Blogs about: Cystic Fibrosis 2

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Cystic Diagnosis – Coming Soon!

Dow Family Portrait – Fall 2011 We found out that our daughter Katie had Cystic Fibrosis on September 30 2008. Katie was 17 months old at the time. Cystic Fibrosis, or CF, affects the lungs and… more →

Todd H Dow

Anatomy of a Quarter-Life Crisis

emsander wrote 2 weeks ago: “What do you want to do?” “I want to leave my job and I don’t want to resign … more →

Tags: New York City, cystic fibrosis, health, Life, New York City, mono, Chronic Illness, quarter-life crisis, ptsd

A month full of awareness! — 2 comments

Jenni wrote 2 weeks ago: Well lately I’ve been lacking in the enthusiasm department. I just feel so tired all of the ti … more →

Tags: Asthma, Asthma Nurse, Awareness, bad joints, ankylosing spondylitis, cystic fibrosis, Lupus

Soldiering On — 2 comments

simplyblake wrote 1 month ago: Andy and me, circa 1980. Superheros at heart. Though I was humiliated by the idea, I posed for this … more →

Tags: cystic fibrosis, Cystic Fibrosis Foundation, Vertex Pharmaceuticals, Kalydeco, great strides, cf foundation

Happy half Birthday!

Jenni wrote 1 month ago: Well today is my blog’s half birthday. Yes, mylungsmylife has been around for 6 months now! So … more →

Tags: Arthritis, Asthma, Blog, diabetes, juvenile arthritis, Blog 2, cystic fibrosis

The Thoughts of a New Runner (Who Is Usually Quite Sane, I Promise) — 45 comments

Laura wrote 1 month ago: As I pulled on my tennis shoes, I had lovely thoughts like, “I feel great today. The weather i … more →

Tags: healthy family, Healthy Living, health, Lifestyle, Life, Wellness, Running, Thoughts

Munchkin Meals: 10 Months Old — 10 comments

Laura wrote 1 month ago: **Linking up today with Brittany from A Healthy Slice of Life for this month’s edition of Munc … more →

Tags: Baby, healthy family, Family, Healthy Living, Food, cystic fibrosis, health, Baby #2, Baby Food

Transition Clinic

bethanyjay wrote 2 months ago: Last month I had a clinic appointment at the hospital but instead of just seeing all my normal docto … more →

Tags: cystic fibrosis, University, One Direction, hospital, Transition Clinic, Bristol, bri, Bristol Children's Hospital, Worcester University

Airway Clearance — 4 comments

easyoxygentravel wrote 3 months ago: My name is Cindy C.  I have been a Respiratory Therapist for 20+ years.  I have worked on both coast … more →

Tags: Durable Medical Equipment, COPD, travel with oxygen, Oxygen Concentrators, Restricted Lung Disease, chronic lung disease, Asthma, cystic fibrosis, Chronic Lung Disease

Dalton Dingus Update

Jenni wrote 4 months ago: I feel that I owe people an update on Dalton, I did a wee post on him a while ago. For these of you … more →

Tags: Awareness, cystic fibrosis, cystic fibrosis awareness

The Hospital from Hell: Part III

emsander wrote 5 months ago: All I wanted to do was sleep. But my new hospital roommate made that task impossible. She was a kind … more →

Tags: New York City, cystic fibrosis, hospital, health, Mount Sinai Hospital, Medicine, diabetes, Health 2, IV

Dalton dingus - cystic fibrosis christmas world record

Jenni wrote 5 months ago: I feel compelled to tell you all about this amazing young lad Dalton Dingus. Dalton is 9 and has sta … more →

Tags: Awareness, cystic fibrosis

The Hospital from Hell: Part II — 2 comments

emsander wrote 5 months ago: I was wheeled into a hospital room occupied by five senior citizens screaming at each other. Dear Go … more →

Tags: New York City, cystic fibrosis, hospital, health, Mount Sinai Hospital, Queens, Hospital, celiac disease, Gluten-free

Munchkin Meals: We Need More Protein! — 16 comments

Laura wrote 5 months ago: It’s the first Thursday of the month, and that means I’m hooking up with Brittany at A H … more →

Tags: Baby, Children, cooking, Food, stay at home mom, Baby #2, Baby Food, homemade baby food, munchkin meals

The Hospital from Hell: Part I — 1 comment

emsander wrote 5 months ago: Every breath felt like a needle stabbing into my lungs. The weight on my chest and back was unlike a … more →

Tags: New York City, cystic fibrosis, hospital, health, Mount Sinai Hospital, Queens, Hospital, Morphine, NYC

Your Complaints Are as Good as Mine — 50 comments

Laura wrote 5 months ago: After we got our son’s official diagnosis of having cystic fibrosis, I was angry. My tender an … more →

Tags: Baby, Children, Parenting, cystic fibrosis, health, Baby #2, Life, Childrens' Health, inner strength

Mono a Mono

emsander wrote 6 months ago: “You’re positive for mono,” the doctor confirmed a few weeks later. Excuse me? Who … more →

Tags: cystic fibrosis, Mononucleosis, mono, College

Braver Than I — 40 comments

Laura wrote 6 months ago: When I’m alone, or with my immediate family, or with very close (and equally silly) friends, I … more →

Tags: Family, Children, Events, being brave, facing your fears, anxiety, gala, Charity, Well-dressed

Munchkin Meals: Challenges — 10 comments

Laura wrote 6 months ago: I’m linking up today (and the first Thursday of every month!) with Brittany at A Healthy Slice … more →

Tags: Baby, healthy family, Healthy Living, Food, cystic fibrosis, health, Baby #2, baby's firsts, Baby Food

Catching Up — 9 comments

Laura wrote 6 months ago: The past two weeks have been a whirlwind of fun, adventure, and feeling overwhelmingly busy (yes, ev … more →

Tags: Family, Family, Home, cystic fibrosis, stay at home mom, Cystic Fibrosis Foundation, Entertainment, Life, Halloween


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