Tags » Dysautonomia

A Few Christmasy Notes

I has this tacked on to the end of my Jaws post I wrote today and it just did not fit.

If you missed it on… 381 more words


Jaws Music...

I have been doing well with Christmas activities thus far. We’ve made tons of great memories. If I might say so myself, I have been a trooper and am proud of that. 414 more words


The Story of the Butterfly: Necessary Struggles

The story of the butterfly

A man found a cocoon of a butterfly.
One day a small opening appeared.
He sat and watched the butterfly for several hours… 266 more words

Ashlie Sykora

Being Wounded Healers: Thankful Thoughts- Week 4

Healing has been on my mind this week. I’ve taken steps to make progress in my POTS treatment, but I’ve been reflecting mostly on emotional healing. 762 more words

Pre-Holidays 2014

I’m doing okay. This time of year wears me out every year and that is just how it is. I feel like I may be coming down with something again, but hopefully not. 609 more words


lost in translation...

I’d like to think I’m somewhat of an expert at doctor’s appointments.  I rarely went to the doctor as a kid, so when I became chronically ill a few years ago, doctor visits were foreign territory. 702 more words

Chronic Illness

Upcoming Dysautonomia Webinar

Dear readers,

I have a form of dysautonomia called Postural Orthostatic Tachycardia Syndrome (POTS). I’ve benefited greatly from medication and physical therapy, but I am always looking for more ways to help myself manage my illness.   174 more words