Tags » CHD

Growth: Nurturing, Community, and Change at HeartWire

It feels a bit strange to be sitting here at this moment talking about change within HeartWire. We’ve just met, we’ve only just started. But life, and more importantly, life with congenital heart disease (CHD) is always a process. 504 more words

You Can Do It!

Hey everyone, I know it’s been awhile!  We took some time to travel up to Connecticut to visit family and attend a friend’s wedding in NY.   885 more words

HLHS

When the baby isn't born healthy

We’ve all expressed concerns during our pregnancy about the looks, weight, sleep patterns and habits of our baby to which we’ve been told:

“It doesn’t matter as long as they’re healthy”

869 more words

Life related

So this isnt about the book, well actually it is but this will be much further down the line as I have only just started planning this out! 114 more words

CHD

Compassionate Care

Today I want to tackle a subject that has haunted me for many years.  When my daughter was born with HLHS, we were given three options, a heart transplant, three open heart surgeries or to do nothing and let her die, also called compassionate care.  600 more words

CHD

Out of Death comes Life in the CHD community

Today many of us in the CHD community are deeply saddened by the death of two of our own in the span of three days time. 584 more words

The beginning always take a while

This is about an amazing boy, my very own mini super hero and what more? I get to call him my son!
Back in 2012 I was given a huge surprise. 839 more words

CHD