Blogs about: Dermatomyositis

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foot drop

myositisco wrote 1 day ago: Here’s a video about foot drop. Some of our members have used braces to counteract their foot … more →

Tags: Colorado KIT Group, Inclusion Body Myositis, polymyositis, videos

Abby's story

myositisco wrote 4 weeks ago: … more →

Tags: videos

Surfing the Dream6 comments

roweeee wrote 1 month ago: Have you ever had an experience where your feet somehow walk ahead of you? That you suddenly wake up … more →

Tags: Travel (2), Life Changes, Poetry, mum, Motivation, beach, Chronic Illness, whale beach, Muscular Dystrophy

en español

myositisco wrote 1 month ago: Free, accurate information on many neurological disorders is now available on a new Spanish-language … more →

Tags: polymyositis

stop sponging off

myositisco wrote 1 month ago: Sometimes you gotta do what you gotta do when you are sick or injured. Everyday freedoms become the … more →

Tags: Colorado KIT Group, Gadgets, Inclusion Body Myositis, polymyositis

making your house your home3 comments

myositisco wrote 1 month ago: There was so much great information about home modifications at our last meeting, it’s going t … more →

Tags: caregivers, Colorado KIT Group, Inclusion Body Myositis, Juvenile Dermatomyositis, polymyositis

Quest magazine

myositisco wrote 1 month ago: The Spring, April – June 2013 issue of Quest magazine is out! Quest is the MDA’s (Muscul … more →

Tags: Inclusion Body Myositis, polymyositis, publications

at your fingertips

myositisco wrote 1 month ago: Here’s another quick fix for cracked skin – especially good for Mechanic’s Hands … more →

Tags: polymyositis, caregivers

it puts the lotion on its skin

myositisco wrote 1 month ago: I hear that phrase in my head every night I put lotion on my foot. Which is a lot of nights. For tho … more →

Tags: caregivers

My Son and the Rose2 comments

roweeee wrote 2 months ago: This morning, I had an incredible Eureka moment. No! I didn’t go running naked through the streets l … more →

Tags: Parenting, Chronic Illness, death, Eureka, Faith, Family, God, healing, health

rare disease day3 comments

myositisco wrote 2 months ago: Today is Rare Disease Day! NORD (National Organization for Rare Disorders) is a fantastic organizati … more →

Tags: Colorado KIT Group, Inclusion Body Myositis, Juvenile Dermatomyositis, polymyositis

A Line in the Sand...2 comments

roweeee wrote 2 months ago: I apologise for taking the easy way out today. I usually go to great lengths to provide a striking p … more →

Tags: Acceptance, adversity, anxiety, Auto Immune Disease, change, Chronic Illness, Dale Carnegie, death, Driftwood

TMA live discussion

myositisco wrote 3 months ago: There will be a live discussion on TMA’s website: Access to Treatment – Michelle Greer T … more →

Tags: caregivers, Inclusion Body Myositis, polymyositis, TMA Live Discussion

Au Revoir 8 comments

susiemorrow wrote 3 months ago: I havent written anything in this blog for ages. It hasn’t been because I haven’t though … more →

Tags: health, scheleradermatomyositis, schleraderma

IG Living Readers Teleforum - February 20th Invitation

myositisco wrote 3 months ago: We received this invitation in our email, and thought we should pass it along to our readers! This i … more →

Tags: polymyositis, TMA Live Discussion, publications

Recap7 comments

Nichole Smith wrote 3 months ago: For those who are new here: I was diagnose with Dermatomyositis in March/April 2012 while enrolled i … more →

Tags: Random News, autoimmune, health, Disease, methotrexate

extreme pvc

myositisco wrote 3 months ago: So I was just looking for some exercises and equipment our group members might be interested in, and … more →

Tags: Exercises, Gadgets, Inclusion Body Myositis, polymyositis, videos

The best news yet

Kris wrote 3 months ago: “You can’t lose weight when you have untreated sleep apnea” That’s what the … more →

Tags: Sleep Apnea, polysomnography, Sleep Disorder, health, Fitness, Committment, Diet, Exercise, Weight-training

TMA live discussion

myositisco wrote 4 months ago: There will be a live discussion on TMA’s website: Acthar for Myositis – Dr. Todd Levine  … more →

Tags: Inclusion Body Myositis, polymyositis, TMA Live Discussion


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