meeting of the ICD-9-CM … more →
