Tags » CHARGE Syndrome

From The Mother Of A Child With Special Needs: Normal Is A Setting On The Dryer

Tonight, I was going through some pictures of my son’s Make A Wish trip to Disneyworld and found this: 

I showed my daughter, and she still remembered this moment, years later. 712 more words


Slowdive, Braxton Hicks and 38 Weeks

I am thrilled to say that I recently discovered Rachel Goswell’s blog in which she writes about her adventures of being a mom to an adorable little boy with Charge Syndrome, living in Devon, gardening and raising chickens. 293 more words

There Should Be Free Water Shoes Included (Warning: Explicit Poop Language Used)

Yes, I said it-when you elect to get an appendicostomy for your child, you should get free water shoes. I would have given anything for water shoes today. 523 more words