Tags » Dysautonomia

It all Depends...

Stop telling me to get out and do something normal.

Seriously, I resent the hell out of it.

I can’t have normal. And no matter how much you pretend that I am not sick, it will not make this go away. 626 more words

Autonomic Dysfunction

The Enemy

Everyone has a purpose, a cause for which they fight. These people who take charge and stand against their enemies are considered fighters. They’re known for their strength because they’ve defeated this enemy. 88 more words

Dysautonomia

I really don't miss you when you're gone . . .

It has been a while since I posted about the “adventure” in Dysautonomia.

My symptoms have progressed significantly to the point my digestive system is in truly bad shape. 351 more words

Dear Headache. Please leave.

I’ve had a terrible headache starting yesterday afternoon, and it wouldn’t go away with ipbrofen and paracetemol. It lasted all night and consequently I had a pretty crappy sleep. 250 more words

Mental Health

Acceptance.

I haven’t written in a while, and it has been intentional.  We got some FABULOUS news that I have been wanting to share, but I haven’t had the right words come to me to share that news.  1,204 more words

"Can you hear me?"

I am getting increasingly frustrated with not being heard.

 

I have a good doctor but there is one symptom of mine that whenever I bring it up is not acknowledged or I feel is disbelieved. 1,400 more words

EDS

well, this is new...

I’ve had an interesting week. It’s been a week of firsts.

If you’ve been following this blog you know I’m in the process of weening off the beta blocker (atenolol) I’m on as part of my long term plan to see if having kids is in my future. 775 more words

Dysautonomia