Blogs about: Cns Lupus
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Lupus Adventures at the Arizona, Walk to End Lupus Now 2013
Registration & Check in Area Walk Day Today, I am sitting here in the shade of a ramada at Chapparal Park in Scottsdale, Arizona enjoying some beautiful spring weather. I am writing from the regi… more →
Lupus, the Adventure Between the Lines
Lupus Adventures at the Arizona, Walk to End Lupus Now 2013
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wrote 3 weeks ago: Registration & Check in Area Walk Day Today, I am sitting here in the shade of a ramada at Chapp … more →
The NERVE of LUPUS!
wrote 1 month ago: LUPUS Neuropathies, I’ve wondered what IS the cause? Is it destruction to the myelin sheath? … more →
Lupus Fatigue and Finding a Fighting Spirit
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wrote 3 months ago: A tidal wave of lupus fatigue. As I stand barefoot on my cold, wet beach and watch the receding tida … more →
Lupus and Benlysta Infusions - After 18 months
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wrote 3 months ago: 18 Months of Benlysta This afternoon marked the 18th month of Benlysta infusions for my Systemic Lup … more →
Handicapable
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wrote 3 months ago: Wheelchairs suck. That’s all there is to it. Having to be pushed around by someone else is nev … more →
Lupus adventures in a sea of numbers
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wrote 4 months ago: swimming in a sea of numbers For me the holidays are always followed by two new years. First, of co … more →
Benlysta infusion and forgetting something
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wrote 5 months ago: stopped at the valet Today was my last Benlysta infusion of the year, and I was the last infusion of … more →
Thanks-giving and Lupus
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wrote 6 months ago: Focus on Thanksgiving This is the one week of the year when the entire nation focuses on thankfulnes … more →
Lupus and the irony of sleeplessness
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wrote 6 months ago: Exhaustion and sleeplessness Exhaustion and sleeplessness – two contradictory problems that st … more →
Lupus, an Assistant and an Anniversary
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wrote 7 months ago: Working with lupus Working with lupus is most manageable for me when I have good clerical support st … more →
Lupus and Benlysta Infusions - after one year
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wrote 8 months ago: Phoenix Skyline Today marks one-year since I first sat in this same infusion center in a Phoenix hos … more →
Lupus and Benlysta - One year rheumatologist check up with B+ Benlysta grade
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wrote 9 months ago: One year of Benlysta This month will mark one year since starting Benlysta infusions for my lupus. … more →
Lupus and fulfilling my civic duty
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wrote 9 months ago: 5:00 a.m. – a minor system shock! On Monday morning, I had the privilege of reporting to jury … more →
Lupus and Benlysta - After 11 months and 12 infusions it is a milder, gentler monster
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wrote 10 months ago: In a hurry and in brain fog This week I passed the milestone of 11 months since starting Benl … more →
Lupus when picking up paper hurts
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wrote 10 months ago: turning pages was painful My hands have given me a lot of trouble lately, and normal actions have be … more →
CNS Lupus and Getting the Dates Right
wrote 11 months ago: Finalizing budget reports If it were not so professionally embarrassing, it might be a bit funny. Th … more →
Stopping a lupus flare with a nap in three acts
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wrote 11 months ago: Prologue Monday night at work I was overwhelmed with bone-tired fatigue before heading out into the … more →
Lupus, stars and an invisible medication leash
wrote 11 months ago: gourmet pizza… Friday afternoon while telecommuting at home, the call came from my husband inv … more →
Lupus and confessions of a coffee mug hugger
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wrote 11 months ago: Screaming alarm… The alarm on my tablet PC laying on the end table summoned me from the half d … more →
