Tags » Dermatomyositis

It starts...

Well, school starts Monday, so of course, I overdid it the past couple of days getting ready for the students to show up. I moved a lot of equipment, did a little laminating (nothing compared to what my amazing assistant did), made student ID badges when the line of new students registering for school got long, put up posters, etc. 286 more words


Yes, I looked fine when you saw me last week.

I looked as healthy as you,

dressed to the nines with my hair high and sleek, 183 more words


Dermatomyositis and basildon hospital

On Friday the 15th of August my specialist promised me an appointment in September, the letter arrived today and my appointment is dated for the 28th of November. 280 more words

Auto Immune Disease

Dermatomyositis named and shamed

My specialist; propaganda desciete and lies

My specialist rhuematologist Doctor Gendi who work out of Basildon hospital, lied to me and deceived me for 18 months with regards to my dermatomyositis, he went solely on my CK levels and told me that my dermatomyositis was in remission. 158 more words

Auto Immune Disease

Dermatomyositis rash VS medication rash

Red blisters that itch and weep, that drive you insane before they go a multitude of colours; red, pink, purple and brown. They take months to heal, then start to itch again and flake. 243 more words

Auto Immune Disease

In hell with dermatomyositis - an auto-immune disease.

My appointment with the specialist has been changed for the third time in 8 months. I haven’t seen my specialist now in nearly a year, one might get the impression she is trying to avoid me. 252 more words

Auto Immune Disease

On the Up and Up

Well, I finally got the severe muscle cramp or pinched nerve in my leg under control. Four days of 40mg of prednisone, tramidol, and ice packs seem to have done the trick. 499 more words