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Blogs about: Cfsme

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Thought number 1 on living with chronic illness1 comment

distantshaw wrote 4 days ago: I’m not ill, my husband is, but it has no less impact on my life. The instant I’m awake … more →

Tags: Living With Chronic Illness, Chronic Illness, sleep, Thinking, Tiredness

A Harrowing Halloween

roystonvanderkerkoff wrote 1 week ago: Losing something can be sad. Losing someone is likely to be even sadder. Losing many people and thin … more →

Tags: Life, Halloween, Me, ME/CFS

Passing and pretending7 comments

ashysheela wrote 2 weeks ago: I read a post by my friend today where she says she wants to pretend to be normal for a few hours, a … more →

Tags: Equality, Fun, health, Challenging Stereotypes, Disability, exclusion, Having Fun, identity, Inclusion

Jeff Blake & me

a4changingme wrote 2 weeks ago:    Jeff Blake & me; A journey to the darker side of ME politics, and back again  By  Ciaran Farr … more →

Tags: NICE CFS/ME guideline, Nice, Me, CFS, Margaret Williams, Prof. Malcolm Hooper, Stephen Ralph, MEActionUK, YouTube

Christmas Present Dilemma1 comment

ashysheela wrote 4 weeks ago: The last few weeks i have been gradually starting to think about Christmas and how to manage it, and … more →

Tags: Equality, health, Alternative, Charity, Christmas, Disability, Family, Friends, Illness

Extended commentary by MEA on XMRV research

zonko wrote 1 month ago: The ME Association have just published this extended commentary by Dr Charles Shepherd, their medica … more →

Tags: General, Research, XMRV, CFS, Me, Commentary, Dr Charles Shepherd, ME/CFS, Expert

Expert commentary on XMRV research2 comments

zonko wrote 1 month ago: The ME Association have just published this commentary by their medical advisor, Dr Charles Shepherd … more →

Tags: General, CFS, Commentary, Dr Charles Shepherd, Expert Commentary, just four quid, Me, Research, XMRV

Osteopath - initial appointment3 comments

ashysheela wrote 1 month ago: I decided during the last couple of weeks i needed more than just massage to deal with my wreck of a … more →

Tags: health, Pots, back pain, Cranial Osteopathy, ME/CFS, muscle tension, Neck Pain, nice man, support pillow

Another Quarterly Hospital Trip5 comments

ashysheela wrote 1 month ago: I went to the hospital today to see the POTS specialist again. I had a good time! I was a bit worrie … more →

Tags: health, Pots, being listened to, bladder sensitivity, blood test, hospital, itching, massage, me research

jaded...6 comments

ashysheela wrote 2 months ago: Well, it has been about a month since i went for the big day out to the art gallery etc, and i have … more →

Tags: health, coping with day to day, Impatience, Missing Out, Virus, waiting to feel better, *Yawn*

i can't be bothered...3 comments

ashysheela wrote 2 months ago: Quote from Duncan Bannatyne in today’s Observer Magazine: “I can’t be bothered get … more →

Tags: Equality, health, if only could be bothered to get better, quotation, Random Post, thoughtless people

ups and downs - mostly ups!4 comments

ashysheela wrote 2 months ago: Quick update on what i have been up to since my cold… At the Bank Holiday I felt recovered eno … more →

Tags: Fun, Art, Art Gallery, Being Out., day out, Eating Out

A week off the Internet (Day 7)

roystonvanderkerkoff wrote 2 months ago: Sunday 16th August 2009 Apart from being woken by a cat (9 ish), called by my girlfriend to make sur … more →

Tags: Blog, Life, Web wandering, writing, Football Manager Live, Fybromyalgia, Lupus, manager-mania, managerzone

A week off the Internet (Day 6)

roystonvanderkerkoff wrote 2 months ago: Saturday 15th August 2009 Went round to my girlfriend’s on the way to the local cafe for Satur … more →

Tags: Life, silliness, Web wandering, 80's, 80s party, Adam Ant, CFS, Duran Duran, GHWT

Another Cold???9 comments

ashysheela wrote 2 months ago: Well, yes. I had a great week with my friend who came to stay. My partner was at home most days too … more →

Tags: health, breathing is handy, cold, Friends, hugs, Nasal washing, nosebleeds, staycation, Thumbs Up

A week off the Internet (Day 5)1 comment

roystonvanderkerkoff wrote 2 months ago: Friday 14th August 2009 It seems that 11.30am is settling as a natural rising time for me. It’ … more →

Tags: Life, Web wandering, CFS, GHWT, guitar hero world tour, House of Lords, Me, ME/CFS

A week off the Internet (Day 4)

roystonvanderkerkoff wrote 2 months ago: Thursday 13th August 2009 Heard the phone ringing in the other room, which must have half woken me u … more →

Tags: Life, Web wandering, Cassettes, Château Margaux, Dragons' Den, economy gastronomy, Fight for Oil, Tona Di Brett, Wine

A week off the Internet (Day 3)

roystonvanderkerkoff wrote 2 months ago: Wednesday 12th August 2009 I feel really old this morning. All sorts of aches and pains, but mainly … more →

Tags: Life, Web wandering, writing, Alan Joyce Gallery, CFS, Dexter Vandango, Hermit, iPlayer, Managing Your Mind

A week off the Internet (Day 2)

roystonvanderkerkoff wrote 2 months ago: Tuesday 11th August 2009 Fat Cat woke me up to let him out at about 9am, but still managed to get ba … more →

Tags: Life, Music, Web wandering, writing, Band, CFS, I am a Writer, Managing Your Mind, Me


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