Tags » Dysautonomia

It's Raining Doctors

I wanted to write a post today telling everyone about appointments I’ve been to recently, but I am feeling run down from an appointment yesterday and getting the flu shot. 818 more words


I Wear Turquoise In October, Along With Pink

Although most people are thinking pink for breast cancer awareness, I also make noise for turquoise! Not just because the two are a delightful color combination, but also because October is Dysautonomia Awareness Month. 438 more words

Review Of WhatKnotShop Dysautonomia Bracelets

One of my favorite collections on the Top 25 Picks for Dysautonomia Gear list is from George Hutchinson of WhatKnotShop over on Etsy.

The turquoise color of his Dysautonomia Awareness line of bracelets has such a happy range of shades. 537 more words

BEINGmomME Backlogs

daytime exhaustion and the nighttime adrenaline rush

Some people don’t believe I could be as tired as I say I am during the day because I can’t fall asleep at night.

I lay down, I get blood to the brain… Or maybe I get an adrenaline rush (is that more likely in hyperadrengic pots?)… But it doesn’t matter how downright sickening fatigued I am all day: I can get a rush of energy when it is bedtime. 218 more words

Cause I've seen the dark side too..

When your younger your life consists of firsts.. And then begins the counting.. The number of times you’ve had sleep overs, you’ve been kissed, the number of parties you’ve gone too, the amount of times you’ve had to pay for groceries on your own in the adult world.. 1,017 more words

So, if you know me at all, you know that I am obsessed with dogs.

I have a 16-year-old Boston Terrier, Gracie, who is the love of my life. 183 more words

Dysautonomia Is Real

If you have Dysautonomia, you have probably heard at some point “Dysautonomia isn’t real. It’s all in your head.”

I’ve heard it. I’ve read countless posts in the support forums from fellow sufferers that a misinformed physician (of just about any and every discipline) or acquaintance has told them Dysautonomia doesn’t exist. 832 more words