Blogs about: Crouzon Syndrome
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1st June: Off to the hospital once again
Ok guys, I apologize, that I havent been posting for a while, but my life has not been so interesting anyway. I am still doing all the ortho stuff with my teeth, I am still working and I still spend m… more →
Broken Butterfly- A Crouzon syndrome survivor's blog
1st June: Off to the hospital once again
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Candar wrote 6 months ago: Ok guys, I apologize, that I havent been posting for a while, but my life has not been so interestin … more →
Alive, working, writing
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Candar wrote 9 months ago: It seems that I am really neglecting this blog, but the truth is that I do not have much to write ab … more →
Coping with stuff
Candar wrote 1 year ago: Life is going decently, that is why I havent been posting here for a while. The job showed to be rea … more →
Expander removed! ^___^
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Candar wrote 1 year ago: It’s out! After 6 months, it is out! At the 20th March, I spent about a hour in the dentist … more →
Getting legally disabled?
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Candar wrote 2 years ago: I was visiting my doctor today. She checked me up and we had a long talk about my close future. Obvi … more →
Finally home!!! ^___^
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Candar wrote 2 years ago: I was released from hospital yesterday (monday, 9:30 am precisely). Yay! I visited my best friend wh … more →
Turning the screw
Candar wrote 2 years ago: Sorry for the delay, I was not feeling well. Delayed post surgery shock creeped on me and I also hap … more →
A bad bad night
Candar wrote 2 years ago: Yesterday’s night was bad. Really really really bad. I spent most of it with a finger on emerg … more →
My SARPE surgery with Le Fort I
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Candar wrote 2 years ago: Ok, hello again everyone. As promised, I am going to share my surgery experience. The text below is … more →
Going to hospital tomorrow, now in thinking mood
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Candar wrote 2 years ago: So, I got up at 6 am today and took buss from gran’s home to Prague. This weekend was really g … more →
Palatal expander on, SARPE surgery on 14th September
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Candar wrote 2 years ago: Ok, I got my Hyrax palatal expander attached yesterday. It did not hurt (except for some tiny proble … more →
Teeth still not done, Hyrax still not on...
Candar wrote 2 years ago: Ok, yesteerday was a real nightmare. The doctor who attached the spacers did it wrong. He could not … more →
Surgery postponed... again...
Candar wrote 2 years ago: Ok, I should go and have Hyrax application attached to my upper jaw. As usually (I am almost getting … more →
The mystical non-existent thyroid disease
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Candar wrote 2 years ago: It does happen very often. Actually, there usually isn’t a month without somebody stopping me … more →
Living with Crouzon syndrome
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Candar wrote 2 years ago: I wont write a long essay about Crouzon syndrome here. I am not an expert and a lot has been written … more →
