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Blogs about: Corneila De Lange

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CdLS Family Gathering June '093 comments

Beth wrote 6 months ago: We had a gathering of local CdLS families this past weekend.   We had about 13 families here and it … more →

Tags: CdLS, Cornelia de Lange, Parenting, Cornelia de Lange Syndrome, Family, family fun, Special Needs

25 Random Things About My Child with CdLS2 comments

Beth wrote 10 months ago: He will NOT wear a hat anymore. Bummer cause he looks so cute in them. Andrew is 7 1/2 years old. He … more →

Tags: 25 random things, CdLS, Cornelia de Lange, Parenting, CdLS Blog Challenge, Cornelia de Lange Syndrome, Family, family fun, kids

Wordless Wednesday4 comments

Beth wrote 10 months ago: A very expensive toy.  This piano has taken such a beating.  From chipped keys, to chewed edges, to … more →

Tags: CdLS, Cornelia de Lange, Parenting, CdLS Blog Challenge, Cornelia de Lange Syndrome, Family, family fun, Special Needs, Wordless Wednesday

What a great day today2 comments

Beth wrote 10 months ago: So, the weather was really warm today.  Just a few days ago we were buried in snow and it was freezi … more →

Tags: CdLS, Cornelia de Lange, Parenting, Cornelia de Lange Syndrome, Family, family fun, kids

Angel of God (a poem)3 comments

Beth wrote 10 months ago: I know what you are thinking. You want a miracle. What better one could I give than to make this lit … more →

Tags: CdLS, Cornelia de Lange, Parenting, Cornelia de Lange Syndrome, Family, kids, Poem, Special Needs

A few words from Joe6 comments

Beth wrote 1 year ago: Following is a post from my 9 year old son.  He typed this all by himself.  I didn’t know that … more →

Tags: CdLS, Family, Special Needs


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