Tags » Cystic Fibrosis

The Vest: Airway clearance sytem


This is good for spastic quadrapelegia and also good for cystic fibrosis.  Insurance companies do pay for it but I don’t know which ones, I thought this needed to be out there!  

Kalydeco: Days 7-11

The format for this post will be a little different than the past days i’ve spoken on my journey taking kalydeco. Honestly, its because nothing overly eventful has happened over the past 4 days. 844 more words

Cystic Fibrosis

How bodybuilding changed my life.

“The Iron never lies to you. You can walk outside and listen to all
kinds of talk, get told that you’re a god or a total bastard. 1,402 more words

Cystic Fibrosis

What happens to the people in the countries that can't afford Kalydeco?

More than 400 people worldwide are still waiting for Kalydeco to become available.
This is close to 20% of the worldwide G551D Cystic Fibrosis population. 399 more words

3. Vertex - Kalydeco

mukomama reblogged this on mukomama... and commented:

Kalydeco, wspanialy lek, dla tych ktorzy moga. My czekamy niecierpliwie na taki ktory pomoze Kubuniowi...


Wichita, KS – May 3, 2014: 4th Annual CF Poker Run

Sponsored by: VFW Post 3115

The poker run starts at VFW Post 3115, 4801 W. 91 more words

Work, work, work, work, work and other stuff.

I’m “first-drafting” this post just to get back in the habit of posting. I feel like I have to create a masterpiece each time with photos and it’s keeping me from blogging. 338 more words

Cystic Fibrosis

Total budget...breakdown

Welp, I just can’t lie. Our effort at running a tight ship on the money front went up in smoke this month.

Do you have any idea what kind of lattes they have in the D.C. 852 more words

Cystic Fibrosis