Blogs about: Charge Syndrome

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Where have we been?5 comments

Kodiak My Little Grizzly wrote 1 week ago: Sooooo! After my 100th post and poem. (Over a week ago) I really had nothing to say. Well I did, but … more →

Tags: Kodiak My Little Grizzly, Barometer, Deafblind, great grandmothers, heart defect, rain, Scoliosis, Sinus Infections, snow storms

Kodiak My Little Grizzly (I'm not a poet!) #10054 comments

Kodiak My Little Grizzly wrote 2 weeks ago: This is my 100th post. it means nothing really just a number. I never celebrate anything at all real … more →

Tags: Kodiak My Little Grizzly, 100th post, Deafblind, Kodiak, Poem, Scoliosis

The last you will see, until it's 100th post worthy!16 comments

Kodiak My Little Grizzly wrote 2 weeks ago: Last night we went to bed a little late. Colt had this project to finish up making parachutes (all o … more →

Tags: Kodiak My Little Grizzly, beautiful weather, braille, Deafblind, Family, Going for walks, Scoliosis, Sinus Infections, sleep

The last you will see, until it's 100th post worthy!16 comments

Kodiak My Little Grizzly wrote 2 weeks ago: Last night we went to bed a little late. Colt had this project to finish up making parachutes (all o … more →

Tags: Kodiak My Little Grizzly, beautiful weather, braille, Deafblind, Family, Going for walks, Scoliosis, Sinus Infections, sleep

We found the culprit!8 comments

Kodiak My Little Grizzly wrote 2 weeks ago: Kodiak found his big sister’s bed again. He crawled into her bed and went back to sleep. When … more →

Tags: Kodiak My Little Grizzly, Barometer, Deafblind, eye pain, rain, Scoliosis, sinus infection, sinus pain, Storms

MORE SWING! More eat! MORE DRINK! More....16 comments

Kodiak My Little Grizzly wrote 2 weeks ago: It was in the 70′s and on a Saturday. Last Saturday we were wearing boots… This Saturday … more →

Tags: Kodiak My Little Grizzly, Deafblind, Ducks, loons, Scoliosis, spring, State Park, Swing, tactile ASL

Kodak is OFF right now! Take 2!14 comments

Kodiak My Little Grizzly wrote 3 weeks ago: I’m at a loss here! In my telling a story I forgot why I was writing the post to begin with! I … more →

Tags: Kodiak My Little Grizzly, braille, Deafblind, Full Moon, Scoliosis, sinus infection, sleep, Storms, tactile signing

Kodiak is OFF right now!10 comments

Kodiak My Little Grizzly wrote 3 weeks ago: All Kodiak wanted to do was cuddle!!! Well he was playing with his hands and then put his hand out l … more →

Tags: Kodiak My Little Grizzly, braille, Deafblind, Full Moon, Scoliosis, sinus infection, sleep, Storms, tactile signing

Kodiak and his unstable behavior.15 comments

Kodiak My Little Grizzly wrote 3 weeks ago: We had a sunny day on Saturday after all the snow last week. Saturday we set some record lows for te … more →

Tags: Kodiak My Little Grizzly, Deafblind, Scoliosis, sleep, Full Moon, snow storms, Vision loss, spring, mad zebra noise

What is an oxymoron?9 comments

Kodiak My Little Grizzly wrote 4 weeks ago: What is an OXYMORON? Thoughts, words and ideas put together that mean the opposite of each-other … more →

Tags: Kodiak My Little Grizzly, Deafblind, Scoliosis, snow storm, sinus infection, heart defects, spring, robins, oxymoron

New chapters in life... What it means for Kodiak.25 comments

Kodiak My Little Grizzly wrote 1 month ago: I was hoping this day would never come. No she’s not 16 nor is she 15 yet. But today I had to … more →

Tags: Kodiak My Little Grizzly, Deafblind, Scoliosis, Vision loss, Seat belts, Sinus Infections, heart conditions, amplatzer, phthesis of eyes

Not complaining! Just Saying!6 comments

Kodiak My Little Grizzly wrote 1 month ago: Most people know me for one thing. “I LOVE SNOW!” I don’t know why. I just feel be … more →

Tags: Kodiak My Little Grizzly, Deafblind, Kodiak, Scoliosis, Weather, sleep, Head-banging, Winter storms, Vitamin D

Oh! The funny things kids do and say!10 comments

Kodiak My Little Grizzly wrote 1 month ago: It was another WINTERY Sunday morning….with rain, sleet and snow… I was able to sleep in … more →

Tags: Kodiak My Little Grizzly, Deafblind, braille, ASL, Scoliosis, hot chocolate, Coffee, Caribou coffee, panera

The worst of the storm is over!8 comments

Kodiak My Little Grizzly wrote 1 month ago: Kodiak is at peace when he’s asleep… I came home from work and found him asleep… I … more →

Tags: Kodiak My Little Grizzly, Deafblind, Scoliosis, sleep, Pain, eye pain, Winter storms, Vitamin D, Barometer

Stormy weather and pain!8 comments

Kodiak My Little Grizzly wrote 1 month ago: I don’t have much to say… My other posts have been very specific on this subject… … more →

Tags: Kodiak My Little Grizzly, Deafblind, eye pain, Head Pain

How do you keep a DeafBlind child safe in a vehicle?15 comments

Kodiak My Little Grizzly wrote 1 month ago: HELP!!! I refuse to beg! BUT NOW IT’S GETTING OUT OF HAND! I hate asking for help. But I keep … more →

Tags: Kodiak My Little Grizzly, Deafblind, Special Needs, Scoliosis, Ford Expedition, Seat belts, outgrown car seats, race car driver restraints, 5 Point Harness

When the "FEAR" becomes reality - the "FEAR" disappears!5 comments

Kodiak My Little Grizzly wrote 1 month ago: I had the day off work. But of course my day off was not. I had to take Kodiak to see another very s … more →

Tags: Kodiak My Little Grizzly, Deafblind, gillette Children's, braille, ASL, Scoliosis, Full Moon, melatonin, Vision loss

Red and blue lightening?10 comments

Kodiak My Little Grizzly wrote 1 month ago: I worked a lot of hours this week. This last month we were extra busy with so much going on. Yesterd … more →

Tags: Kodiak My Little Grizzly, Deafblind, Scoliosis, sleep, rain

Kodiak knows what he wants!7 comments

Kodiak My Little Grizzly wrote 1 month ago: It has been awhile since I posted because we have been quite busy. We have been working hard, playin … more →

Tags: Kodiak My Little Grizzly, bathroom, blind and crowds, blind walking up and down stairs, braille, cane for blind, Deafblind, IEP, intervenor


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