Tags » Dermatomyositis

An Introduction to Prednisone and My No Good, Terrible, Very Bad Day.

Take it, they said.

It’ll make you feel better, they said.

It’s a wonder drug that saves lives!, they said.

What they didn’t say is how in ‘massive’ doses prednisone will also make you gain weight, lose your hair, develop ‘moon face’, discover new and intriguing pain each day that wasn’t there before, not sleep for days at a time, be a total basket case and have skin akin to a pubescent 13 year old…. 1,056 more words


A Bit of Background.

Slightly over a year ago I never knew a simple meet and greet with a new doctor would change my life as I knew it. 435 more words


Back at the beginning?

Not really sure what’s going on but I’m in a lot of pain lately. The docs answer is to put me on a couple weeks worth of the dreaded steroid I’m finally off of. 184 more words

Random News

It starts...

Well, school starts Monday, so of course, I overdid it the past couple of days getting ready for the students to show up. I moved a lot of equipment, did a little laminating (nothing compared to what my amazing assistant did), made student ID badges when the line of new students registering for school got long, put up posters, etc. 286 more words


Yes, I looked fine when you saw me last week.

I looked as healthy as you,

dressed to the nines with my hair high and sleek, 183 more words


Dermatomyositis and basildon hospital

On Friday the 15th of August my specialist promised me an appointment in September, the letter arrived today and my appointment is dated for the 28th of November. 280 more words

Auto Immune Disease

Dermatomyositis named and shamed

My specialist; propaganda desciete and lies

My specialist rhuematologist Doctor Gendi who work out of Basildon hospital, lied to me and deceived me for 18 months with regards to my dermatomyositis, he went solely on my CK levels and told me that my dermatomyositis was in remission. 158 more words

Auto Immune Disease