Tags » Congenital Heart Defect

welcome to my website

Welcome! This website celebrates the almost-completion of my memoir Blood Bond. It’s the story of raising my son, Thom, who was born in 1974 with Tetralogy of Fallot, a life-threatening congenital heart defect. 111 more words

Writing Process

Baby Girl passed her very first test yesterday.

So a lot has been going on since my last post. But I don’t have the time or energy to recap all of that today. I will eventually, just not today. 230 more words


A Summary of Our Story


Kip Hollin Cogburn was born at 2:39pm January 23rd, 2014. He weighed 6lbs 8oz, and was 19″ long. The doctor realized right away that his cry was not right. 1,054 more words


Heart Friends

I want to introduce my blog friends to a dear “heart” friend of mine. I was born with a heart condition called Tetralogy of Fallot with pulmonary atresia. 522 more words

Congenital Heart Defect

Six Month Checkup or Remember? Charlotte is a Heart Patient

Back in October I reported that Charlotte’s heart was doing well, but not as well as we would all like.  Dr. Young asked us to come back in six months to see if the numbers, specifically the diameter of her conduit and the gradient blood flow into the right pulmonary artery, were holding steady.   560 more words

Ann And Robert Lurie Children's Hospital Of Chicago

Finding Purpose

Purpose.  Meaning.  I think it’s the great mystery in life.  When you grow up in church, and you’re in youth group and stuff, they always talking about “Finding God’s Purpose For Your Life” (aka “calling”).  808 more words


Tomorrow Our Life is Changing

Tomorrow April 1, 2014 is going to change our lives.  Our son is going in to the biggest heart surgery that he will ever have.  It is called a Double Switch Operation or a form of the Senning procedure.   143 more words

Heart Journey