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Blogs about: Cornelia De Lange

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Wordless Wednesday2 comments

Beth wrote 1 month ago: Andrew signs "Pig" at Disney's Animal Kingdom … more →

Tags: CdLS, Wordless Wednesday, family fun, Special Needs

CdLS Family Gathering June '093 comments

Beth wrote 6 months ago: We had a gathering of local CdLS families this past weekend.   We had about 13 families here and it … more →

Tags: CdLS, Parenting, corneila de lange, Cornelia de Lange Syndrome, Family, family fun, Special Needs

25 Random Things About My Child with CdLS2 comments

Beth wrote 10 months ago: He will NOT wear a hat anymore. Bummer cause he looks so cute in them. Andrew is 7 1/2 years old. He … more →

Tags: 25 random things, CdLS, Parenting, CdLS Blog Challenge, corneila de lange, Cornelia de Lange Syndrome, Family, family fun, kids

Wordless Wednesday4 comments

Beth wrote 10 months ago: A very expensive toy.  This piano has taken such a beating.  From chipped keys, to chewed edges, to … more →

Tags: CdLS, Parenting, CdLS Blog Challenge, corneila de lange, Cornelia de Lange Syndrome, Family, Special Needs, Wordless Wednesday, family fun

What a great day today2 comments

Beth wrote 10 months ago: So, the weather was really warm today.  Just a few days ago we were buried in snow and it was freezi … more →

Tags: CdLS, Parenting, corneila de lange, Cornelia de Lange Syndrome, Family, family fun, kids

Angel of God (a poem)3 comments

Beth wrote 10 months ago: I know what you are thinking. You want a miracle. What better one could I give than to make this lit … more →

Tags: CdLS, Parenting, corneila de lange, Cornelia de Lange Syndrome, Family, Special Needs, kids, Poem

We are the Champions!!!4 comments

Beth wrote 1 year ago: Go Phillies!!!! Woohoo!!!! … more →

Tags: CdLS, Phillies

Special Exposure/Wordless Wednesday5 comments

cdls wrote 1 year ago: Cameroid.com Fun Cameroid.com fun. Try it. It’s free! It was the most fun these three have had … more →

Tags: Cornelia de Lange Syndrome, Special Exposure/Wordless Wednesday, CdLS, cameroid.com

Simple Pleasures in Life--CdLS Blog Challenge5 comments

cdls wrote 1 year ago: This week the CdLS-KIDS Blog Challenge is to list our simple pleasures in life. Reading the paper on … more →

Tags: Cornelia de Lange Syndrome, CdLS-KIDS Blog Challenges, CdLS, Special Needs, Simple Pleasures

Kid Tough DVD Player by Fisher Price4 comments

Beth wrote 1 year ago: Watching Barney in the car Last week I bought a kid’s DVD player from Walmart.  It’s mad … more →

Tags: CdLS, Parenting, family fun, kids dvd player

special exposure / Wordless Wednesday8 comments

Beth wrote 1 year ago: Andrew and I hitch a ride on a camel. Not very comfy sitting on the hump I must say. Andrew loved th … more →

Tags: CdLS, Parenting, Family, Wordless Wednesday, family fun

Wordless Wednesday 5 comments

Beth wrote 1 year ago: Can't help but smile at a rainbow... : ) I know I’m a little early, but I have a busy day … more →

Tags: CdLS, Parenting, Family, Wordless Wednesday, rainbows

Goodbye "Baby Girl"6 comments

Beth wrote 1 year ago: My "baby girl" Money My “baby girl” is gone.  She was diagnosed with renal fai … more →

Tags: CdLS, Parenting, dog, Family, family loss

Baylee loves soap part 25 comments

cdls wrote 1 year ago: I should probably leave this photo for Wordless Wednesday, but I suppose I’ll share it now. I … more →

Tags: Cornelia de Lange Syndrome, CdLS

CdLS-KIDS Blog Challenge2 comments

cdls wrote 1 year ago: Visiting Great Grandma Mabel Originally uploaded by baysmom3 Our blog challenge this week is to writ … more →

Tags: CdLS-KIDS Blog Challenges, Cornelia de Lange Syndrome, Blog Challenge, CdLS

Wordless Wednesday3 comments

Beth wrote 1 year ago: This looks like a quiet, peaceful event. Don't be fooled! He's banging and yelling to celebr … more →

Tags: CdLS, Parenting, Wordless Wednesday

Oh my goodness!!3 comments

Beth wrote 1 year ago: "the little darling" I just checked my calendar.  That’s where I put all of the stic … more →

Tags: CdLS, Parenting, g-tube, MIC-KEY button, g-tube pulling

Wordless Wednesday 4 comments

Beth wrote 1 year ago: Tables are for glasses, not for...oh, never mind! … more →

Tags: CdLS, Parenting, Family, family fun, kids

Updates: Mom, Money, Andrew's pain

Beth wrote 1 year ago: Picked my mom up today and brought her here.  She is currently using a walker and hopes to graduate … more →

Tags: CdLS, Parenting, Cornelia de Lange Syndrome, dog, Family, Knee Replacement


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