Tags » Cystic Fibrosis

Meet the Magical Minty Skydive Team - Fundraising for CF Trust


On June 8th, my husband and I, plus four amazing friends are going to jump from a plane travelling at 120mph to the ground. We hope to raise thousands for CF Trust in the process. 1,530 more words

Pre-op appointment

When I go to Hell, I’ll spend my days filling out medical forms. That’s right. One after another, all day long.

Please list your meds. (But I have a list with me.) 227 more words

Cystic Fibrosis

Cystic fibrosis activists frustrated by delayed talks between provinces, drug company

Cystic fibrosis activists are frustrated that provincial health ministers have not followed through on a promise to get a “face-to-face” meeting with the maker of a breakthrough drug on a “fair price” for taxpayers. 396 more words


The Power of Prayer

Prayer Works

Sometimes I get nervous to go to the clinic, not because my health is that bad, but because I always want a good report and the past 3 visits haven’t been the most positive: 369 more words

CF Living

Kitty Hugs

This is me with my kitty named Kiki, as in kitty kitty. She likes to cuddle up next to me and hug my arm.

This is good medicine! 27 more words

Gratitude, again

There has been a few times when I wanted to write, but I resist.

I am resistant to complain, putting out my complaints and my frustrations out into the world. 817 more words

Cystic Fibrosis

Ride For Flea

Australian woman and champion cyclist Lani Bullen is pedalling her way across the country in the name of charity and in a bid to realise the dream of her late, younger sister, Elke (a.k.a Flea). 288 more words