Blogs about: Dealing With Doctors
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Happy Turkey Day!
Nothing makes me feel better, especially this year, than being with my family. Nothing makes me feel more like the world is open to May, rather than closed; that she will be included, loved and adored… more →
Mama Lewis
Happy Turkey Day!
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Stacie Lewis wrote 1 week ago: Nothing makes me feel better, especially this year, than being with my family. Nothing makes me feel … more →
You Are Not Alone...We Are In This Together!
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Mary Joy wrote 2 weeks ago: This has been an incredibly difficult week for me. We are having a very difficult time with J. these … more →
Service has resumed
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Stacie Lewis wrote 3 weeks ago: When May was first diagnosed, I assumed the major stresses of our lives would be emotional, as we fa … more →
This week I'm... encouraging reaching.
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Stacie Lewis wrote 1 month ago: Day by day, week by week, we see more clearly in what way May’s hands and arms are weaker than … more →
Meeting with the Boss
Stacie Lewis wrote 1 month ago: Yesterday at her appointment with the Boss, I expressed my concerns about May’s care: how my f … more →
Back in the thick of it
Stacie Lewis wrote 1 month ago: Visiting family in the States. Chicago. Overnight stays at two friends houses. Wales and a lovely ni … more →
How the British do bad news (edited)
Stacie Lewis wrote 1 month ago: Several days after posting this entry, I felt compelled to take it down. Whenever I write about May … more →
That night.
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Stacie Lewis wrote 1 month ago: The night we learned May’s fate, I imagined I would be incapable of feeling anything but fear … more →
Hope or Denial?
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Stacie Lewis wrote 2 months ago: Is it hope or denial when I think my daughter’s future may be brighter than I originally thought? Wh … more →
Do you want the good news or bad first?
Stacie Lewis wrote 2 months ago: “She is a bit of a mixed bag, that’s for sure,” the Boss said to me yesterday. How … more →
Two weeks and waiting (update)
Stacie Lewis wrote 2 months ago: I decided to be a real pain in the ass yesterday. I called up the Boss’ PA to nag her about ch … more →
Two weeks and waiting...
Stacie Lewis wrote 2 months ago: It’s been two weeks and still I haven’t spoken to May’s doctor – The Boss. A … more →
An educated woman
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Stacie Lewis wrote 2 months ago: Yesterday, in an email to the Boss, I used the phrase: “I’m an educated woman.” I … more →
Fumblings with the doctors
Stacie Lewis wrote 2 months ago: Anyone familiar with a long-term illness or disability will understand the frustration I feel trying … more →
DEALING WITH DOCTORS: RS09
typeawithra wrote 9 months ago: DEALING WITH DOCTOR’S OFFICES/STAFF/DOCTORS: This post is part of my Resource Series 2009. … more →
Dexamethasone and Cortisol
natureschain wrote 9 months ago: So I’ve been tapering dexamethasone down for three months now. My edema gets worse every time … more →
Doctors and Lawyers Can Be a Tough Crowd
businessbeware.biz wrote 9 months ago: Some of the toughest people to do work for or have a contract with are doctors and lawyers. And let … more →
damn doctor!
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natureschain wrote 10 months ago: Dr McGirr, the Neurosurgeon not only did not chart his instructions to me to titrate off Dexamethaso … more →
RTF Chart
natureschain wrote 10 months ago: So my neurosurgeon, the guy who did the Gamma Knife surgery told me it might take a year to titrate … more →
