Tags » CHD

Compassionate Care

Today I want to tackle a subject that has haunted me for many years.  When my daughter was born with HLHS, we were given three options, a heart transplant, three open heart surgeries or to do nothing and let her die, also called compassionate care.  600 more words


Out of Death comes Life in the CHD community

Today many of us in the CHD community are deeply saddened by the death of two of our own in the span of three days time. 584 more words

The beginning always take a while

This is about an amazing boy, my very own mini super hero and what more? I get to call him my son!
Back in 2012 I was given a huge surprise. 839 more words


New home

It has been a long time since I sat down to do a blog but we have a good excuse. Two weeks ago we finally moved into our new home and we are loving it. 555 more words

Riley Ann Moss


How do you feel about goodbyes? Relieved, sad, couldn’t give a toss. It’s something that I’ve never really thought about but I do know I have been totally shit at them. 1,014 more words

Heart to Heart - July

Our journey as a heart family began just over three years ago at a routine 20 week scan. We arrived at the scan that morning as excited parents-to-be, looking forward to seeing our precious baby on the screen and left the hospital with our world falling apart around us. 425 more words

A not so typical day

Aside from love, the status of our health is the number one thing we take for granted (I think I read that somewhere- or maybe I just made it up?). 479 more words

Dirty Diapers