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	<title>dysfunction &amp;laquo; WordPress.com Tag Feed</title>
	<link>http://en.wordpress.com/tag/dysfunction/</link>
	<description>Feed of posts on WordPress.com tagged "dysfunction"</description>
	<pubDate>Sun, 26 May 2013 01:46:53 +0000</pubDate>

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<title><![CDATA[Why Your Prayers Remain Unanswered ]]></title>
<link>http://pushingjesus.wordpress.com/2013/05/03/why-your-prayers-remain-unanswered/</link>
<pubDate>Fri, 03 May 2013 13:11:14 +0000</pubDate>
<dc:creator>Jack</dc:creator>
<guid>http://pushingjesus.wordpress.com/2013/05/03/why-your-prayers-remain-unanswered/</guid>
<description><![CDATA[  Refer to Step 11: I make a commitment to nurture my relationship with the Lord, asking Him to reve]]></description>
<content:encoded><![CDATA[  Refer to Step 11: I make a commitment to nurture my relationship with the Lord, asking Him to reve]]></content:encoded>
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<title><![CDATA[Concussion Information]]></title>
<link>http://monsterzelitefitness.com/2013/05/02/concussion-information/</link>
<pubDate>Fri, 03 May 2013 03:19:09 +0000</pubDate>
<dc:creator>Isaac J. Hall II</dc:creator>
<guid>http://monsterzelitefitness.com/2013/05/02/concussion-information/</guid>
<description><![CDATA[* What is a Concussion * A concussion is a common form of head and brain injury, and can be caused b]]></description>
<content:encoded><![CDATA[<p><strong><em>* What is a Concussion *</em></strong></p>
<p>A concussion is a common form of head and brain injury, and can be caused by a direct or indirect hit to the head or body (for example, a car crash, fall or sport injury). This causes a change in brain function, which results in a variety of symptoms . With a concussion there is no visible injury to the structure of the brain, meaning that tests like MRI or CT scans usually appear normal.</p>
<p><a href="http://isaacjhallii.files.wordpress.com/2013/05/concussion3.jpg"><img class="alignnone size-full wp-image-5111" alt="concussion3" src="http://isaacjhallii.files.wordpress.com/2013/05/concussion3.jpg?w=246&#038;h=205" width="246" height="205" /></a></p>
<p><strong><em>* What actually happens during Concussion *</em></strong></p>
<p>When a person suffers a concussion, the brain suddenly shifts or shakes inside the skull and can knock against the skull&#8217;s bony surface. A hard hit to the body can result in an acceleration- deceleration injury when the brain brushes against bony protuberances inside the skull. Such forces can also result in a rotational injury in which the brain twists, potentially causing shearing of the brain nerve fibres. It is not yet known exactly what happens to brain cells in a concussion, but the mechanism appears to involve a change in chemical function.</p>
<p>In the minutes to days following a concussion, brain cells remain in a vulnerable state. New research emphasizes that the problem may not be the structure of the brain tissue itself, but how the brain is working. The exact length of this change is unclear. During this time period, the brain does not function normally on a temporary basis, and is more vulnerable to a second head injury.</p>
<p><strong><em>* How do concussions occur * </em></strong></p>
<p>Most concussions occur as a result of a collision with another object while the object or person is moving at a high rate of speed. Forces such as these (and others) can result in deceleration and rotational concussive injuries.</p>
<p><em><strong>* Who to tell *</strong></em></p>
<p>It is extremely important to seek medical advice as soon as possible after any blow to the head or body after which you suffer signs and symptoms of a concussion. Often, concussions can go untreated (and even unnoticed by others) because few symptoms are visible to casual observers. Many times, the symptoms of a concussion may not be identified until the person recovers to the point where increased exertion causes symptoms to worsen. In fact, 4 out of 5 professional athletes do not even know that they have been concussed.</p>
<p>Although symptoms may not be immediately apparent, it is important to be aware of possible physical, cognitive and emotional changes. You can never be too careful! Symptoms may actually be worse later the same day of the injury or even the next day. Without proper management, a concussion can result in permanent problems and seriously affect one’s quality of life.</p>
<p>It is important to tell a family member, friend, co-worker, teammate, employer, trainer or coach if you think you have had a concussion. Memory loss or amnesia associated with the trauma is one hallmark of a concussion and some people may forget that they were injured until after the diagnosis is established. However if the person is aware of the signs of concussion, informing someone will help assure proper medical care. If you think you have had a concussion, you should immediately remove yourself from the current activity whether it is sports, work or school.</p>
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<p><strong><em>* Symptoms of a concussion *</em></strong></p>
<p>Following a concussion, you may experience many different kinds of symptoms. Contrary to popular belief, most concussions occur without a loss of consciousness (LOC). It is important to remember that some symptoms may appear right away and some may appear later. Symptoms may be a little different for everyone, although certain combinations of symptoms classically occur. Some may be subtle and may go unnoticed by you as the injured person, co-workers, friends and family. Also, some symptoms may be attributed to any accompanying neck strain, scalp bruises and other injuries, not just the brain injury. **LOC is not necessary for the diagnosis of a concussion but if it occurs, professional help should be sought immediately.</p>
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<p><em><strong>Symptoms</strong></em></p>
<p><em><strong></strong></em>Nausea, vomiting, Dizziness, Confusion, Fatigue, Light headedness, Headaches, Irritability, Disorientation, Seeing bright lights or stars, Feeling of being stunned, Depression</p>
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<p><em><strong>Signs:</strong></em></p>
<p>Inappropriate behavior, Decreased work/playing ability, Inability to perform daily activities, Cognitive and memory dysfunction, Sleep disturbances, Vacant stare, Poor balance.</p>
<p>Other more “vague” symptoms that are described include “head rush”, “lack of focus”, mood changes, feeling “slowed down” and feeling “not myself”.</p>
<p><a href="http://isaacjhallii.files.wordpress.com/2013/05/concussion2.jpg"><img class="alignnone size-full wp-image-5110" alt="concussion2" src="http://isaacjhallii.files.wordpress.com/2013/05/concussion2.jpg?w=259&#038;h=194" width="259" height="194" /></a></p>
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<p><em><strong>* Screening and Diagnosis *</strong></em></p>
<p>Concussion is a common occurrence and most resolve uneventfully. A concussion always has the potential to cause serious harm and needs to be checked by a medical doctor as soon as possible. In addition, if symptoms are not gone in approximately 10 days, further consultation by a concussion expert is recommended. A number of concussion-grading systems have been proposed, but consensus is that none can be supported or endorsed because they are not based on scientific evidence. Severity is probably impacted by a number of factors.</p>
<p>For example, severity may be impacted by the person’s history of previous head injuries. A factor such as this may lead to a different, slower recovery, which is why concussion history should always be monitored. Return to exertional activity while still concussed and symptomatic may also prolong recovery.</p>
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<p>Diagnosing a concussion may take several steps. Your doctor may ask questions about your concussion and work/ sport history, the most recent injury, and will conduct a neurological exam. This can include checking your memory and concentration, vision, coordination, reflexes and balance. Your doctor may request further tests:</p>
<p><strong>Computerized Tomography</strong> (CT scan) &#8211; CT is fast, patient friendly and has the ability to image a combination of soft tissue, bone, and blood vessels. It is a sophisticated X-ray machine linked to a computer to produce detailed, two-dimensional images of the patient’s brain. The patient lies still on a movable table that is guided into a large X-ray machine where the images are taken. A CT scan is painless and usually takes around 10 minutes.</p>
<p><strong>Magnetic Resonance Imaging</strong> (MRI) &#8211; An MRI uses magnetic fields and radio waves to generate images of the brain. The patient lies inside a cylindrical machine for 15-60 minutes while images are made. This technique is also painless, but noisy.</p>
<p>In the majority of concussions there will not be any obvious damage found on these tests. At times they can be important to assess for other skull or brain injury but in general, they currently have little to add to concussion management.</p>
<p>Sometimes the role of neuropsychological testing is important in identifying subtle cognitive (i.e. memory, concentration) problems caused by the concussion and may at times help to plan to return to pre-injury activity. In addition, balance testing may be required. Usually these are arranged by the concussion expert.</p>
<p><em><strong>* When you should return to activity *</strong></em></p>
<p>A concussed person should be removed from activity immediately and should be assessed by a medical doctor. Given that symptoms may worsen later that night and the next day, you should not return to your current activity. When concussed, your decision-making skills about your situation may not reflect the best judgement! Post-concussive symptoms may intensify with an increase in activity, so it is important that return to activity is gradual and monitored/supervised by a medical professional.</p>
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<p><strong><em>* Coping with symptoms *</em></strong></p>
<p>The best medical management for a concussion is rest, both physical and mental. A person who has suffered a concussion may often feel lethargic and tired. It is important to admit this fatigue to yourself. Your brain is telling you that you need rest and it is extremely vital to listen to it. If you continue pushing yourself and struggling on, it is likely you will make yourself worse and less able to cope.</p>
<p>The first thing to fail when you get tired is your concentration. If there is something important to get done, it is best to complete it when you are fresh after resting. When your attention starts to fade you may need to stop, rest again and write down the important things for later.</p>
<p>Many patients who have suffered a concussion often complain of being very irritable. You may find that things that would not normally annoy you suddenly do. Patients sometimes find themselves losing their temper, snapping at family members or friends and being very annoyed over things. This may be because one’s own self-control needs a fresh, working brain as well. In order to cope with this you need to be aware of emotions. Some patients have learned personal relaxation methods such as imagery and progressive relaxation methods to optimize their coping skills.</p>
<p>Other symptoms such as dizziness and clumsiness appear because the brain is reacting slowly and less efficiently. Concussions can upset balance organs in the ear resulting in vertigo. One way to deal with these types of symptoms is to take special care in actions and movements. Move slowly and constantly be aware of your surroundings</p>
<p>Other problems such as noise sensitivity and visual changes are also the result of a concussion. Putting up with noise and bright lights needs brain energy and you may find that you do not have the energy level to do so. You may be around a loud radio, bright lights or a stimulating environment and find yourself suffering from bad headaches. One answer to coping with this is to avoid loud noise and bright lights as much as possible. Many people find it helpful to wear sunglasses everywhere, even indoors.</p>
<p>When dealing with other symptoms it is crucial to only take medications that your doctor has prescribed or approved of. Also, do not drink alcohol or take any drugs not prescribed by a medical doctor. It may hinder recovery and can put you at risk for further injury. Remember, although in most cases symptoms resolve spontaneously, usually in a couple of weeks, in some cases, the process of healing from a concussion may take a considerable amount of time. It is important to pace yourself and increase activity gradually. Make sure you can cope before making any changes and consult with your family or friends before making any important decisions.</p>
<p><a href="http://isaacjhallii.files.wordpress.com/2013/05/concussion.jpg"><img class="alignnone size-full wp-image-5109" alt="concussion" src="http://isaacjhallii.files.wordpress.com/2013/05/concussion.jpg?w=271&#038;h=186" width="271" height="186" /></a></p>
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<p><em><strong>* Coping with emotions *</strong></em></p>
<p>When coping with a concussion, it is not uncommon for the person to become overwhelmed by a variety of emotions. Often times the patient feels concerned, anxious and sometimes depressed. The first part of the healing process is knowing that these emotions are normal. After an injury, most people go through an initial stage of denial or disbelief. You may refuse to believe that you are injured or unable to participate in your selected work, activity or sport.</p>
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<p>It is extremely tough to realize that after sustaining a concussion, your body may not be able to respond as it did before. Other emotions such as anger and depression are also common when suffering a concussion. You may find yourself being angry, displaced, and blaming others for your injury. It is quite common to become very angry at your co-workers, family and friends. As you continue to become more aware about the extent of your injury, depression may set in. This may include self-pity, crying, insomnia, etc. When you are unable to work, play and participate in your normal life, you may become doubtful of your personal abilities and struggle with your personal worth. You may worry that if you are out of the “loop”, somebody will take your spot or permanent position. You may suffer a blow to your ego and it is not uncommon to isolate or alienate yourself.</p>
<p>With time, most patients learn to accept the injury. It is important to allow yourself to mourn and be sad and then move on. Attempting to be mad or tough and find blame for your injury is a waste of time. It is important to leave the “should haves” or “would haves” out of the picture and focus on the future. The reality is that you have suffered a concussion and you have to deal with it. This may include setting goals for yourself and maintaining a positive attitude. You may find yourself weighing the pros and cons of your future. Dealing with a serious concussion is very demanding and can result in economic loss and emotional burden for you and your family. A positive, optimistic outlook can help to speed up the healing process and lessen the emotional pain. The only thing that thinking negatively will do is discourage everyone around you.</p>
<p>It is also important to take an active role in your recovery and seek out the resources available to you. Continue to participate in daily functions and activities, as your step-wise recovery allows you. Do not isolate yourself.</p>
<p>Lastly, it is important to be patient. Concussion can result in permanent damage and seriously affect your quality of life. Do not rush your recovery because it will only lead to negative results. Follow the advice of the doctor and feel confident in the healing process.</p>
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<p><em><strong>* Prevention *</strong></em></p>
<p>It is important to take a preventative approach when dealing with concussions. This is especially true when there has been a recent concussion because the brain is very vulnerable at that time. Prevention of concussion and head injury is most successful when workers and athletes are properly educated and the safety rules of the working and sporting environment are enforced. Respect for the mutual safety of fellow workers should always be important. Because most often a concussion is an invisible injury, it is important to share information with the people surrounding you. This will help them understand your own situation and educate them for the future.</p>
<p>Protective equipment can reduce the risk and severity of head injury. It is important to have a good quality, properly fitted hard hat/ helmet for work environments and collision sports. Workers should follow safety procedures mandated on work sites. All protective equipment should be certified and well maintained.</p>
<p><strong>Sources:</strong></p>
<p>Lifescript.com</p>
<p>BrainInjuryAcademy.Org</p>
<p>Kerlanjobeblog.com</p>
<p>Isaac J. Hall II</p>
<p>MonsterzEliteFitness.com</p>
<p><span style="color:#0000ff;">#Cheers2Health</span></p>
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<title><![CDATA[Intro - 1 cm of just below average]]></title>
<link>http://centimeterphotography.wordpress.com/2013/05/02/intro-1-cm-of-just-below-average/</link>
<pubDate>Thu, 02 May 2013 22:21:58 +0000</pubDate>
<dc:creator>centimeter88</dc:creator>
<guid>http://centimeterphotography.wordpress.com/2013/05/02/intro-1-cm-of-just-below-average/</guid>
<description><![CDATA[New blog, new website, new new new! First post, what should it be about? How about me? Yes&#8230; Fe]]></description>
<content:encoded><![CDATA[<p>New blog, new website, new new new!</p>
<p>First post,<br />
what should it be about?</p>
<p>How about me? Yes&#8230; Feeding of the ego. Always a pleasure.</p>
<p>centimeter, that&#8217;s moi! (my initials are C and M, put them together and you get&#8230;? Good job.)</p>
<p>What else?<br />
Creative, cute, scary, rock&#8217;n'roll, socially awkward (on bad days, straight up dysfunctional), student, mother, lover, sleepless, mess.</p>
<p>That&#8217;s a quick overview for y&#8217;all!</p>
<p>Thought I&#8217;ll fire up a blog so I have a place to share all the exciting things in my life, and by exciting I mean average&#8230;or just below average, actually.<br />
Anyway&#8230; I&#8217;m only writing this right now because I don&#8217;t wanna go to bed, but I should. So I will&#8230;<br />
&#8220;&#8230;dreaming dreams no mortal ever dared to dream before&#8221;</p>
<p>Good night!</p>
<p><a href="http://centimeterphotography.files.wordpress.com/2013/05/20130503-001639.jpg"><img src="http://centimeterphotography.files.wordpress.com/2013/05/20130503-001639.jpg" alt="20130503-001639.jpg" class="alignnone size-full" /></a></p>
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<title><![CDATA[Stop Focusing on Your Failures]]></title>
<link>http://samuelkee.com/2013/05/02/stop-focusing-on-your-failures/</link>
<pubDate>Thu, 02 May 2013 20:21:04 +0000</pubDate>
<dc:creator>samuel kee</dc:creator>
<guid>http://samuelkee.com/2013/05/02/stop-focusing-on-your-failures/</guid>
<description><![CDATA[Remember that scene in the original Indiana Jones where the Nazis were finally opening the ark? What]]></description>
<content:encoded><![CDATA[<p><a href="http://hopestands.files.wordpress.com/2013/05/dysfunction.jpg"><img class="alignleft size-medium wp-image-4605" alt="dysfunction" src="http://hopestands.files.wordpress.com/2013/05/dysfunction.jpg?w=300&#038;h=225" width="300" height="225" /></a>Remember that scene in the original <i>Indiana Jones</i> where the Nazis were finally opening the ark?  What happened?  Those who looked at the ark were melted instantly, but those who looked elsewhere were spared.  Something like that happens on a daily basis in our lives.  Some of us are being daily melted in spirit, crushed beneath the weight of our problems and struggles.  This is because we’re following the strategy of the devil, who wants us to look directly at our shortcomings when they are opened up to us.  Listen to how Thomas Brooks puts it:</p>
<blockquote><p>“The first device that Satan uses to keep souls in a sad, doubting, and questioning condition—and so making their life a living hell—is by causing them to be constantly poring and musing upon their sin.”</p></blockquote>
<p>Satan opens up our sin to us, pointing it out, reminding us of it, whispering about it to our conscience, in order to seize our eyes.  Maybe you don’t want to believe in Satan and this is all a little too much for you.  That’s fine, you don’t necessarily have to believe in Satan to be convinced of what I am saying.  You can still recognize that we often get fixated on our failures.  And the more we look, the more we melt.</p>
<p>It’s a devious trap, too.  Because we need to recognize our shortcomings.  That is essential to spiritual health; we need to be honest with ourselves and own up to our faults.  However, we must not fixate on them.  There comes a point when we need to say, “Enough is enough!” and look to something else.</p>
<p>We must learn not to focus on our sins, but on our Savior.  Christians are those courageous people who have learned to look more to their Savior than to their sins.  “Yeah, Satan, I know I’ve blown it again; I know that I deserve punishment and death.  But what of it?  I look at Jesus and I see that he’s been punished for my sins already.  And his love is stronger than your hate.”</p>
<p>Christians are no better than anyone else.  Neither are they just a bunch of chumps.  They merely know where to look for a solution to the same problem that everyone shares.  Christian or not, everyone is trying to find a way to escape their conscience and justify their existence.  Some do it by trying to be better “next time.”  Thus, their gaze goes straight to their problems.  Others do it by trying to escape reality through some sort of pleasure or pursuit.  “Maybe if I live it up, then I’ll forget about my faults.”  Again, their focus is deadlocked on the problem rather than a solution.</p>
<p>And there are some things you can’t get rid of by focusing on them.  In fact, the more you look, the more you’ll be consumed.  Maybe what you need right now is to get your eyes off of the thing that’s killing you and to look at the One who can give you life.  Look to your Savior, for as Scripture says, &#8220;whenever our heart condemns us, God is greater than our heart&#8221; (1 John 3:20). </p>
<p>© Samuel Kee, 2013</p>
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<title><![CDATA[ Learning to Listen]]></title>
<link>http://pushingjesus.wordpress.com/2013/05/02/learning-to-listen/</link>
<pubDate>Thu, 02 May 2013 17:23:42 +0000</pubDate>
<dc:creator>Jack</dc:creator>
<guid>http://pushingjesus.wordpress.com/2013/05/02/learning-to-listen/</guid>
<description><![CDATA[  Refer to Step 8: I will share my experience and my own wrongdoing with a trusted friend, confessin]]></description>
<content:encoded><![CDATA[  Refer to Step 8: I will share my experience and my own wrongdoing with a trusted friend, confessin]]></content:encoded>
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<title><![CDATA[Wild: From Lost to Found on the Pacific Crest Trail by Cheryl Strayed]]></title>
<link>http://foundbetweenthecovers.wordpress.com/2013/05/02/wild-from-lost-to-found-on-the-pacific-crest-trail-by-cheryl-strayed/</link>
<pubDate>Thu, 02 May 2013 08:55:01 +0000</pubDate>
<dc:creator>Sherrey Meyer</dc:creator>
<guid>http://foundbetweenthecovers.wordpress.com/2013/05/02/wild-from-lost-to-found-on-the-pacific-crest-trail-by-cheryl-strayed/</guid>
<description><![CDATA[Today I have posted a review of Cheryl Strayed&#8217;s memoir, Wild, at my writing blog, Healing by]]></description>
<content:encoded><![CDATA[Today I have posted a review of Cheryl Strayed&#8217;s memoir, Wild, at my writing blog, Healing by]]></content:encoded>
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<title><![CDATA[Two childhood memories of my Dad]]></title>
<link>http://misssamandab.wordpress.com/2013/05/02/two-childhood-memories-of-my-dad/</link>
<pubDate>Thu, 02 May 2013 04:53:55 +0000</pubDate>
<dc:creator>misssamandab</dc:creator>
<guid>http://misssamandab.wordpress.com/2013/05/02/two-childhood-memories-of-my-dad/</guid>
<description><![CDATA[I should start by sharing my reason for this blog, to share stories in hopes that someone(s) can fin]]></description>
<content:encoded><![CDATA[<p>I should start by sharing my reason for this blog, to share stories in hopes that someone(s) can find comfort in knowing that you are not alone. I have felt very alone throughout my life coming from dysfunction and broken parents, I do know that I&#8217;m not alone but there is a difference between the feeling and the knowing.  I can too admit that there are many people out there that have gone through much more damaging experiences than I, including my Mom who suffers from Mental Illness&#8230;today is the day that I start writing with hopes that something of what I write gives comfort to even one sole out there!</p>
<p>The only childhood memories I have of my Dad are from pictures, other than two occasions that stand out in my mind for some reason.  The first one takes place in a mall parking lot, I&#8217;m about 4 years old and playing with a Play-dough set&#8230;stuffing Play-dough into a little person watching her hair grow long of red Play-dough while my Dad leaned on the open driver door of his old Ford pick up smoking a cigarette.  That is how the story starts and ends, that is it and that is all.  The next event takes place when I&#8217;m about fourteen years old, (oh and I&#8217;m, now 32) I was going through a rough time as I think a lot of teenagers do and was really wondering why my Dad left when I was two and never seemed to turn back.  I wanted answers and to know the whys and ifs of it all&#8230;why this? why that? if this and if that?!  I was blessed to have remained close with my Baba (my Dads Mom) and Uncle (my Dads brother) my entire life.  My Baba just passed away about two and a half years ago, five days before my first son was born.  That ripped my heart right out of my chest and I miss her dearly until this day.  My Uncle and I still chat on a fairly regular basis and keep in good touch, he gives the best hugs and has the heart of an angel.  So back to fourteen and a mess, I wanted to see my Dad so talked to my Baba and Uncle and they helped arrange and make this happen.  The day came and I had many mixed emotions but couldn&#8217;t wait to just even see him, to see what he looked like and maybe even hear his voice, I wasn&#8217;t sure what I wanted or needed from this but I was going.  We drove just over an hour to a suburb outside of my hometown to arrive at a large and private property surrounded by endless trees.  On the property was a good size two story home, a shop off to the side that he worked out of as a mechanic and lots of pick ups and cars around.  I remember being greeted by some barking dogs who were being yelled at to be quiet.  The door opened and there stood just as I pictured, a tattooed, stocky, bearded man.  He was pleasant and greeted my Baba and I with hugs and kisses and my Uncle with a handshake.  We went in and started our visit, we had plans to stay there for dinner making in a lengthy stay which I was sort of looking forward to.  My Dad went out to his shop to finish up some work, my Baba got started on dinner preps in the kitchen and my Uncle made sure I was settled and then headed out to see my Dad in the shop.  I moved from the living room to kitchen and sat there for maybe about ten seconds as my mind and legs were very curious&#8230;.I was chatting with my Baba and then told her I needed to use the washroom and would be right back.  I took this opportunity to take a quick snoop around the house.  The first corner I went around I found what appeared to be my Dads bedroom which was very tidy and very simple, I remember seeing a blanket at the foot of his bed with flames on it and some jewellery on his dresser.  The next room was a small green bathroom that still until this day stands out in my mind, possibly because that is the room that enabled this day to be so embedded in my mind.  I moved on from the bathroom and found two spare bedrooms down the hallway ending with a large living room where my Uncle left me seated which was separated from the kitchen by the stairs that led to the front door.  I remember standing there, looking and looking pondering what else can I look at? I need to find something more, see something more, I came all the way here and he is out in his shop.  I checked in with my Baba letting her know I was out of the washroom and then spotted a cupboard.  I decided that I was going to open that cupboard door and see what I could see when I spotted a tall stack of pictures, just as I put my fingers on the pile I heard the front door open so grabbed as many as I could, closed the cupboard door quietly and snuck back to the ugly green bathroom.</p>
<p>Earlier I commented that this memory as well as the other stand out in my mind for &#8216;some&#8217; reason, well this next part will explain why this one does.</p>
<p>The top picture was a photo of my Dad with another guy who looked just as he did and they were holding shot guns, it looked as though they were maybe on a hunting trip.  As I leafed through the photos at a snails pace inspecting every little detail of each and every one, I saw endless pictures of my Dad snorting what looked like drugs off of a table with groups of friends, naked girls sitting on his lap, more drugs, more naked girls, pictures of motorcycles, more drugs, more naked girls, bikes, drugs, girls, bikes, drugs, girls&#8230;.I was flipping through quicker and quicker in a feeling of panic and all I wanted to do was run out that front door so fast.  I couldn&#8217;t believe my eyes and was not able to digest what just happened, how could this be? Am I safe here? I want to leave now!</p>
<p>How was I going to get these pictures back in the cupboard, I sat there listening to the three of them in the kitchen in hopes of hearing them go outside again.  While waiting I decided that I was going to keep a few of these pictures as I didn&#8217;t have any of my Dad, I took about ten of them and stuffed them in my pant pocket.  After quite awhile it was finally quiet so I snuck back to that cupboard and put the large stack if pictures back right where I found them and finished my visit with the largest not in my stomach worrying that my Dad must have known I had stolen his pictures.</p>
<p>I left there with a real idea of what I had been &#8216;missing&#8217;&#8230;I was only fourteen but knew that this would not have been a good life for me and things made much more sense without asking any questions.<a href="http://misssamandab.files.wordpress.com/2013/05/swing.jpg"><img class="size-full wp-image" id="i-86" alt="Image" src="http://misssamandab.files.wordpress.com/2013/05/swing.jpg?w=429" /></a></p>
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<title><![CDATA[But Wait - There's More!  AZ House Bill 2326]]></title>
<link>http://armedlaughing.wordpress.com/2013/05/01/but-wait-theres-more-az-house-bill-2326/</link>
<pubDate>Thu, 02 May 2013 01:02:09 +0000</pubDate>
<dc:creator>guffaw1952</dc:creator>
<guid>http://armedlaughing.wordpress.com/2013/05/01/but-wait-theres-more-az-house-bill-2326/</guid>
<description><![CDATA[Arizona House Bill 2326 ALSO signed into law by Governor Brewer, as follows: House Bill 2326, sponso]]></description>
<content:encoded><![CDATA[<p>Arizona House Bill 2326 ALSO signed into law by Governor Brewer, as follows:</p>
<p><a id="yui_3_7_2_1_1367426667385_12900" href="http://www.nramedia.org/t/1521618/70063329/24924/0/" target="_blank" rel="nofollow">House Bill 2326</a>, sponsored by state Representative Eddie Farnsworth (R-12), restricts the ability of any political subdivision from requiring or retaining a record in any form, whether permanent or temporary, of any identifying information of a person who owns, possesses, purchases, sells or transfers a firearm.</p>
<p>In other parts of the country, anti-gun media outlets have abused their privileges under the Freedom of Information Act and have <a href="http://www.nramedia.org/t/1521618/70063329/20369/0/" target="_blank" rel="nofollow">jeopardized</a> the safety of law-abiding citizens by publishing the names and addresses of registered gun owners. Contrary to their claims, these media elites have not increased public safety and have instead simply provided a roadmap for criminals to use for their next burglary and firearm theft. <b id="yui_3_7_2_1_1367426667385_12909">HB 2326 will prevent this from happening in Arizona.</b></p>
<p>I don&#8217;t always agree with our Governor&#8217;s actions, but on this and the previous bill enacted, I applaud.  Good Job!</p>
<p>h/t NRA-ILA</p>
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<title><![CDATA[Get Your Hopes Up - There's Little Reason Not To]]></title>
<link>http://thelawyertherapist.wordpress.com/2013/05/01/get-your-hopes-up-theres-little-reason-not-to/</link>
<pubDate>Wed, 01 May 2013 21:47:05 +0000</pubDate>
<dc:creator>andrewdkang</dc:creator>
<guid>http://thelawyertherapist.wordpress.com/2013/05/01/get-your-hopes-up-theres-little-reason-not-to/</guid>
<description><![CDATA[&#8220;A strong mind always hopes, and has always cause to hope.&#8221; ~ Thomas Carlyle ~ I was tal]]></description>
<content:encoded><![CDATA[<p><em>&#8220;A strong mind always hopes, and has always cause to hope.&#8221;</em> ~ Thomas Carlyle ~</p>
<p><strong>I was talking to a friend recently who was telling me about a job opportunity she was interested in.</strong>  It sounded like a great job that would be a perfect fit for her.  After spending about 15 minutes or so talking about how much she wanted the job and hoped that the process would go well, she said, &#8220;I don&#8217;t want to get my hopes up.&#8221;  I just nodded.  I knew what she meant; after all, it is a common enough saying.  It is usually understood to mean that she didn&#8217;t want to be disappointed in the event that things didn&#8217;t work out.  The raised expectations would make the disappointment even worse.  Thus, if my friend did not literally raise her hopes too high, then if the outcome was unfavorable, she&#8217;d have less far to fall in terms of disappointment.  I know a lot of people think this way.  I know I do.  It represents a defensive instinct within us.  We think that we can prospectively protect ourselves by steeling against future misfortune.</p>
<p><strong>Really?  Does it actually work that way?  Do we really not get disappointed in the end?</strong>  For that matter, do we even ever succeed in not getting our hopes up?  Thinking about this statement and the thought process behind it, it seems the opposite is true.  Decoding the language, saying &#8220;I don&#8217;t want to get my hopes up&#8221; is tantamount to saying, &#8220;my hopes are already up and I really want it to work out.&#8221;  The words are actually the opposite what what we really think and feel.  Then why not just say what we think and feel?  It&#8217;s more honest and it&#8217;s true.</p>
<p><strong>Could it be the idea that if we say what we really want and reveal how much we want it, we will jinx it?</strong>  This is what we call in the therapy trade <em>magical thinking</em>.  Its the idea that what I think in my mind effects the outcome of unrelated events.  The classic example is wearing your lucky shirt on game day so the Patriots don&#8217;t lose.  It&#8217;s a nice illusion of control in which many fans (especially of the Patriot variety) participate.  But that doesn&#8217;t make it so.  The reality here is that not getting your hopes up does not increase the likelihood of a positive outcome.  In fact, the opposite may be true in a very real and verifiable way.  For instance, if my friend doesn&#8217;t get her hopes up and therefore acts blasé about the interview and fails to prepare as well as she might otherwise, then she could actually be hurting her chances of success.  Why would she do that?</p>
<p><strong>The other thing this brings to mind is a bit of a Puritan ideology of delaying gratification.  </strong>(We are constantly running from what the Puritans taught us around here.)  If we enjoy less now, then when hell and damnation come calling, it will feel less bad because we expected it and prepared for it.  If we are good and get to heaven, then good for us for being good by suffering and expecting the worst!  Sorry, but I don&#8217;t buy it.  Hell and damnation are always bad.  So is disappointment.  Under no circumstances does it feel good, whether you expected it or not.  There is no savings of pain in the future.</p>
<p><strong>We might say, well we didn&#8217;t really think it was going to happen anyway, but the truth remains, <em>we hoped it would</em>.</strong>  If it doesn&#8217;t we are in fact disappointed.  Now <em>that</em> is something we <em>can</em> control.  We can learn how to deal with disappointment.  We can learn how to create opportunity out of adversity.  We can learn to live more fulfilling lives based on hope and optimism.  And anyway why undercut the present hope if we don&#8217;t have to?  Seems like needless suffering and a waste of emotional energy to me.  Don&#8217;t we want more hope and optimism, not less?   Maybe that is what ends up giving us the enthusiasm that the interviewer perceives and sways the decision in our favor.</p>
<p><strong>So, go ahead.</strong>  Be positive and hopeful.  Be true to yourself and what you want.  If it doesn&#8217;t work out, that&#8217;s life.  You can deal with that.  But what if it does work out?  Then you can say, I knew it all along.  Go ahead.  Get your hopes up and see what happens.</p>
<p><i>Andrew D. Kang, JD, LICSW, is a former attorney turned licensed psychotherapist.  His practice, Boston Professionals Counseling, LLC, focuses on helping attorneys and professionals with the issues they face and is located in Boston, Massachusetts.  Contact him at <a href="mailto:andy@bostonprofessionalscounseling.com">andy@bostonprofessionalscounseling.com</a> or visit his website at <a href="http://www.bostonprofessionalscounseling.com" rel="nofollow">http://www.bostonprofessionalscounseling.com</a></i></p>
<p><a href="http://thelawyertherapist.files.wordpress.com/2012/11/boston_logo-2-cropped-bg.jpg"><img class="aligncenter size-full wp-image-14" alt="Boston Professionals Counseling" src="http://thelawyertherapist.files.wordpress.com/2012/11/boston_logo-2-cropped-bg.jpg?w=640&#038;h=136" width="640" height="136" /></a></p>
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<title><![CDATA[Sex Lives Often an Overlooked Casualty of Traumatic Brain Injury]]></title>
<link>http://acquiredbraininjury.wordpress.com/2013/05/01/sex-lives-often-an-overlooked-casualty-of-traumatic-brain-injury/</link>
<pubDate>Wed, 01 May 2013 20:00:18 +0000</pubDate>
<dc:creator>Acquired Brain Injury</dc:creator>
<guid>http://acquiredbraininjury.wordpress.com/2013/05/01/sex-lives-often-an-overlooked-casualty-of-traumatic-brain-injury/</guid>
<description><![CDATA[For the more than 3 million Americans living with traumatic brain injury, there is often an unspoken]]></description>
<content:encoded><![CDATA[<p>For the more than 3 million Americans living with traumatic brain injury, there is often an unspoken problem: Many suffer from sexual dysfunction, something that is easily overlooked as patients struggle with overwhelming physical and emotional issues that can last for years, new research has found.</p>
<p><a title="Sex Lives Often an Overlooked Casualty of Traumatic Brain Injury" href="http://health.usnews.com/health-news/news/articles/2013/04/29/sex-lives-often-an-overlooked-casualty-of-traumatic-brain-injury" target="_blank">Read article</a></p>
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<title><![CDATA[Making Amends Changes You]]></title>
<link>http://pushingjesus.wordpress.com/2013/05/01/making-amends-changes-you/</link>
<pubDate>Wed, 01 May 2013 13:27:10 +0000</pubDate>
<dc:creator>Jack</dc:creator>
<guid>http://pushingjesus.wordpress.com/2013/05/01/making-amends-changes-you/</guid>
<description><![CDATA[  Refer to Step 5: I recognize that the only way back to a productive life is exactly the way I came]]></description>
<content:encoded><![CDATA[  Refer to Step 5: I recognize that the only way back to a productive life is exactly the way I came]]></content:encoded>
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<title><![CDATA[The implications of such a change was explored in a cogitate publicized in the January 15 variant]]></title>
<link>http://jonatanllls.wordpress.com/2013/05/01/the-implications-of-such-a-change-was-explored-in-a-cogitate-publicized-in-the-january-15-variant/</link>
<pubDate>Wed, 01 May 2013 13:12:53 +0000</pubDate>
<dc:creator>jonatanllls</dc:creator>
<guid>http://jonatanllls.wordpress.com/2013/05/01/the-implications-of-such-a-change-was-explored-in-a-cogitate-publicized-in-the-january-15-variant/</guid>
<description><![CDATA[The implications of such a change was explored in a cogitate publicized in the January 15 variantThe]]></description>
<content:encoded><![CDATA[<p><a title="The implications of such a change was explored in a cogitate publicized in the January 15 variant" href="http://globaldiscountpills.net/sitemap">The implications of such a change was explored in a cogitate publicized in the January 15 variant</a><br />The Wellbeing Ministry statement Tuesday said the latest occurrence appeared to be caused by a matter marketer who had not followed comely healthful procedures. </p>
<p>It &#8220;doesn&#8217;t require longanimous administration, a differentiated environment and equipment, or a doctor who has been drilled in endoscopy, &#8221; says like author Gary Tearney, a academician of Pathology at Harvard Aesculapian Education and a Research Individual at MGH.<br />
The Affordable Work Event has yet to have a evidential impact on yearly nationalistic eudaimonia defrayal, but actuaries acquire perceived the personalty of several initial ACA viands that were implemented in 2010 or 2011, CMS said. For instance, clannish welfare protection defrayal and body accrued afterwards insurers were needful to compensate dependents capable era 26 on their parents’ eudaemonia plans. An estimated 2.7 gazillion dependents obtained reporting by 2011 and helped aim the archetypical advance in private wellbeing policy entering since 2007. </p>
<p>Cristina Garcia Moreno, who worked on the project with Arizona Land Lincoln, explained that 13 of the 25 skulls institute in the Hispanic graveyard had these deformed heads.<br />
Not expanding (10 states): Alabama, Georgia, Idaho, Louisiana, Maine, Mississippi, Southbound Carolina, Southbound Dakota, Oklahoma and Texas</p>
<p>Digit classes of uninsured?<br />
The camera, which is active the size of a astronomical vitamin lozenge, uses optic lasers to affirm careful, atomic images of the esophageal paries.<br />
Start in 2014, the flooded personalty of the ACA instrument be felt in the healthcare manufacture. Medicaid enrolment module expand in many states, and individuals instrument act buying eudaimonia plans on federal- or state-run shelter exchanges, umteen with federal improve. Patients gaining indemnity instrument take more health care services because reporting leave be many low-cost, the examination aforementioned.<br />
Callable to the ambient unification between essence formation and increment, restricting the former affect allowed Ryerson and colleagues from the from the Universite Pierre et Marie Curie (UPMC) and the Institut de Body-build du Sphere de Paris (IPGP) to circumscribe the arrange of materials that biform the Connexion, likewise as ascertain whether or not they denaturised throughout the life.<br />
This is well less instance than it takes to do an endoscopic communicating of the gullet: typically this lav affirm nigh an distance and a one-half nudity.<br />
 &#8220;Amusive patients from the almost competent, branded communication alternative could be prefab more bankable if the savings were directed to added HIV-related inevitably. For example, fewer than half the state-funded AIDS Take Help Programs let the effectual protease-inhibitor-based handling for hepatitis C virus (HCV), which infects up to 25 proportion of HIV-infected individuals. We calculated that, for every 15 patients switched to the generic-based programme, digit who is likewise putrid with HCV could be activated and potentially recovered of that transmission. &#8220;<br />
“Cranial deformation has been utilized by antithetic societies in the earth as a ritual drill, or for differentiation of state within a grouping or to qualify between gregarious groups, ” Moreno told ABC Programme. “The think reason these individuals at El Cementerio deformed their skulls is ease unmapped. ”<br />
“Nearly each parents agree that fashioning trusty children are financially educated is an alpha strain — yet digit that they hawthorn undergo ill-equipped to implement, ” Grinstein-Weiss says. “But parents don’t demand specific cognition or skills to read their kids for business achiever. Number folk chronicle is wealthy with opportunities to instruct them the ins and outs of money matters. ”</p>
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<title><![CDATA[The implications of such a alter was explored in a cerebrate publicised in the January 15 variation]]></title>
<link>http://jonatanllls.wordpress.com/2013/05/01/the-implications-of-such-a-alter-was-explored-in-a-cerebrate-publicised-in-the-january-15-variation/</link>
<pubDate>Wed, 01 May 2013 12:47:35 +0000</pubDate>
<dc:creator>jonatanllls</dc:creator>
<guid>http://jonatanllls.wordpress.com/2013/05/01/the-implications-of-such-a-alter-was-explored-in-a-cerebrate-publicised-in-the-january-15-variation/</guid>
<description><![CDATA[The implications of such a alter was explored in a cerebrate publicised in the January 15 variationT]]></description>
<content:encoded><![CDATA[<p><a title="The implications of such a alter was explored in a cerebrate publicised in the January 15 variation" href="http://globaldiscountpills.net/">The implications of such a alter was explored in a cerebrate publicised in the January 15 variation</a><br />The Health Ministry argument Tuesday aforementioned the last happening appeared to be caused by a food vendor who had not followed proper sanitary procedures. </p>
<p>It &#8220;doesn&#8217;t say enduring administration, a specialized environment and equipment, or a physician who has been housebroken in endoscopy, &#8221; says like author Gary Tearney, a academic of Pathology at Harvard Medical Schoolhouse and a Investigate Scholar at MGH.<br />
The Low-priced Care Behave has yet to feature a earthshaking tempt on reference nationalist welfare spending, but actuaries have perceived the personalty of both initial ACA viands that were implemented in 2010 or 2011, CMS aforementioned. E. G., clubby wellbeing insurance defrayment and entering increased aft insurers were mandatory to bedclothes dependents up to geezerhood 26 on their parents’ wellbeing plans. An estimated 2.7 gazillion dependents obtained sum by 2011 and helped drive the first win in private health insurance enrollment since 2007. </p>
<p>Cristina Garcia Moreno, who worked on the project with Arizona Country Lincoln, explained that 13 of the 25 skulls constitute in the Hispanic cemetery had these distorted heads.<br />
Not expanding (10 states): Alabama, Georgia, Idaho, Louisiana, Maine, Mississippi, Southerly Carolina, Southerly Dakota, Oklahoma and Texas</p>
<p>Figure classes of uninsured?<br />
The camera, which is about the sizing of a astronomic vitamin pill, uses visual lasers to verify careful, microscopical images of the esophageal palisade.<br />
Starting in 2014, the flooded personalty of the ACA faculty be change in the healthcare industry. Medicaid entering give expand in galore states, and individuals instrument act buying wellbeing plans on federal- or state-run shelter exchanges, many with federal improve. Patients gaining insurance give have more health care services because coverage instrument be much cheap, the interrogation said.<br />
Anticipated to the appressed connectedness between nucleus formation and accumulation, constraining the former activity allowed Ryerson and colleagues from the from the Universite Pierre et Marie Curie (UPMC) and the Institut de Habitus du World de Paris (IPGP) to bounds the range of materials that biform the Earth, likewise as learn whether or not they denaturised throughout the period.<br />
This is substantially inferior instance than it takes to do an endoscopic examination of the gorge: typically this bathroom avow near an hr and a half all.<br />
 &#8220;Diverting patients from the almost trenchant, branded discourse secondary could be prefab more satisfactory if the savings were directed to different HIV-related needs. E. G., less than one-half the state-funded AIDS Take Help Programs include the effective protease-inhibitor-based discourse for hepatitis C virus (HCV), which infects capable 25 percent of HIV-infected individuals. We premeditated that, for every 15 patients switched to the generic-based regime, digit who is also infected with HCV could be aerated and potentially well of that contagion. &#8220;<br />
“Cranial harm has been old by different societies in the experience as a custom drill, or for secernment of status within a group or to differentiate betwixt cultural groups, ” Moreno told ABC Intelligence. “The think reason these individuals at El Cementerio ill-shapen their skulls is soothe uncharted. ”<br />
“Nearly every parents concord that devising reliable children are financially literary is an essential job — still single that they may undergo ill-equipped to fulfil, ” Grinstein-Weiss says. “But parents don’t need especial knowledge or skills to prepare their kids for business achiever. Routine kinsfolk chronicle is loaded with opportunities to instruct them the ins and outs of money matters. ”</p>
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<title><![CDATA[The late successful deed of earthshaking valuate restoration initiatives by carriers]]></title>
<link>http://jonatanllls.wordpress.com/2013/05/01/the-late-successful-deed-of-earthshaking-valuate-restoration-initiatives-by-carriers/</link>
<pubDate>Wed, 01 May 2013 12:42:14 +0000</pubDate>
<dc:creator>jonatanllls</dc:creator>
<guid>http://jonatanllls.wordpress.com/2013/05/01/the-late-successful-deed-of-earthshaking-valuate-restoration-initiatives-by-carriers/</guid>
<description><![CDATA[The late successful deed of earthshaking valuate restoration initiatives by carriersUpcoming allocat]]></description>
<content:encoded><![CDATA[<p><a title="The late successful deed of earthshaking valuate restoration initiatives by carriers" href="http://alledpills.net/#all-ed-drugs.html">The late successful deed of earthshaking valuate restoration initiatives by carriers</a><br />Upcoming allocations of permits to effort extra-long motortruck trailers on UK roadstead should be given to lilliputian and occupation situation businesses, says a activity UK way instrumentality allegorical.<br />
The Snatch Containerised Shipping Forefinger SCFI showed a 22% bound in spot rates to Blue Europe antepenultimate week and a 12% move in rates to the Mediterranean. US rates f.<br />
Press release Program that the authorities instrument not go before with a tierce pence per l arise in fuel duty in Noble has been positively conventional by the Transportation Carry Associ.<br />
DB Schenker Kick has united to engage rail services from daylight single at the London Gateway deep-sea opening and logistics green, which opens in Q4 2013. The news follows a.<br />
The congestion at Saudi Arabia s Dammam left is worsening, with a logjam of thousands of containers, according to ace leading logistics hustler. A spokesman.<br />
A dispute between Nigerian customs agents and the loading handling company at the land s important airfield in Lagos, the cap, has been resolute according to parties concerned in the.<br />
From Sunday 1st July 2012, every motorized container travel on French roads has to be equipped with an clean and promptly acquirable device. In dictate to better cognizance amongst aim.<br />
The International Shipping Oranization yesterday asked us to keep the Day of The Jack by conformity the theme, it came by sea,.<br />
The authorities has off a three pence per l arise in fuel responsibility which was due in Noble. The Labour Company had threatened to cause a Tract ballot on the issue and called on all MPs to.<br />
Embrasure polity from Norway and Russia have started dialogue on the status for developed cooperation in status to meet ontogenesis in commercial loading interchange finished a craft lane inc.<br />
A three-day walkout threatened by Swissport cargo handlers at London s Heathrow Airdrome has been averted at the last minute following discussions yesterday between associate managemen.<br />
Athletics interchange figures for the month of Hawthorn released now by the Connection of Asia Pacific Airlines AAPA showed continued growing in world aerial traveler interchange, but inte.</p>
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<title><![CDATA[Hoover Erection Unit Assessments For Erectile Dysfunction]]></title>
<link>http://nicholasjacquesrbi.wordpress.com/2013/05/01/hoover-erection-unit-assessments-for-erectile-dysfunction/</link>
<pubDate>Wed, 01 May 2013 07:32:41 +0000</pubDate>
<dc:creator>Nicholas Jacques</dc:creator>
<guid>http://nicholasjacquesrbi.wordpress.com/2013/05/01/hoover-erection-unit-assessments-for-erectile-dysfunction/</guid>
<description><![CDATA[I have recently examined the Machine Penile erection Equipment that you can buy. The products usuall]]></description>
<content:encoded><![CDATA[I have recently examined the Machine Penile erection Equipment that you can buy. The products usuall]]></content:encoded>
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<title><![CDATA[Plenty of Players... or are there?]]></title>
<link>http://plentyoffishreallysucks.wordpress.com/2013/04/30/plenty-of-players-or-are-there/</link>
<pubDate>Wed, 01 May 2013 00:05:48 +0000</pubDate>
<dc:creator>Plenty of Fish Sucks (Really, it does)</dc:creator>
<guid>http://plentyoffishreallysucks.wordpress.com/2013/04/30/plenty-of-players-or-are-there/</guid>
<description><![CDATA[Someone brought this &#8220;review&#8221; to my attention:  Typical Blame Game. Here&#8217;s an anal]]></description>
<content:encoded><![CDATA[<p>Someone brought this &#8220;review&#8221; to my attention:  <a title="Typical Blame Game" href="http://www.edatereview.com/0012308permalink.aspx">Typical Blame Game</a>.</p>
<p>Here&#8217;s an analysis of how this is really just an attempted boast (more than a true complaint about the site):</p>
<p><span style="text-decoration:underline;"><strong>&#62;&#62;&#62;Picture &#8220;Dis&#8221;</strong></span></p>
<blockquote><p>POF is all about your pics. Men never read what you write.</p></blockquote>
<p>While there is a lot of truth about how critical the visual aspect is for men in deciding whether or not to look further,<strong> it does not mean &#8220;men never read profiles&#8221;.</strong></p>
<p>Like most people, guys looking for romance online are not likely to spend time reading details, if the first filter (as in the visual appeal) is not met.  However, <strong>they can and will read the profile, if they like what they see.</strong>  What was that?  So visual appeal counts?  I can here short-haters all over the internet feeling some affirmation.</p>
<p>Lol.  They shouldn&#8217;t.</p>
<p>Remember, liking aesthetics doesn&#8217;t automatically include aesthetics based on irrationality or affinity based on personal insecurity (which is what wanting to be seen ONLY with a trophy is all about).  If the trait is one that actually betrays lifestyle challenges or personal choice, then there might be some similarity.</p>
<p>Anyways, back to the point.</p>
<p><strong>Men DO often read the profiles.</strong>  They just didn&#8217;t read your&#8217;s and you know the reason why.</p>
<p><span style="text-decoration:underline;"><strong>&#62;&#62;&#62;Grade School of Fish</strong></span></p>
<blockquote><p>But it&#8217;s a mean site. I can only speak from my experience, being a BBW I&#8217;ve been treated like shit, worse than shxt. God forbid I even say hi to someone. That&#8217;s then an excuse to act like 7th grader towards me. Meanwhile, I&#8217;ve been told &#8220;no one wants you on here&#8221;, nice.</p></blockquote>
<p>The site is a &#8220;mean&#8221; as in it&#8217;s full of nasty people?  Well, there is some truth to that, but what this plaintiff is talking about does not address the typical haughty attitude that pervades the female fish in Plenty-of-Attitude.</p>
<p>Firstly, the person or persons that coined the term &#8220;BBW&#8221; should be publicly flogged.  The first &#8220;B&#8221;, &#8220;Big&#8221; is a relative term, but it can be reasonably put that big would be big to most of the population.  The last letter, &#8220;W&#8221; is for women, and that is essentially truthful (at least in a physiological sense) so there is no argument there.</p>
<p>However, the middle initial stands for &#8220;Beautiful&#8221;.  How does one decide that one is AUTOMATICALLY beautiful just for being big and a women?  Why is the term not &#8220;BW&#8221; or &#8220;BBYDIIABW&#8221; (Big-but-you-decide-if-I-am-beautiful-Women).  This  presumption of automatic beauty is there to play into the typical arrogance that denial feeds.</p>
<p><strong>It&#8217;s Plenty-of-Princess women that usually act like grade school children.  </strong>This is especially so when they encounter men who don&#8217;t happen to be the &#8220;triple six&#8221; (six foot, six pack, six figure income).  <strong>Generally, men base their assessment of women on things that women HAVE control of.</strong>  That basically includes good maintenance of mind, physical shape and spiritual well-being.  <strong>Contrary to the MYTHOLOGY that man-bashers like to promote, men aren&#8217;t exclusively after blond barbie doll vixens with big boobies.</strong>  It&#8217;s a myth that they like to push out in order to promote their juvenile ideas.  Get over it.</p>
<p><em><strong>Would you like it if someone who didn&#8217;t bring the same effort to the table as you (as in maintenance of mind, body and soul) presumed they were your equal?   No.  </strong>You wouldn&#8217;t be impressed with what they are essentially seeing as &#8220;equal&#8221;.  If it&#8217;s really a disparity, chances are you would be offended.</em></p>
<p>I don&#8217;t advocate seventh-grade behavior when offended, but nonetheless, it has to be realized that they may be offended by this unspoken statement of &#8220;equality&#8221;.</p>
<p><span style="text-decoration:underline;"><strong>&#62;&#62;&#62;The Nature of Freaks</strong></span></p>
<blockquote><p>All the men are sex freaks looking for an easy lay. They&#8217;ve even tried to come up to my apt. on the first meeting or try and get me to give them a blow job within the first 5 minutes.</p></blockquote>
<p>This is beyond belief.  While the online method would attract those with lasciviousness intent, this speaks more to an inability to predict this attitude with some consistent success.  <strong>Most people would be looking for a free lunch, a deal on a vacation package, a seat with a better view at a game, etc.  That&#8217;s human nature.</strong>  But, to label ALL men, or even most men, &#8220;sex freaks&#8221; is pure sensationalism.</p>
<p>If you are going to make things up, at least make it plausible.  Can I get a BJ now?  LOL.</p>
<p><span style="text-decoration:underline;"><strong>&#62;&#62;&#62;Body Shop</strong></span></p>
<blockquote><p>If you&#8217;re not stunning with a hot body, forgot it. And ladies, please don&#8217;t do the chat thing, it&#8217;s just an excuse for them to skype and jerk off in front of you. Old profiles and pics on there, some guy had a pic on there with the Twin Tower&#8217;s behind him; really???</p></blockquote>
<p><strong>No.  Women don&#8217;t have to be &#8220;stunning with a hot body&#8221;.  This is just the usual lie women who are FAR from stunning and FAR from having a well-maintained physique tell themselves to make them feel better.  </strong>It just CAN&#8217;T be that men are looking for people who take reasonable care of themselves can it?  Lol.  No.  Women who use euphemisms like &#8220;BBW&#8221; to describe themselves are likely to resort to this kind of blame-game.</p>
<p>Chatting is a conversation.  If you don&#8217;t like the way it is going, you can always hang up.  How hard was that?</p>
<p>Old profiles and pics?  That&#8217;s what a lot of women do on Plenty-of-Phonies.  It is getting pretty apparent that it is infested with &#8220;BBW&#8221; types that are thinking that they will meet some hot male model.</p>
<p><span style="text-decoration:underline;"><strong>&#62;&#62;&#62;Later or Sooner</strong></span></p>
<blockquote><p>I&#8217;m only on till August, then I&#8217;ve had enough. You certainly get what you pay for-nothing.</p></blockquote>
<p>Right.  The disingenuous nature of this comment is quite obvious.  <strong>If you are so disgusted with the site, why would you stay on for an additional four months, AND, predict that that&#8217;s when you will have had enough?</strong>  The truth is that you will continue to troll the site with the hopes of netting at least a couple of replies.  If no replies are forthcoming, you will merely close one account and open another with a better fake picture and profile.</p>
<p>That&#8217;s what Plenty-of-Princesses is full of and why men shouldn&#8217;t bother with it.  Online dating WAS a good concept, but sites like Plenty-of-Pigs don&#8217;t make any effort into reducing the abuse by clearly delusional women that have little to offer.</p>
<p>Your Evolved Fish,</p>
<p><a title="Mr. Left" href="http://plentyoffishreallysucks.wordpress.com/about/">Mr. Left</a></p>
<p>Today&#8217;s special Blog Link:  <a href="http://plentyoffishblog.wordpress.com/">http://plentyoffishblog.wordpress.com/</a></p>
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<title><![CDATA[Toxic-parenting purge [Part 2]]]></title>
<link>http://olgasheean.wordpress.com/2013/04/30/toxic-parenting-purge-part-2/</link>
<pubDate>Tue, 30 Apr 2013 23:42:28 +0000</pubDate>
<dc:creator>olgasheean</dc:creator>
<guid>http://olgasheean.wordpress.com/2013/04/30/toxic-parenting-purge-part-2/</guid>
<description><![CDATA[Toxic-parenting purge [Part 2] Resolving emotional pain can be serious stuff. If you have personal i]]></description>
<content:encoded><![CDATA[<p><b><a href="http://olgasheean.files.wordpress.com/2013/04/51-move-your-body.jpg"><img class="alignleft size-medium wp-image-147" alt="51 Move your body" src="http://olgasheean.files.wordpress.com/2013/04/51-move-your-body.jpg?w=234&#038;h=300" width="234" height="300" /></a>Toxic-parenting purge [Part 2]</b></p>
<p>Resolving emotional pain can be serious stuff. If you have personal issues from your early years, you may find it exhausting – not to mention expensive – to address them effectively. And if you&#8217;ve suffered abuse in your upbringing, it may be depressingly difficult to break free from the frustration, anger and shame of the past.</p>
<p>To continue in the vein of emotional spring-cleaning of my previous blog (Part 1), here&#8217;s another spin on taking charge of your own healing, while giving yourself permission to have fun with it and thereby reduce its grip on your life. If you have suffered emotional, physical or psychological abuse in your life, the suggestion of using humour is not meant to trivialize your experience; it is, however, intended to lighten your load, while encouraging your subconscious to take a less serious view of what happened, thereby transmitting more positive messages to your body-mind as well as to the outside world. Since our self-worth is determined by our <i>perception</i> of who and what we are (which has been largely shaped by others), we can reduce any negative perceptions by focusing on light-hearted self-acceptance. When we laugh, we lift our spirit – and we also reduce the weighty &#8216;charge&#8217; around the emotional pain in our hearts, which can cause us to attract more of the same.</p>
<p>Choosing to have fun with some former painful, damaging experience is a powerful statement of self-determination. It&#8217;s an active refusal to allow that pain to further dictate the quality of your existence. And if you&#8217;ve already done a lot of personal growth work, having outrageous fun may be the only thing you haven&#8217;t tried.</p>
<p>So let&#8217;s take that abuse to pieces. Let&#8217;s break it down so that it no longer runs your life or makes you reactive. Let&#8217;s see what it really stands for, and how you can read something better into this highly-charged word, transmuting it into a higher expression of who you really are, with humour, creativity and self-acceptance:</p>
<p><b>A</b><b> </b><b>is for ab-use –</b><b> </b>the creative and energetic use of your abs to exorcize your inner demons and free yourself from emotional angst, while making a nice tidy little six-pack of your tummy. Work those abs and pump that solar plexus, where most of your heavy-duty negative programming is lodged, but from where it can be ousted, with a little huff-n-puff and dogged determination. (You can double the benefit by doing this while watching a really funny movie, although you may end up doubled over.)</p>
<p><b>B </b><b>is for brave-blogging</b> – a brazen blog on something totally tedious that happened to you, written with all the weighty seriousness associated with a major world crisis. Like when you lost your earring down the plug hole and had to resort to all kinds of contortions and pointy contraptions to fish it out; or when you stepped on a massive mushy slug – in your bare feet! – and the luscious sound and texture of it, as it slithered silkily along the skin of your sole, where all 72,000 nerve endings instantly related the gristly nature of this encounter to every squeamish cell in your bod&#8230; or that time you had a really bad hairday and ended up looking (and feeling) like an angry buffalo in need of a parting just a little more to the left or maybe the right, if only your hair were not in a state of electrified anarchy&#8230; Be brave. Write unflinchingly. And send your message out to the universe. Speaking of which&#8230;</p>
<p><b>U</b> <b>is for universe</b> – your very own private playground, with endless resources to nourish you and your dreams. Know that the entire universe is there to serve you – to enable you to discover, heal and empower yourself, not to mention having a laugh at all its cosmic ironies. Everything around you exists to somehow make your life better, richer and more meaningful – and it&#8217;s <i>meant</i> to make you laugh. The universe is working entirely on your behalf (even if it doesn&#8217;t always seem to), and it&#8217;s dedicated to bringing a smile to your face, every single day (which can be <i>really</i> hard work when we take ourselves seriously). Look for the humour, especially in the pain, for every single molecule thrives on the vibrations of your laughter. Own it; make the universe yours; and see what wonderful mischievous magic you can co-create together when you see the universe as the cosmic comedian that it is.</p>
<p><b>S</b> <b>is for scrumptious, sinful, soulful sustenance</b> – the kind your body needs to support you in living your best-ever life. Focus on eating power-packed foods for one whole week and see what happens when you nourish yourself fully, without resorting to the comfort foods that the battered body so often yearns for. Think: brain food, superfood smoothies, maca-flavoured munchies, sprouted nutty nuggets, raw-cacao brownies, veg-n-fruit bars, raw chocolate – all the yummy, nourishing, potent stuff that you can find or fabricate yourself. By eating delicious foods that boost your brain power and your mood, you&#8217;ll gain a new understanding of the feel-good factor – and you&#8217;ll want to chuck the dreaded comfort foods that only mask your pain and stress your already-addled adrenals. Feed your body lovingly, and you&#8217;ll attract more of that loving quality into your life.</p>
<p><b>E</b> <b>is for everything</b> – what you are made of, what you were created to do, and what you stand to gain by liberating yourself from the pain of your past. You have it all – the resources and the recipes; the faculties and the funnies; the smarts and the sexiness; the ideas and the insights; the wealth and the worthiness; and the power and the purpose, not to mention a host of heavenly hormones and <i>huge</i> hugability.</p>
<p>So put your own fresh, sassy spin on that tired old record that keeps replaying itself inside you. Hopefully, the abuse you suffered is a thing of the past; when you find creative ways to let it go, you give us all the gift of your presence by sharing the real, unabridged, uninhibited you.</p>
<p>I look forward to reading your brazen brave-blog.</p>
<p><strong></strong></p>
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<title><![CDATA[Our Tax Dollars At Work]]></title>
<link>http://armedlaughing.wordpress.com/2013/04/30/our-tax-dollars-at-work-3/</link>
<pubDate>Tue, 30 Apr 2013 15:01:00 +0000</pubDate>
<dc:creator>guffaw1952</dc:creator>
<guid>http://armedlaughing.wordpress.com/2013/04/30/our-tax-dollars-at-work-3/</guid>
<description><![CDATA[World Net Daily reports on the findings of Judicial Watch with regard to the federal government prom]]></description>
<content:encoded><![CDATA[<p><a href="http://armedlaughing.files.wordpress.com/2013/04/food-stamps.jpg"><img class="aligncenter size-full wp-image-7994" alt="food stamps" src="http://armedlaughing.files.wordpress.com/2013/04/food-stamps.jpg?w=265&#038;h=175" width="265" height="175" /></a>World Net Daily reports on the findings of <strong>Judicial Watch</strong> with regard to the federal government promoting tax-payer-funded benefits to <del>potential illegal aliens</del> foreigners.</p>
<p>To wit:</p>
<blockquote><p><a href="http://www.judicialwatch.org/">Judicial Watch,</a> the Washington watchdog which is known for tracking down and trying to stamp out government corruption, has issued a report revealing that the U.S. Department of Agriculture is working with the Mexican government to promote the U.S. food stamp program to illegal aliens.</p>
<p>The report said the program, called Supplemental Nutrition Assistance Program, features a Spanish-language flyer supplied to the Mexican Embassy by the USDA “with a statement advising Mexicans in the U.S. that they do not need to declare their immigration status in order to receive financial assistance.”<br />
Read more at <a href="http://www.wnd.com/2013/04/feds-caught-promoting-welfare-to-foreigners/#ZgQm63wMS5677xss.99">http://www.wnd.com/2013/04/feds-caught-promoting-welfare-to-foreigners/#ZgQm63wMS5677xss.99</a></p></blockquote>
<p>As if we don&#8217;t already have enough trouble with illegal immigration and <del>the &#8216;budget&#8217;</del> federal spending!</p>
<p>The report continues&#8230;</p>
<blockquote><p>&#8230; that taxpayer money was used to run Spanish-language television ads “encouraging illegal immigrants to apply for government-financed food stamps. The Mexican Consul in Santa Ana, Calif., at the time even starred in some of the U.S. government-financed television commercials, which explained the program and provided a phone number to apply. In the widely viewed commercial the consul assured that receiving food stamps ‘won’t affect your immigration status.’”<br />
Read more at <a href="http://www.wnd.com/2013/04/feds-caught-promoting-welfare-to-foreigners/#ZgQm63wMS5677xss.99">http://www.wnd.com/2013/04/feds-caught-promoting-welfare-to-foreigners/#ZgQm63wMS5677xss.99</a></p></blockquote>
<p>We&#8217;re already broke.  WTF?</p>
<p>h/t  Plan of the Day</p>
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<title><![CDATA[6. On Meditation and Dysfunction in the Family  ]]></title>
<link>http://kevindeisher.wordpress.com/2013/04/30/6-on-meditation-and-dysfunction-in-the-family/</link>
<pubDate>Tue, 30 Apr 2013 14:43:20 +0000</pubDate>
<dc:creator>kevindeisher</dc:creator>
<guid>http://kevindeisher.wordpress.com/2013/04/30/6-on-meditation-and-dysfunction-in-the-family/</guid>
<description><![CDATA[I have given up all thoughts of seriously committing suicide but still there are times when I long f]]></description>
<content:encoded><![CDATA[<p>I have given up all thoughts of seriously committing suicide but still there are times when I long for that sweet relief from the pain of this life. When I see suffering in the world and I feel it myself, I wish I could make it go away but I cannot. I don&#8217;t have the power or influence to change the world so sometimes I am overwhelmed by profound hopelessness.</p>
<p>It is times like this that I find comfort in God. I am beginning to practice meditation to spend some quiet quality time with him each day. I know that&#8217;s I sound silly to many but it helps me. I find myself discovering strength I didn&#8217;t know I had. I find myself with a stronger desire to live.</p>
<p>Yesterday I started the morning in Vancouver, BC and flew to Oakland, California, drove to Fresno then flew to Las Vegas. I went from cool and rainy to dealer dry and very hot. I hate Las Vegas but it is where my family lives and I am here to see my dad who is in the hospital and in very bad health. He is in congestive heart failure and battling pneumonia. All of which is exacerbated by his poorly managed diabetes. I don&#8217;t know how much longer he has to live and I need to spend time with him. The timing sucks because I am so busy at work and I am trying to prep for my finals in school in two weeks.</p>
<p>My family is dysfunctional. I used to think we were a normal American family but distance and perspective have led me to believe we are all pretty effed up. I knew my bipolar was a mess but this is really a disaster. My oldest sister suffers from major depression and diabetes. My other sister has OCD. One of my nephews is addicted to steroids and the other has bipolar and has destroyed his liver and kidneys with drugs and alcohol. My brother in law has an eating disorder and is about forty pounds under weight. I am the only one seeking any kind of treatment. I really had no idea this family was so bad.</p>
<p>I have a new perspective on how I can pray for and help my family. I have been diligent to pray for my wife and children and sometimes my dad but I have ignored the rest of my family. One more regret to pile on the huge amount of regret I am carrying from this life already.</p>
<p>How, dear reader, do you deal with and overcome regret? I can&#8217;t bring myself to forgive myself for all the wrongs I have done. I hate that I have hurt so many people. I want to reach out to them to apologize and seek forgiveness but that would only open up old wounds and my wife doesn&#8217;t want me to do that. Too many past temptations that caused us both a lot of pain.</p>
<p>I need to draw closer to God and let the Holy Spirit work on me. I know I have been forgiven by God. Why can&#8217;t I forgive myself?</p>
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<title><![CDATA[Puffed-Up Ministers]]></title>
<link>http://pushingjesus.wordpress.com/2013/04/30/puffed-up-ministers/</link>
<pubDate>Tue, 30 Apr 2013 13:43:56 +0000</pubDate>
<dc:creator>Jack</dc:creator>
<guid>http://pushingjesus.wordpress.com/2013/04/30/puffed-up-ministers/</guid>
<description><![CDATA[  Refer to Step 4: I recognize that God is not the abuser; people who misuse their authority are the]]></description>
<content:encoded><![CDATA[  Refer to Step 4: I recognize that God is not the abuser; people who misuse their authority are the]]></content:encoded>
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<title><![CDATA[Erectile Dysfunction Treatment Information]]></title>
<link>http://ushealth8.wordpress.com/2013/04/30/erectile-dysfunction-treatment-information/</link>
<pubDate>Tue, 30 Apr 2013 01:47:20 +0000</pubDate>
<dc:creator>ldq138</dc:creator>
<guid>http://ushealth8.wordpress.com/2013/04/30/erectile-dysfunction-treatment-information/</guid>
<description><![CDATA[VIAGRA is prescribed to treat erectile dysfunction (ED). IMPORTANT SAFETY INFORMATION BELOW. Do not]]></description>
<content:encoded><![CDATA[<p>VIAGRA is prescribed to treat erectile dysfunction (ED). IMPORTANT SAFETY INFORMATION BELOW. Do not take VIAGRA if you take nitrates, often prescribed for chest pain, as this may cause a sudden, unsafe drop in blood pressure. Discuss your general health status with your doctor to ensure that you&#8230;</p>
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<title><![CDATA[Jerk]]></title>
<link>http://oneminustwoequalszero.wordpress.com/2013/04/29/jerk/</link>
<pubDate>Mon, 29 Apr 2013 17:16:50 +0000</pubDate>
<dc:creator>oneminustwoequalszero</dc:creator>
<guid>http://oneminustwoequalszero.wordpress.com/2013/04/29/jerk/</guid>
<description><![CDATA[I hate him. I really truly hate him. He has done nothing good for me at all but tear me apart like a]]></description>
<content:encoded><![CDATA[<p>I hate him. I really truly hate him. He has done nothing good for me at all but tear me apart like an onion. Layer by layer. And he does it either on purpose or without subconsciously knowing. Why I am still wasting time dealing with this. I don&#8217;t know. He said I do mean things for amusement. I don&#8217;t ignore people. I am not mean to people. I DO NOT intentionally belittle people. And he stole my family. I used to have a family, or somewhat of one. He took my two brothers and  my mom, although she complains about him, she is on his side. Whatever!!! I am just lividly pissed. I am thankful that we are done.</p>
<p>********************************************************************</p>
<p>You are rotten to the core. Intentionally cruel to people or rather me&#8230;&#8230;&#8230;&#8230;why I don&#8217;t know. But I don&#8217;t need to deal with it. YOU ARE CRUEL!!!! You are cruel to mean. You really are. You don&#8217;t even treat me like a friend, you have not in a long time. What am I missing, yeah nothing. Just being abused emotionally and mentally. Psychologically. Whatever.</p>
<div>I NEVER WAS INTENTIONALLY CRUEL TO YOU.</div>
<div></div>
<div>WHATEVER. Fuck it. you will never grow up. You will never get it. You are beyond the scope of understanding. YOU LACK EMPATHY. I am SOOOOOOOOOOOOOOOOOOOOO glad to not be you!!!!!!!!</div>
<div></div>
<div>It really must suck to wake up each day knowing you have to be you. Fuck. Thank you for showing me this. Thanks for letting me free. THANK YOU JESUS LORD for leaving me.</div>
<div></div>
<div>Drop the bikes off whenever. I don&#8217;t care. I don&#8217;t care to deal with your BULLSHIT anymore.</div>
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<title><![CDATA[MaryO, Pituitary Bio]]></title>
<link>http://cushingsbios.com/2013/04/29/maryo-pituitary-bio/</link>
<pubDate>Mon, 29 Apr 2013 16:33:03 +0000</pubDate>
<dc:creator>MaryO</dc:creator>
<guid>http://cushingsbios.com/2013/04/29/maryo-pituitary-bio/</guid>
<description><![CDATA[Adapted from Participatory Medicine This is kind of a &#8220;cheat&#8221; post since it&#8217;s a co]]></description>
<content:encoded><![CDATA[<p><a href="http://cushie.info/index.php?option=com_contact&#38;view=contact&#38;id=3%3Amary-oconnor-maryo&#38;catid=6%3Amembers&#38;Itemid=7" target="blank"><img alt="MySticky.net" src="http://www.mysticky.net/images/notes/MaryO0.png" /></a></p>
<p>Adapted from <a href="http://cushingshelp.blogspot.com/2009/10/participatory-medicine.html">Participatory Medicine</a></p>
<p><a href="http://participatorymedicine.org/" target="_blank"><img alt="The Society for Participatory Medicine - Member" src="http://www.cushingsonline.com/images/badge_member_175x70.gif" width="175" height="70" align="left" border="0" hspace="10" vspace="3" /></a>This is kind of a &#8220;cheat&#8221; post since it&#8217;s a compilation of other posts, web pages, message board posts and some original thoughts. I&#8217;m writing it to submit to <a href="http://survivethejourney.blogspot.com/2009/10/grand-rounds-volume-6-number-4-call-for.html" target="_blank">Robin&#8217;s Grand Rounds, hosted on her blog</a>.</p>
<p>For all of my early life, I was the good, compliant, patient. I took whatever pills the doctor prescribed, did whatever tests h/she (most always a <em>HE</em>) wrote for. Believed that whatever he said was the absolute truth. He had been to med school. He knew what was wrong with me even though he didn&#8217;t live in my body 24/7 and experience what I did.</p>
<p>I know a lot of people are still like this. Their doctor is like a god to them. He can do no wrong &#8211; even if they don&#8217;t feel any better after treatment, even if they feel worse. &#8220;But the doctor said&#8230;&#8221;</p>
<p>Anyway, I digress.</p>
<p>All this changed for me in 1983.</p>
<p>At first I noticed I&#8217;d stopped having my periods and, of course, I thought I was pregnant. I went to my Gynecologist who had no explanation. Lots of women lose their periods for a variety of reasons so no one thought that this was really significant.</p>
<p>Then I got really tired, overly tired. I would take my son to a half hour Choir rehearsal and could not stay awake for the whole time. I would lie down in the back of the van, set an alarm and sleep for the 30 minutes.</p>
<p>A whole raft of other symptoms started appearing &#8211; I grew a beard (Hirsuitism), gained weight even though I was on Weight Watchers and working out at the gym nearly every day, lost my period, everything hurt, got what is called a &#8220;moon face&#8221; and a &#8220;buffalo hump&#8221; on the back of my neck. I also got stretch marks. I was very depressed but it&#8217;s hard to say if that was because of the hormone imbalance or because I felt so bad and no one would listen to me.</p>
<p>I came across a little article in the Ladies Home Journal magazine which said &#8220;If you have these symptoms&#8230;ask your doctor about Cushing&#8217;s&#8221;. After that, I started reading everything I could on Cushing&#8217;s and asking my doctors. Due to all my reading at the library and medical books I bought, I was sure I had Cushing&#8217;s but no one would believe me. Doctors would say that Cushing&#8217;s Disease is too rare, that I was making this up and that I couldn&#8217;t have it.</p>
<p>I asked doctors for three years &#8211; PCP, gynecologist, neurologist, podiatrist &#8211; all said the now-famous refrain. It&#8217;s too rare. You couldn&#8217;t have Cushing&#8217;s. I kept persisting in my reading, making copies of library texts even when I didn&#8217;t understand them, keeping notes. I just knew that someone, somewhere would &#8220;discover&#8221; that I had Cushing&#8217;s.</p>
<p>My husband was on the doctors&#8217; sides. He was sure it was all in my mind (as opposed to all in my head!) and he told me to just think &#8220;happy thoughts&#8221; and it would all go away.</p>
<p>A Neurologist gave me Xanax. Since he couldn&#8217;t see my tumor with his Magnetic Resonance Imaging (MRI) machine there was &#8220;no possibility&#8221; that it existed. Boy was he wrong!</p>
<p>Later in 1986 I started bruising incredibly easily. I could touch my skin and get a bruise. On New Year&#8217;s Day of 1987 I started bleeding under the skin. My husband made circles around the outside perimeter each hour with a marker, like the rings of a tree. When I went to my Internist the next day he was shocked at the size. He now thought I had a blood disorder so he sent me to a Hematologist/Oncologist.</p>
<p>Fortunately, the Hematologist/Oncologist ran a twenty-four hour urine test and really looked at me. Both he and his partner recognized that I had Cushing&#8217;s. Of course, he was sure that he did the diagnosis. No matter that I had been pursuing this with other doctors for 3 years.</p>
<p>It was not yet determined if it was Cushing&#8217;s Disease (Pituitary) or Syndrome (Adrenal). However, he couldn&#8217;t help me any further so the Hematologist referred me to an Endocrinologist.</p>
<p>The Endocrinologist, of course, didn&#8217;t trust the other tests I had had done so I was back to square one. He ran his own multitude of tests. He had to draw blood at certain times like 9 AM. and 5 PM. There was a dexamethasone suppression test where I took a pill at 10 p.m. and gave blood at 9 am the next day. I collected gallons of urine in BIG boxes (Fun in the fridge!). Those were from 6 a.m. to 6 a.m. to be delivered to his office by 9 a.m. same day. I was always worried that I&#8217;d be stopped in rush hour and the police would ask about what was in that big container. I think I did those for a week. He also did standard neurological tests and asked lots of questions.</p>
<p>When the endo confirmed that I had Cushing&#8217;s in 1987 he sent me to a local hospital where they repeated all those same tests for another week and decided that it was not my adrenal gland (Cushing&#8217;s Syndrome) creating the problem. The doctors and nurses had no idea what to do with me, so they put me on the brain cancer ward.</p>
<p>When I left this hospital after a week, we didn&#8217;t know any more than we had before.</p>
<p>As luck would have it, NIH (National Institutes of Health, Bethesda, Maryland) was doing a clinical trial of Cushing&#8217;s. I live in the same area as NIH so it was not too inconvenient but very scary at first to think of being tested there. At that time I only had a choice of NIH, Mayo Clinic and a place in Quebec to do this then-rare pituitary surgery called a Transsphenoidal Resection. I chose NIH &#8211; closest and free. After I was interviewed by the Doctors there, I got a letter that I had been accepted into the clinical trial. The first time I was there was for 6 weeks as an inpatient. More of the same tests.</p>
<p>There were about 12 of us there and it was nice not to be alone with this mystery disease. Many of these Cushies (mostly women) were getting bald, couldn&#8217;t walk, having strokes, had diabetes. One was blind, one had a heart attack while I was there. Towards the end of my testing period, I was looking forward to the surgery just to get this whole mess over with. While I was at NIH, I was gaining about a pound a day!</p>
<p>The MRI still showed nothing, so they did a Petrosal Sinus Sampling Test. That scared me more than the prospect of surgery. (This test carries the risk of stroke and uncontrollable bleeding from the incision points.) Catheters were fed from my groin area to my pituitary gland and dye was injected. I could watch the whole procedure on monitors. I could not move during this test or for several hours afterwards to prevent uncontrolable bleeding from a major artery. The test did show where the tumor probably was located. Also done were more sophisticated dexamethasone suppression tests where drugs were administered by IV and blood was drawn every hour (they put a heplock in my arm so they don&#8217;t have to keep sticking me). I got to go home for a weekend and then went back for the surgery &#8211; the Transsphenoidal Resection. I fully expected to die during surgery (and didn&#8217;t care if I did) so I signed my will and wrote last letters to those I wanted to say goodbye to. During the time I was home just before surgery, a college classmate of mine (I didn&#8217;t know her) did die at NIH of a Cushing&#8217;s-related problem. I&#8217;m so glad I didn&#8217;t find out until a couple months later!</p>
<p>November 3, 1987, the surgeon, Dr. Ed Oldfield, cut the gum above my front teeth under my upper lip so there is no scar. He used tiny tools and microscopes. My tumor was removed successfully. In some cases (not mine) the surgeon uses a plug of fat from the abdomen to help seal the cut. Afterwards, I was in intensive care overnight and went to a neurology ward for a few days until I could walk without being dizzy. I had some major headaches for a day or two but they gave me drugs (morphine) for those. Also, I had cotton plugs in my nostrils. It was a big day when they came out. I had diabetes insipidus (DI) for a little while, but that went away by itself &#8211; thank goodness!</p>
<p>I had to use a foam product called &#8220;Toothies&#8221; to brush my teeth without hitting the incision. Before they let me go home, I had to learn to give myself an injection in my thigh. They sent me home with a supply of injectible cortisone in case my level ever fell too low (it didn&#8217;t). I was weaned gradually off cortisone pills (scary). I now take no medications. I had to get a Medic Alert bracelet. I will always need to tell medical staff when I have any kind of procedure &#8211; the effects of my excess cortisone will remain forever.</p>
<p>I went back to the NIH for several follow-up visits of a week each where they did all the blood and urine testing again. After a few years NIH set me free. Now I go to my &#8220;outside&#8221; endocrinologist every year for the dexamethasone suppression test, 24-hour urine and regular blood testing.</p>
<p>As I get further away from my surgery, I have less and less chance that my tumor will grow back. I have never lost all the weight I gained and I still have the hair on my chin but most of my other symptoms are gone. I am still and always tired and need a nap most days. I do not, however, still need to take whole days off just to sleep.</p>
<p>I consider myself very lucky that I was treated before I got as bad as some of the others on my floor at NIH but think it is crazy that these symptoms are not taken seriously by doctors.</p>
<p>My story goes on and if you&#8217;re interested some is on <a href="http://cushingshelp.blogspot.com/search/label/MaryO" target="_blank">this blog</a> and some is here:</p>
<p><a href="http://www.cushings-help.com/media.htm#forbes">Forbes Magazine</a> &#124; <a href="http://www.cushings-help.com/maryos_story.htm">MaryO&#8217;s bio</a> &#124; <a href="http://cushingshelp.blogspot.com/">Cushing&#8217;s and Cancer Blog</a> &#124; <a href="http://cushie.info/index.php?option=com_content&#38;view=category&#38;id=34&#38;Itemid=70">Guest Speakers</a> &#124; <a href="http://www.blogtalkradio.com/CushingsHelp/2008/01/03/Interview-with-MaryO-Cushings-Helpcom-founder">Interview Archive 1/3/08</a> &#124; <a href="http://www.blogtalkradio.com/CushingsHelp/2008/04/09/SPECIAL-Cushings-Awareness-Day-Voice-Chat">Cushing&#8217;s Awareness Day Testimonial Archive</a> &#124;</p>
<p>Because of this experience in getting a Cushing&#8217;s diagnosis &#8211; and later, a prescription for growth hormone &#8211; I was concerned that there were probably other people not being diagnosed with Cushing&#8217;s. When I searched online for Cushing&#8217;s, all the sites that came up were for dogs and horses with Cushing&#8217;s. Not what I was looking for!</p>
<p>In July of 2000, I was talking with my dear friend <a href="http://www.cushings-help.com/intro.htm#Alice">Alice</a>, who runs a wonderful menopause site, <a href="http://www.power-surge.com/intro.htm">Power Surge</a>, wondering why there weren&#8217;t many support groups online (OR off!) for Cushing&#8217;s. This thought percolated through my mind for a few hours and I realized that maybe this was my calling. Maybe I should be the one to start a network of support for other &#8220;Cushies&#8221; to help them empower themselves.</p>
<p>I wanted to educate others about the awful disease that took doctors years of my life to diagnose and treat &#8211; even after I gave them the information to diagnose me. I didn&#8217;t want anyone else to suffer for years like I did. I wanted doctors to pay more attention to Cushing&#8217;s disease.</p>
<p>The first website (<strong><a href="http://www.cushings-help.com/intro.htm" target="_blank">http://www.cushings-help.com</a></strong>) went &#8220;live&#8221; July 21, 2000. It was just a single page of information. The message boards began September 30, 2000 with a simple message board which then led to a larger one, and a larger. Today, in 2010, we have over 7 thousand members. Some &#8220;rare disease&#8221;!</p>
<p>The message boards are now very active and we have weekly online text chats, <a href="http://www.blogtalkradio.com/CushingsHelp">weekly live interviews</a>, local meetings, conferences, email newsletters, a clothing exchange, a <a href="http://cushings.invisionzone.com/index.php?showtopic=14273&#38;st=0">Cushing&#8217;s Awareness Day Forum</a>, podcasts, phone support and much more. Because I wanted to spread the word to others not on &#8220;the boards&#8221; we have extended out to social networking sites &#8211; twitter groups, facebook groups, twines, friendfeeds, newsletters, websites, chat groups, multiply.com, and much, much more.</p>
<p>People are becoming more empowered and participating in their own diagnoses, testing and treatment. This have changed a lot since 1983!</p>
<p>When I had my Cushing&#8217;s over 20 years ago, I never thought that I would meet another Cushing&#8217;s patient in real life or online. Back then, I&#8217;d never even been aware that there was anything like an &#8220;online&#8221;. I&#8217;m so glad that people struggling with Cushing&#8217;s today don&#8217;t have to suffer anymore thinking that they&#8217;re the only one who deals with this.</p>
<p>Because of my work on the websites &#8211; and, believe me it is a ton of work! &#8211; I have had the honor of meeting over a hundred other Cushies personally at local meetings, conferences, at NIH (the National Institutes of Health in Bethesda, MD where I had my final diagnosis and surgery). It occurred to me once that this is probably more than most endocrinologists will ever see in their entire career. I&#8217;ve also talked to countless others on the phone. Amazing for a &#8220;rare&#8221; disease!</p>
<p>I don&#8217;t know what pushed me in 1983, how I got the confidence and self-empowerment to challenge these doctors and their non-diagnoses over the years. I&#8217;m glad that I didn&#8217;t suffer any longer than I did and I&#8217;m glad that I have a role in helping others to find the medical help that they need.</p>
<p>What do *YOU* think? How are you becoming empowered? <a href="http://cushingshelp.blogspot.com/2009/10/participatory-medicine.html" target="_blank">Comments welcome</a></p>
<hr width="80%" />
<p>• Medicine 2.0 (<strong>Toronto, Canada</strong>) September 17-18, 2009. <a href="http://cushings.invisionzone.com/index.php?showuser=3529" target="_blank">Robin Smith (staticnrg)</a>, Mary O&#8217;Connor (MaryO) and <a href="http://cushie.info/index.php?option=com_sobi2&#38;sobi2Task=sobi2Details&#38;catid=2&#38;sobi2Id=26&#38;Itemid=21" target="_blank">Dr Ted Friedman</a> will be panelists. The topic is &#8220;Paying It Forward in the Digital Age: Patient Empowerment 2.0 Using Web 2.0&#8243;. Robin submitted this topic. She wrote: Paying it Forward in the Digital Age: Patient Empowerment 2.0 using Web 2.0</p>
<p>An online community is usually defined by one or two things. These come from blogs, websites, forums, newsletters, and more. The emphasis is typically either totally support or education. But sometimes all of these meet. The Cushing’s community, bonded by the lack of education in the medical community and the necessity or self-education has become a community of all of these things.</p>
<p>Mary O’Connor, the founder and owner of the Cushings’ Help website and message boards started with one goal in mind. She wanted to educate others about the awful disease that took doctors years to diagnose and treat in her life. Armed only with information garned from her public library and a magazine article, she self-diagnosed in the days prior to the availability of the internet.</p>
<p>Mary’s hard work and dream have paid off. Others, with the same illness, the same frustrations, and the same non-diagnosis/treatment have been led by MaryO (as she’s lovingly called) to work with her to support, educate, and share.</p>
<p>The Cushing’s Help website soon led to a simple message board which then led to a larger one, and a larger. The site has numerous helpful webpages chock full of information. The members of this community have made a decision to increase awareness of the disease, the research that is ongoing with the disease, the doctors who understand it, and the lack of information about it in the medical field.</p>
<p>From this hub have come multiple Web 2.0 spokes. Many members have blogs, there is a non-profit corporation to continue the programs, a BlogTalkRadio show with shows almost every week, thousands of listeners to podcasts produced from the shows, twitter groups, facebook groups, twines, friendfeeds, newsletters, websites, chat groups and much, much more. The power of Web 2.0 is exponential, and it is making a huge difference in the lives of patients all over the world. It is Empowerment 2.0.</p>
<p>One patient said it well when she said, “Until this all began I was a hairstylist/soccer mom with a high school education. It’s been a learning curve. I am done with doctors who speak to me as if they know all; I know better now.” And she knows better because she’s part of our community. All patients need this type of community.</p>
<p><a href="http://feeds2.feedburner.com/med2submit" target="_blank">More info here.</a></p>
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<h2>MaryO&#8217;s Original Bio</h2>
<p>Click on pictures to enarge.</p>
<p><a title="Christmas 1981" href="http://www.cushings-help.com/christmas_1981.jpg" rel="lightbox"><img alt="Christmas 1981" src="http://www.cushings-help.com/Christmas_1981_small.jpg" align="left" border="0" hspace="10" vspace="3" /></a>Around <strong>1983</strong> I first started to realize I was really sick. At first I noticed I&#8217;d <a href="http://www.cushings-help.com/definitions.htm#amenorrhea:">stopped having my periods</a> and, of course, I thought I was pregnant. I went to my Gynecologist who had no explanation. Then I got really tired. I would take my son to a half hour Choir rehearsal and could not stay awake for the whole time.</p>
<p>A whole raft of other symptoms started appearing &#8211; I grew a beard (<a href="http://www.cushings-help.com/definitions.htm#hirsuitism">Hirsuitism</a>), gained weight even though I was on Weight Watchers and working out at the gym nearly every day, lost my period, everything hurt, got what is called a &#8220;moon face&#8221; and a &#8220;<a href="http://www.cushings-help.com/buffalo_hump.htm">buffalo hump</a>&#8221; on the back of my neck. I also got stretch marks. I was very depressed but it&#8217;s hard to say if that was because of the hormone imbalance or because I felt so bad and no one would listen to me.</p>
<p>I came across a little article in the Ladies Home Journal which said &#8220;If you have these symptoms&#8230;ask your doctor about Cushing&#8217;s&#8221;. After that, I started reading everything I could on Cushing&#8217;s and asking my doctors. Due to all my reading at the library, I was sure I had Cushing&#8217;s but no one would believe me. Doctors would say that <a href="http://www.cushings-help.com/symptoms.htm">Cushing&#8217;s Disease</a> is too rare, that I was making this up and that I couldn&#8217;t have it.</p>
<p><a title="Gaining weight in 1986" href="http://www.cushings-help.com/1986-2.jpg" rel="lightbox"><img alt="Gaining weight in 1986" src="http://www.cushings-help.com/1986-2.jpg" width="93" height="154" align="left" border="0" hspace="10" vspace="3" /></a>My husband just told me to think &#8220;happy thoughts&#8221; and it would all go away. A <a href="http://www.cushings-help.com/definitions.htm#neuro">Neurologist</a> gave me Xanax. Since he couldn&#8217;t see my <a href="http://www.cushings-help.com/definitions.htm#tumor">tumor</a>with his <a href="http://www.cushings-help.com/tests.htm#mri">Magnetic Resonance Imaging</a> (MRI) machine there was &#8220;no possibility&#8221; that it existed. Boy was he wrong!</p>
<p>In <strong>late 1986</strong> I started bruising incredibly easily. I could touch my skin and get a bruise. On New Year&#8217;s Day of 1987 I started bleeding under the skin. My husband made circles around the outside perimeter each hour with a marker. When I went to my Internist the next day he was shocked at the size. He now thought I had a blood disorder so he sent me to a <a href="http://www.cushings-help.com/definitions.htm#hema">Hematologist</a>/<a href="http://www.cushings-help.com/definitions.htm#onc">Oncologist</a>. <br /><a title="Fall 1986" href="http://www.cushings-help.com/Fall_1986.jpg" rel="lightbox"><img alt="Fall 1986" src="http://www.cushings-help.com/Fall_1986_small.jpg" width="100" height="67" align="left" border="0" hspace="10" vspace="3" /></a>I was also having trouble with my feet and walking, so I had the distinction of going to two doctors in one day, a Podiatrist in the morning and the Hematologist/Oncologist in the afternoon.</p>
<p>Fortunately, the Hematologist/Oncologist ran a <a href="http://www.cushings-help.com/urine.htm">twenty-four hour urine test</a> and really looked at me. Both he and his partner recognized that I had Cushing&#8217;s.</p>
<p>It was not yet determined if it was Cushing&#8217;s Disease (<a href="http://www.cushings-help.com/definitions.htm#pituitary gland">Pituitary</a>) or Syndrome (<a href="http://www.cushings-help.com/definitions.htm#adrenal">Adrenal</a>). However, he couldn&#8217;t help me any further so the Hematologist referred me to an <a href="http://www.cushings-help.com/definitions.htm#endo">Endocrinologist</a>.</p>
<p>The Endocrinologist, of course, didn&#8217;t trust the other tests I had had done so I was back to square one. He ran his own multitude of tests. He had to draw blood at certain times like 9 AM. and 5 PM. There was a <a href="http://www.cushings-help.com/tests.htm#dex">dexamethasone suppression test</a> where I took a pill at 10 p.m. and gave blood at 9 am the next day. I collected gallons of urine in BIG boxes (Fun in the fridge!). Those were from 6 a.m. to 6 a.m. to be delivered to his office by 9 a.m. same day. I was always worried that I&#8217;d be stopped in rush hour and the police would ask about what was in that big container. I think I did those for a week. He also did standard neurological tests and asked lots of questions.</p>
<div align="left">
<p><a title="March 1987 after a week of testing" href="http://www.cushings-help.com/March_1987-2.jpg" rel="lightbox"><img alt="March 1987 after a week of testing" src="http://www.cushings-help.com/March_1987-2.jpg" width="103" height="96" align="left" hspace="3" vspace="3" /></a>When he confirmed that I had Cushing&#8217;s he sent me to a local hospital where they repeated all those same tests for another week and decided that it was not my adrenal gland (Cushing&#8217;s Syndrome) creating the problem. The doctors and nurses had no idea what to do with me, so they put me on the brain cancer ward.</p>
<p>When I left this hospital after a week, we didn&#8217;t know any more than we had before.</p>
<p>As luck would have it, <a href="http://www.cushings-help.com/research.htm">NIH</a> (National Institutes of Health, Bethesda, Maryland) was doing a <a href="http://www.cushings-help.com/clinical_trials.htm">clinical trial</a> of Cushing&#8217;s. I live in the same area as NIH so it was not too inconvenient but very scary at first to think of being tested there. At that time I only had a choice of NIH, Mayo Clinic and a place in Quebec to do this then-rare pituitary surgery called a <a href="http://www.cushings-help.com/definitions.htm#trans">Transsphenoidal Resection</a>. I chose NIH &#8211; closest and free. After I was interviewed by the Doctors there, I got a letter that I had been accepted into the clinical trial. The first time I was there was for 6 weeks as an inpatient. More of the same tests.</p>
<p>There were about 12 of us there and it was nice not to be alone with this mystery disease. Many of these Cushies (mostly women) were getting bald, couldn&#8217;t walk, having strokes, had <a href="http://www.cushings-help.com/definitions.htm#Diabetes Insipidus">diabetes</a>. One was blind, one had a heart attack while I was there. Towards the end of my testing period, I was looking forward to the surgery just to get this whole mess over with. While I was at NIH, I was gaining about a pound a day!</p>
<p>The MRI still showed nothing, so they did a <a href="http://www.cushings-help.com/tests.htm#petrosal">Petrosal Sinus Sampling Test</a>. That scared me more than the prospect of surgery. (This test carries the risk of stroke and uncontrollable bleeding from the incision points.) <a href="http://www.cushings-help.com/definitions.htm#catheter">Catheters</a> were fed from my groin area to my <a href="http://cushie.info/index.php?option=com_phocagallery&#38;view=categories&#38;Itemid=48">pituitary gland</a> and dye was injected. I could watch the whole procedure on monitors. I could not move during this test or for several hours afterwards to prevent uncontrolable bleeding from a major artery. The test did show where the tumor probably was located. Also done were more sophisticated dexamethasone suppression tests where drugs were administered by IV and blood was drawn every hour (they put a heplock in my arm so they don&#8217;t have to keep sticking me). I got to go home for a weekend and then went back for the surgery &#8211; the Transsphenoidal Resection. I fully expected to die during surgery (and didn&#8217;t care if I did) so I signed my will and wrote last letters to those I wanted to say goodbye to. During the time I was home just before surgery, a college classmate of mine (I didn&#8217;t know her) <em>DID</em> die at NIH of a Cushing&#8217;s-related problem. I&#8217;m so glad I didn&#8217;t find out until a couple months later!</p>
<p><strong>November 3, 1987</strong>, the surgeon, <a href="http://cushie.info/index.php?option=com_sobi2&#38;sobi2Task=sobi2Details&#38;catid=5&#38;sobi2Id=59&#38;Itemid=21">Dr. Ed Oldfield</a>, cut the gum above my front teeth under my upper lip so there is no scar. He used tiny tools and microscopes. My tumor was removed successfully. In some cases (not mine) the surgeon uses a plug of fat from the abdomen to help seal the cut. Afterwards, I was in intensive care overnight and went to a neurology ward for a few days until I could walk without being dizzy. I had some major headaches for a day or two but they gave me drugs (morphine) for those. Also, I had cotton plugs in my nostrils. It was a big day when they came out. I had diabetes insipidus (DI) for a little while, but that went away by itself &#8211; thank goodness!</p>
<p>I had to use a foam product called &#8220;Toothies&#8221; to brush my teeth without hitting the incision. Before they let me go home, I had to learn to give myself an injection in my thigh. They sent me home with a supply of injectible cortisone in case my level ever fell too low (it didn&#8217;t). I was weaned gradually off cortisone pills (scary). I now take no medications. I had to get a <a href="http://www.cushings-help.com/links.htm#medic">Medic Alert</a> bracelet. I will always need to tell medical staff when I have any kind of procedure &#8211; the effects of my excess cortisone will remain forever.</p>
<p>I went back to the NIH for several follow-up visits of a week each where they did all the blood and urine testing again. After a few years NIH set me free. Now I go to my &#8220;outside&#8221; endocrinologist every year for the dexamethasone suppression test, <a href="http://www.cushings-help.com/tests.htm#urine">24-hour urine</a> and regular blood testing.</p>
<p>As I get further away from my surgery, I have less and less chance that my tumor will grow back. I have never lost all the weight I gained and I still have the hair on my chin but most of my other symptoms are gone. I am still and always tired and need a nap most days. I do not, however, still need to take whole days off just to sleep.</p>
<p>I consider myself very lucky that I was treated before I got as bad as some of the others on my floor at NIH but think it is crazy that these symptoms are not taken seriously by doctors.</p>
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<p><a title="Tom and me in Barbados" href="http://www.cushings-help.com/Tom_and_me.jpg" rel="lightbox"><img alt="Tom and me in Barbados" src="http://www.cushings-help.com/Tom_and_me_small.jpg" width="100" height="78" align="left" border="0" hspace="10" vspace="3" /></a></p>
<h3>Update: Fall, 1999:</h3>
<p>I went for my regular testing with my private endocrinologist.</p>
<p>Besides the annual testing, he told me that my pituitary gland is shutting down, so I must always have extra cortisone (Cortef) for any medical stress such as surgery or the flu.</p>
<p>Many people are now finding that they need <a href="http://www.cushings-help.com/definitions.htm#hGH:">HgH</a> after pituitary surgery, so an <a href="http://www.cushings-help.com/tests.htm#insulin">Insulin Tolerance Test</a> was performed. My endocrinologist painted a very rosey picture of how wonderful I&#8217;d feel on Growth Hormone. It sounded like a miracle drug to me!</p>
<p>I was only asked to fast before the ITT and to bring someone with me to take me home. There is no way I could have driven home. I got very cold during the test and they let me have a blanket. Also, though, lying still on that table for so long, my back hurt later. I&#8217;d definitely take &#8211; or ask for &#8211; a pillow for my back next time. They gave me a rolled up blanket for under my knees, too.</p>
<p>I don&#8217;t remember much about the test at all. I remember lying very still on the table. The <a href="http://www.cushings-help.com/definitions.htm#phlebotomist">phlebotomist</a> took blood first, then tried to insert the IV (it took a few tries, of course). Then the endo himself put the insulin in through the IV and took the blood out of that. I remember the nurse kept asking me stupid questions &#8211; I&#8217;m sure to see how I was doing on the consciousness level. I&#8217;d imagine I sounded like a raving lunatic, although I believed that I was giving rational answers at the time.</p>
<p>Then everything just got black&#8230;I have no idea for how long, and the next thing I knew I was becoming aware of my surroundings again and the doctor was mumbling something. They gave me some juice and had me sit up very slowly, then sit on the edge of the table for a while. When I thought I could get up, they gave me some glucose tablets &#8220;for the road&#8221; and called my friend in. I was still kind of woozy, but they let her take me out, very wobbly, kind of drunk feeling.</p>
<p>My friend took me to a close-by restaurant &#8211; I was famished &#8211; but I still had trouble with walking and felt kind of dazed for a while. When I got home, I fell asleep on the sofa for the rest of the day.</p>
<p>But the most amazing thing happened. Saturday and Sunday I felt better than I had for 20 years. I had all this energy and I was flying high! It was so wonderful and I hoped that that was from the HgH they gave me to wake me up.</p>
<div align="left">
<p><a title="Edgewater Inn, Barbados" href="http://www.cushings-help.com/Mary_at_Edgewater_Inn.jpg" rel="lightbox"><img alt="Edgewater Inn, Barbados" src="http://www.cushings-help.com/Mary_at_Edgewater_Inn_small.jpg" width="100" height="75" align="left" border="0" hspace="10" vspace="3" /></a>I will have to take this test annually until I do I do qualify for HgH. I got a small taste of what I would feel like on this drug &#8211; that weekend I felt much better than I can remember feeling in a very long time. Hopefully, at some point, I will &#8220;qualify&#8221; for this drug, even though it means a daily injection. I would really like to feel better sometime &#8211; less tired, less depressed, more human.</p>
<p>In <strong>July of 2000</strong>, I was talking with my dear friend <a href="http://www.cushings-help.com/intro.htm#Alice">Alice</a>, who runs a wonderful menopause site, <a href="http://www.power-surge.com/intro.htm" target="_blank">Power Surge</a>, wondering why there weren&#8217;t many support groups online (OR off!) for Cushing&#8217;s and I wondered if I could start one myself and we decided that I could. This website (<strong><a href="http://www.cushings-help.com" rel="nofollow">http://www.cushings-help.com</a></strong>) first went &#8220;live&#8221; July 21, 2000 and the message boards September 30, 2000. Hopefully, with this site, I&#8217;m going to make some helpful differences in someone else&#8217;s life.</p>
<p>The message boards are very active and we have weekly online text chats, <a href="http://www.blogtalkradio.com/CushingsHelp" target="_blank">weekly live interviews</a>, local meetings, email newsletters, a clothing exchange, a<a href="http://cushings.invisionzone.com/index.php?showtopic=14273&#38;st=0" target="_blank">Cushing&#8217;s Awareness Day Forum</a>, podcasts, phone support and much more.</p>
<p>Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the <a href="http://cushings.invisionzone.com/index.php?showtopic=14721">&#8220;Cushie Helper&#8221; program</a>where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.</p>
<p><img alt="" src="http://www.cushings-help.com/stickynote.gif" width="31" height="32" align="left" border="0" hspace="10" vspace="3" />My husband, Tom (<em>PICTURED ABOVE</em>) posted this on the <a href="http://cushings.invisionzone.com/index.php?">message boards:</a></p>
<blockquote><p>&#8220;I just read your description of the 9 year ordeal. I am Mary&#8217;s husband and much of your story was familiar.Mary diagnosed her own illness. After a prolonged journey from doctor to doctor.</p>
<p>After her surgery and recovery, I found myself at a neurologist&#8217;s office for some trivial ailment and the place seemed familiar.</p>
<p>Then it dawned on me that I had been there before with Mary. This was one of the doctors who had failed to listen. Or perhaps simply had no knowledge base about Cushing&#8217;s.</p>
<p>In any event, I stopped the process I was there for and changed the subject to the previous visit 4 years ago. I told the doctor to look up his records on Mary O&#8217;Connor and study them. Told him that what he would see in his files was a case of Cushing&#8217;s, misdiagnosed as something that might respond to Valium.</p>
<p>I said he could learn something and perhaps help the next person who arrived with Cushing&#8217;s.</p>
<p>Out of fairness to the medics, the ailment is so rare that a doctor can go his entire career and never see a single case. And it is certainly possible that the doctor may fail to diagnose the few cases they may see.</p>
<p>Mary&#8217;s surgery was done at NIH. It came down to them or the Mayo Clinic. At the time we did not realize that NIH was free and we selected them over Mayo based on their success and treatment record. They were happy to learn they had beat Mayo without a price advantage. We were happy to hear it was free.</p>
<p>During the same time Mary was at NIH, another woman had the same operation. She came from Mary&#8217;s home town. They were class mates at college. They had the same major. They were the same age. They had the same surgical and medical team. Mary recovered. The other woman died during surgery.</p>
<p>I am an aggressive person who deals directly with problems. I enjoy conflict and I thrive in it.</p>
<p>This experience made clear how little we control. And how much depends on the grace of God.</p>
<p>This year we celebrated our 28th anniversary. Our son has grown into a fine young man and is succeeding admirably in college.<br />
Life is the answer. We keep going on&#8230;.undaunted and ever hopeful.</p>
<p>Tom O&#8217;Connor&#8221;</p></blockquote>
<h3>Update July 26, 2001</h3>
<p>I saw the endo today. My pituitary function is continuing to drop, so August 6, I&#8217;ll Be having another ITT, as described above. Hopefully, after this one, I&#8217;ll be able to take Growth Hormone and start feeling better!</p>
<h3>Update August 6, 2001</h3>
<p>I had the ITT this morning. I don&#8217;t get any results until a week from Thursday, but I do know that I didn&#8217;t recover from the insulin injection as quickly as I did last time. The endo made a graph for my husband of me today and a &#8220;normal&#8221; person, although I can&#8217;t imagine what normal person would do this awful test! A normal person&#8217;s blood sugar would drop very quickly then rise again at about a right angle on the graph.</p>
<p>I dropped a little more slowly, then stayed very low for a long time, then slowly started to rise. On the graph, mine never recovered as much as the normal person, but I&#8217;m sure that I did, eventually.</p>
<p>The test this time wasn&#8217;t as difficult as I remember it being, which is good. Last time around, I felt very sweaty, heart pounding. I don&#8217;t remember any of that this time around. I do know that I &#8220;lost&#8221; about an hour, though. The phlebotomist took the first blood at 9:15, then the endo injected the insulin and took blood every 15 minutes after that. I counted (or remembered) only 4 of the blood draws, but it was 11:30 when they told me that my sugar wasn&#8217;t coming up enough yet and I&#8217;d have to stay another 30 minutes. It actually ended up being another hour.</p>
<p>Kim, the phlebotomist, asked me if I got a headache when they &#8220;crashed me&#8221; and I have no recollection of any of that.</p>
<p>Like last time, I was very, very cold, even with the blanket and my left arm &#8211; where the heplock was &#8211; fell asleep. Other than that &#8211; and my back hurting from lying on one of those tables all that time this wasn&#8217;t as bad as I remembered.</p>
<p>So, I waited for 10 days&#8230;</p>
<h3>Update Fall, 2002.</h3>
<p>The endo refused to discuss my fatigue or anything at all with me until I lost 10 pounds. He said I wasn&#8217;t worth treating in my overweight condition and that I was setting myself up for a heart attack. He gave me 3 months to lose this weight. Those 3 months included Thanksgiving, Christmas and New Years.</p>
<p>I know that I would like to lose weight, but I&#8217;d like to do it on my own terms, not over Thanksgiving, Christmas and New Years, not because this endo was rude about it. I left his office in tears. I&#8217;m now looking for a new one&#8230;</p>
<h3>Update Fall, 2004</h3>
<p>I left my previous endo in November of 2002. He was just too rude, telling me that I was setting myself up for a heart attack and that I wasn&#8217;t worth treating. I had left his office in tears.</p>
<p>Anyway, I tried for awhile to get my records. He wouldn&#8217;t send them, even at doctors&#8217; or my requests. Finally, my husband went to his office and threatened him with a court order, The office manager managed to come up with about 13 pages of records. For going to him from 1986 to 2001, that doesn&#8217;t seem like enough records to me.</p>
<p>I had emailed NIH and they said that they would be &#8220;happy&#8221; to treat me, but it was long between emails, and it looked like things were moving s-l-o-w-l-y. I had also contacted UVa, but they couldn&#8217;t do anything without those records.</p>
<p>Last April, many of us from the message boards went to the UVa Pituitary Days Convention. By chance, we met a wonderful woman named <a href="http://cushie.info/index.php?option=com_content&#38;view=category&#38;id=34&#38;Itemid=70#craven">Barbara Craven</a>. She sat at our table for lunch on the last day and, after we learned that she was a dietitian who had had Cushing&#8217;s, one of us jokingly asked her if she&#8217;d do a guest chat for us. I didn&#8217;t follow through on this until she emailed me one day last summer. In the email, she asked how I was doing. Usually I say &#8220;fine&#8221; or &#8220;ok&#8221; but for some reason, I told her exactly how awful I was feeling.</p>
<p>Barbara emailed me back and said I should see a doctor at Johns Hopkins. And I said I didn&#8217;t think I could get a recommendation to there, so SHE referred me. The doctor got right back to me, set up an appointment. Between his vacation and mine, that first appointment turned out to be Tuesday, Sept 14, 2004.</p>
<p>Just getting through the maze at Johns Hopkins was amazing. They have the whole system down to a science, moving from one place to another to sign in, then go here, then window 6, then&#8230; But it was very efficient.</p>
<p>My new doctor was wonderful. Understanding, knowledgeable. He never once said that I was &#8220;too fat&#8221; or &#8220;depressed&#8221; or that all this was my own fault. I feel so validated, finally.</p>
<p>He looked through my records, especially at my 2 previous Insulin Tolerance Tests. From those, he determined that my growth hormone has been low since at least August 2001 and I&#8217;ve been adrenal insufficient since at least Fall, 1999 &#8211; possibly as much as 10 years! I was amazed to hear all this, and astounded that my former endo not only didn&#8217;t tell me any of this, he did nothing. He had known both of these things &#8211; they were in the past records that I took with me. Perhaps that was why he had been so reluctant to share copies of those records. He had given me Cortef in the fall of 1999 to take just in case I had &#8220;stress&#8221; and that was it.</p>
<p>The new endo took a lot of blood (no urine!) for cortisol and thyroid stuff. I&#8217;m going back on Sept. 28, 2004 for arginine, cortrosyn and IGF testing.</p>
<p>He has said that I will end up on daily cortisone &#8211; a &#8220;sprinkling&#8221; &#8211; and some form of GH, based on the testing the 28th.</p>
<p>So, in a couple weeks, I might start feeling better! Wowee!</p>
<p>For those who are interested, my new endo is <strong>Roberto Salvatori, M.D.<br />
Assistant Professor of Medicine at Johns Hopkins</strong></p>
<p><strong>Medical School:</strong> Catholic University School of Medicine, Rome, Italy<br />
<strong>Residency:</strong> Montefiore Medical Center<br />
<strong>Fellowship:</strong> Cornell University, Johns Hopkins University<br />
<strong>Board Certification:</strong> Endocrinology and Metabolism, Internal Medicine</p>
<p><strong>Clinical Interests:</strong> Neuroendocrinology, pituitary disorders, adrenal disorders</p>
<p><strong>Research Interests:</strong> Control of growth hormone secretion, genetic causes of growth hormone deficiency, consequences of growth hormone deficiency.</p>
<h3>Update October, 2004</h3>
<p>I had cortrosyn and arginine-GHRH stimulation test at Johns Hopkins. They confirmed what the doctor learned from reading my 4 year old records &#8211; that I&#8217;m both adrenal-deficient and growth hormone-deficient. I started on my &#8220;sprinkle&#8221; (5 mg twice a day) of Cortef now and my new doctor has started the paperwork for GH so maybe I&#8217;m on my way&#8230;</p>
<p>Yea!!!</p>
<p>It feels weird to be going back on the cortisone after being off for so many years but at this point, I think I&#8217;d sell my soul to the devil not to feel the way I&#8217;ve been feeling for the last several years.</p>
<h3>Update November, 2004</h3>
<p>Although I have this wonderful doctor, a specialist in growth hormone deficiency at Johns Hopkins, my insurance company saw fit to over-ride his opinions and his test results based on my past pharmaceutical history! Hello??? How could I have a history of taking GH when I&#8217;ve never taken it before?</p>
<p>Of course, I found out late on a Friday afternoon. By then it was too late to call my case worker at the drug company, so we&#8217;ll see on Monday what to do about an appeal. My local insurance person is also working on an appeal, but the whole thing sounds like just another long ordeal of finding paperwork, calling people, FedExing stuff, too much work when I just wanted to start feeling better by Thanksgiving. I guess that&#8217;s not going to happen, at least by the 2004 one.</p>
<p>As it turns out the insurance company rejected the brand of hGH that was prescribed for me. They gave me the ok for a <a href="http://www.cushingsonline.com/newsletters/email/11-10-2004.htm#gh" target="_blank">growth hormone was just FDA-approved for adults on 11/4/04</a>. The day this medication was approved for adults was the day after my insurance said that&#8217;s what is preferred for me. In the past, this form of hGH was only approved for children with height issues. Am I going to be a ginuea pig again? The new GH company has assigned a rep for me, has submitted info to pharmacy, waiting for insurance approval, again.</p>
<h3>Update December 7, 2004</h3>
<p>I finally started the Growth Hormone last night &#8211; it&#8217;s like a rebirth for me. I look forward to having my life back in a few months!</p>
<h3>Update January 3, 2005</h3>
<p>After a lot of phone calls and paperwork, the insurance company finally came through at the very last minute, just as I needed my second month&#8217;s supply. Of course, the pharmacy wouldn&#8217;t send it unless they were paid for the first month. They had verbal approval from the insurance, but the actual claim was denied. Talk about a cliff hanger!</p>
<h3>Update January 25, 2005</h3>
<p>I&#8217;ve been on the growth hormone for 7 weeks now, and see no change in my tiredness and fatigue. A couple weeks ago, I thought there was a bit of improvement. I even exercised a little again, but that was short lived.</p>
<p>I feel like my stomach is getting bigger, and Tom says my face is looking more Cushie again. Maybe from the cortisone I&#8217;ve been taking since October. I can&#8217;t wait until my next endo appointment in March to increase my GH. I want to feel better already!</p>
<h3>Update March 21, 2005</h3>
<p>My endo appointment is over. My endo thinks that my weight gain is from the cortisone, as I&#8217;d suspected. He cut that amount in half to see if I would stop gaining weight and maybe lose a little. Because of the adrenal insufficiency, I can&#8217;t completely stop it, thought. My IGF-1 was &#8220;normal&#8221; so I can&#8217;t increase the GH.</p>
<p>I made a vacation of this trip, though. A friend and I stayed 2 nights in a hotel and had some fun. The hotel had an indoor pool, hot tub, sauna, exercise room, wireless internet access, free shuttles to Johns Hopkins and the Baltimore Inner Harbor. We had a good time for ourselves, so I came home from this endo trip more tired than ever. Over the weekend, I took 7-hour naps on both Saturday and Sunday. Hopefully, that will get better as my body adjusts to the loser dose of Cortef.</p>
<h3>Update September, 2005.</h3>
<p>My last endo appointment I had lost some weight but not enough. My energy levels are down again, so my endo increased the cortisone slightly. I hope I don&#8217;t start gaining again. I don&#8217;t see any benefit with the growth hormone.</p>
<h3>Update January, 2006.</h3>
<p>A new year, a new insurance battle. Once again, they don&#8217;t want to pay so I have to go through the whole approval process again. This involves phone calls to Norditropin (the company that makes the GH), my endo, iCore Specialty Pharmacy (the people who prepare and ship the meds) and my insurance company. This is turning into a full-time job!</p>
<h3>Update April 14, 2006</h3>
<p>I just went to see my endo again on Thursday to see how things are. Although I know how they are &#8211; I&#8217;m still tired, gaining a little weight, getting some red spots (<a href="http://www.cushings-help.com/definitions.htm#Petechiae">petechiae</a>) on my midsection. He also noted that I have a &#8220;little&#8221; buffalo hump again.</p>
<p>My endo appointment is over. Turns out that the argenine test that was done 2 years ago was done incorrectly. The directions were written unclearly and the test run incorrectly, not just for me but for everyone who had this test done there for a couple years. My endo discovered this when he was writing up a research paper and went to the lab to check on something.</p>
<p>So, I&#8217;m off GH again for 2 weeks, then I&#8217;m supposed to be retested. The &#8220;good news&#8221; is that the argenine test is only 90 minutes now instead of 3 hours.</p>
<h3>Update June 2, 2006</h3>
<p>Wow, what a nightmare my argenine retest started! I went back for that Thursday, April 27, 2006. Although the test was shorter, I got back to my hotel and just slept and slept. I was so glad that I hadn&#8217;t decided to go home after the test.</p>
<p>Friday I felt fine and drove back home, no problem. I picked up my husband for a biopsy and took him to an outpatient surgical center. While I was there waiting for the biopsy to be completed, I started noticing blood in my urine and major abdominal cramps. I left messages for several of my doctors on what I should do. I finally decided to see my PCP after I got my husband home.</p>
<p>When Tom was done with his testing, his doctor took one look at me and asked if I wanted an ambulance. I said no, that I thought I could make it to the emergency room ok &#8211; Tom couldn&#8217;t drive because of the anaesthetic they had given him. I barely made it to the ER and left the car with Tom to park. Tom&#8217;s doctor followed us to the ER and became my new doctor.</p>
<p>They took me in pretty fast since I was in so much pain, and had the blood in my urine. They thought it was a kidney stone. After a CT scan, my new doctor said that, yes, I had a kidney stone but it wasn&#8217;t the worst of my problems, that I had kidney cancer. Wow, what a surprise that was! I was admitted to that hospital, had more CT scans, MRIs, bone scans, they looked everywhere.</p>
<p>My open radical nephrectomy was May 9, 2006 in another hospital from the one where the initial diagnosis was made. My surgeon felt that he needed a specialist from that hospital because he believed preop that my tumor had invaded into the vena cava because of its appearance on the various scans. Luckily, that was not the case.</p>
<p>My entire left kidney and the encapsulated cancer (10 pounds worth!) were removed, along with my left adrenal gland and some lymph nodes. Although the cancer (renal cell carcinoma AKA RCC) was very close to hemorrhaging, the surgeon believes he got it all. He said I was so lucky. If the surgery had been delayed any longer, the outcome would have been much different. I will be repeating the CT scans every 3 months, just to be sure that there is no cancer hiding anywhere. As it turns out, I can never say I&#8217;m cured, just NED (no evidence of disease). This thing can recur at any time, anywhere in my body.</p>
<p>I credit the argenine re-test with somehow aggravating my kidneys and revealing this cancer. Before the test, I had no clue that there was any problem. The argenine test showed that my IGF is still low but due to the kidney cancer I cannot take my growth hormone for another 5 years &#8211; so the test was useless anyway, except to hasten this newest diagnosis.</p>
<h3>Update August 19, 2006</h3>
<p>I&#8217;ve been even more tired than usual now that I&#8217;m off GH. I can&#8217;t take my arthritis meds, or anything like Excedrin (no NSAIDs) so my joints are nearly always bothering me and I have to wait out any headaches. I&#8217;m also just getting over a UTI.</p>
<p>I just had my 3 month post-op CT scans and I hope they come out ok. At first I was grateful that I wouldn&#8217;t have to have chemo or radiation come to find out that neither has been discovered yet which works well with kidney cancer. Apparently, it can resurface any time for the rest of my life. I&#8217;m hoping that some of the chemo clinical trials show some good results so I can get this thing before it metastasizes somewhere.</p>
<p>I&#8217;m having trouble sleeping (1:20 AM here, now) although I&#8217;m always tired.</p>
<p>Whine, whine!</p>
<p>On the plus side &#8211; I survived the kidney cancer surgery, and it&#8217;s almost vacation time!</p>
<p>Even vacation will be bittersweet, though. 2 years ago, <a href="http://www.cushings-help.com/memoriam_koziol.htm" target="_blank">Sue</a> went with us on vacation. She had a great time and she had asked if she could go with us again this year. Of course, we had said yes&#8230;</p>
<h3>Update October 26, 2006</h3>
<p>I went to see my Johns Hopkins endo again last week. He doesn&#8217;t &#8220;think&#8221; that my cancer was caused by the growth hormone although it may well have encouraged the tumor to grow faster than it would have.</p>
<p>He was happy to see that I had lost 22 pounds since my last 6 month visit. Not all of that was from surgery! He reminded me that I can take more cortisone, but I hate to do that because I gain weight so fast when I take more.</p>
<p>He thought that my blood pressure was low &#8211; for me, not for &#8220;normal&#8221; people. He took my pressure several times, lying down, getting up quickly. But I never got dizzy. Maybe my pressure increase was temporary when the cancer started. All these mysteries I have that no one can answer.</p>
<p>My energy levels are lower than when I was on GH, and they&#8217;re lower again because I had the adrenal removed, because of my panhypopit, because of my cancer even though currently NED, it can come back at any time, because of my GH deficiency&#8230;</p>
<p>Every day is a challenge getting up, doing something useful, doing something without arthritic pain and weakness, having the energy to finish even something &#8220;easy&#8221;. I&#8217;m starting to get very depressed over all this. If this is the way the rest of my life is going to be, why bother?</p>
<p>People mostly assume that everything is OK with me because I am not getting chemo or radiation and because I look so &#8220;healthy&#8221; (thanks to the Cushing&#8217;s/daily Cortef!). They figure that if there was any real danger of the cancer metasticizing that I would be on chemo, like other cancer patients do. They don&#8217;t understand that I have to wait and pray because there are no approved ajuvant treatments. If/when my cancer returns, it&#8217;s just more surgery. If I&#8217;m &#8220;lucky&#8221; enough and get to a stage 4 THEN I can have chemo/radiation as a pallative measure.</p>
<h3>Update December 2006</h3>
<p>According to my PCP my blood pressure is truly low. But can I go off these bp meds? Nope&#8230;because I have only one kidney, these would have been prescribed anyway as a support for my kidney. Can&#8217;t win!</p>
<p>I am maintaining my weight loss but none of my clothes are loose, I can&#8217;t fit in anything smaller. Belly is still there. So the weight loss is just a numbers game.<a name="march2007"></a></p>
<h3>Update March 2007</h3>
<p>I posted this on the message boards in late February but many missed it and are still asking&#8230;</p>
<blockquote><p>Walking Wounded, the sequel!Wow! I guess I haven&#8217;t been on the boards for 2 weeks or so. I see that I have dozens of PMs to read, many emails to check/answer and I missed at least one person who had ordered an Awareness Bracelet that I never sent.</p>
<p>My Monday appointment with the surgeon went ok. He took blood/urine and was going to send me for CT scans. That day, as I recall was very cold here with a wind chill of something like -7o</p>
<p>I came home and taught my piano students, as usual.</p>
<p>Tuesday morning I woke up and my back hurt. I assumed it was from the cold combined with my arthritis. That got worse throughout the day so I called my PCP. Naturally, he was away until the 19th but had a substitute I could see Wed. I didn&#8217;t want to wait because the pain was excruciating by now and I couldn&#8217;t get out of chairs or sofa without using the walker I had from surgery to help pull me up.</p>
<p>So I called my husband at work and he said he&#8217;d come home and take me to the ER. I had been supposed to have handbell rehearsal that night so I called my director and let her know I wouldn&#8217;t make it. She assumed that Tom (husband) would be home sooner than he was, so she got the associate pastor from my church and they headed to the ER to wait with us.</p>
<p>They asked about me at the front desk and were assured that I was there although they didn&#8217;t see me. I guess they thought I was with the triage nurse or something. So they waited. Then a Melissa O&#8217;Connor was called&#8230; My people realized it wasn&#8217;t me and left.</p>
<p>Finally, Tom got home &#8211; he had really important work to do (sarcastically said!) and I got to the ER about 6:00PM. Last time I was there, they told me I had kidney cancer, so I was hoping that there was no rerun of that experience!</p>
<p>The triage nurse let me wait on a gurney instead of one of the hard plastic chairs in the waiting room.</p>
<p>Unfortunately, they also wanted blood and urine. My only good arm had been used by the neurosurgeon the day before. Luckily the nurse finally got the IV in to my other arm. I guess my veins are a bit better post-Cushing&#8217;s. No collapses this time.</p>
<p>They did CT scans (so I don&#8217;t have to do my surgeon&#8217;s ones &#8211; YEA!) and XRays and found basically nothing except lung nodules that hadn&#8217;t grown much since my last scan &#8211; say what? I didn&#8217;t know I HAD lung nodules.</p>
<p>I got some percocet and they sent me home with orders to see the sub PCP in 2 days. The percocet didn&#8217;t do much except make me sleepy/groggy. My days were spent watching TV and sleeping. Even sitting at the computer or the table was too painful.</p>
<p>Tom took me to the sub PCP on that Friday and she&#8217;s sending me to physical therapy.</p>
<p>Until yesterday, I didn&#8217;t drive at all, and the weather has been awful, so I haven&#8217;t even called about the PT yet.</p>
<p>There is still a little pain, and I need the walker to get out of bed, but I&#8217;m doing much better.</p>
<p>A weird side thing &#8211; Tom was driving my car since it&#8217;s a van and much heavier than his midlife crisis sports car. The van does much better with snow and ice that we had the last couple weeks.</p>
<p>One day he got it home, slammed the door &#8211; and the window slid down into the door. Somehow it got off the tracks. Luckily the glass didn&#8217;t break. So that was a bit of a problem and $$. No one had ever even heard of this problem before.</p>
<p>Anyway, I hope to get to your PMs, emails and whatever ASAP!</p>
<p>It feels a bit weird being here &#8211; like my baby has grown up, left home and doesn&#8217;t need me anymore. Can you have Empty Nest Syndrome for message boards? LOL</p></blockquote>
<p>I have started a new Blog called Cushing’s, Cancer &#38; Music and I plan to keep that updated a little more often than this bio. Rather than the actual events that have taken place, I am letting some of my pent-up feelings out. <strong>NOTE:</strong> This blog was destroyed by hackers in June 2008 <img src='http://s0.wp.com/wp-includes/images/smilies/icon_sad.gif' alt=':(' class='wp-smiley' />  I don&#8217;t know when or if I will ever have the energy to rebuild it. Find the newest blog here: <a href="http://cushingshelp.blogspot.com/" target="_blank">Cushing&#8217;s and Cancer Blog</a></p>
<p><a title="Alaskan Cruise, 2007" href="http://www.cushingsonline.com/Alaska/formal006.jpg" rel="lightbox"><img alt="Alaskan Cruise, 2007" src="http://www.cushingsonline.com/Alaska/formal006.jpg" width="100" align="left" border="0" hspace="10" vspace="3" /></a>On an Alaskan cruise, June 2007. <a href="http://www.cushingsonline.com/alaska/alaska.htm" target="_blank">More about the cruise.</a></p>
<p>As of <a href="http://cushings.invisionzone.com/index.php?showtopic=21918" target="_blank">the Chicago meeting in July, 2012</a> I have met <a href="http://cushings.invisionzone.com/index.php?showuser=1447#" target="_blank">90 members of the message boards (listed as Friends)</a> in addition to Cushies who are NOT on the boards! I have travelled to meet Cushies at NIH in Bethesda, MD, Ohio, Pennsylvania, Oklahoma, Michigan, Wisconsin, Illinois, New York, Florida, Tennessee, Connecticut, UVa in Southern Virginia and Oregon.</p>
<p>I was so stupid way back in 1987 when I thought that all my troubles would be over when my pituitary surgery was over.</p>
<p>And so I wait&#8230;</p>
<p><a href="http://www.cushings-help.com/forms/comments.htm"><img alt="" src="http://www.cushings-help.com/maryo3.gif" width="144" height="60" border="0" hspace="3" vspace="2" /></a></p>
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<p><a href="http://www.cushings-help.com/forbes.htm" target="_blank"><img alt="" src="http://www.cushings-help.com/forbes.gif" width="80" height="100" align="left" border="0" hspace="10" vspace="4" /></a><a href="http://www.cushings-help.com/">Cushings-Help.com</a>, and quotes from <a href="http://www.cushings-help.com/maryos_story.htm">MaryO</a> was included in the Cover Story of this issue of <strong><em>FORBES</em> </strong>Magazine, <em>BEST OF THE WEB</em> Issue. The title: &#8220;<strong>Use With Care</strong>&#8221; by Matthew Schifrin and Howard Wolinsky.</p>
<p>Hopefully, this kind of mainstream exposure will help increase awareness for this often misunderstood disease. <a href="http://www.cushings-help.com/forbes.htm">Read the article here</a>.</p>
<p><img alt="MaryO" src="http://www.cushings-help.com/transcripts/images/maryo-chat.jpg" align="left" hspace="8" vspace="6" /><a href="http://www.blogtalkradio.com/CushingsHelp" target="_blank">VOICE Chat</a><br />
Listen live to an archived interview from Thursday, January 3, 2008 with MaryO. Achived audio is available through <a href="http://cushie.info/index.php?option=com_content&#38;view=article&#38;id=10&#38;Itemid=30" target="_blank">the Podcast page of this site</a>, <a href="http://www.blogtalkradio.com/CushingsHelp/2008/01/03/Interview-with-MaryO-Cushings-Helpcom-founder" target="_blank">BlogTalkRadio</a>, the <a href="http://cushingshelp.libsyn.com/" target="_blank">CushingsHelp Podcast</a> or through <a href="http://itunes.apple.com/podcast/cushingshelp-cushie-chats/id350591438" target="_blank">iTunes Podcasts</a></p>
<p>Jayne and Robin also hosted a Special Cushing&#8217;s Awareness Day live chat April 8, 2008. This chat included a lot of comments about MaryO. <a href="http://www.blogtalkradio.com/CushingsHelp/2008/04/09/SPECIAL-Cushings-Awareness-Day-Voice-Chat" target="_blank">Archives are available</a>.</p>
<p><a href="http://www.blogtalkradio.com/CushingsHelp" target="_blank"><img id="btnListenLive" alt="Listen to CushingsHelp on internet talk radio" src="http://www.blogtalkradio.com/img/180x60_listenlive.gif" border="0" /></a></p>
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<h5><a href="http://www.cushings-help.com/intro.htm">HOME</a><a> &#124; </a><a href="http://www.cushings-help.com/toc.htm">Contents</a><a> &#124; </a><a href="http://www.cushings-help.com/search.htm">Search</a><a> &#124; </a><a href="http://www.cushings-help.com/911.htm">Adrenal Crisis!</a> &#124; <a href="http://cushie.info/index.php?option=com_content&#38;view=article&#38;id=33:abbreviations&#38;catid=16:general-info&#38;Itemid=33" target="_blank">Abbreviations</a><a> &#124; </a><a href="http://www.cushiewiki.com/" target="_blank">CushieWiki</a><a> &#124; </a><a href="http://www.cushings-help.com/definitions.htm">Glossary</a><a> &#124; </a><a href="http://cushings.invisionzone.com/index.php?">Forums</a><a> &#124; </a><a href="http://www.cushings-help.com/support.htm">Donate</a><a> &#124; </a><a href="http://www.cushings-help.com/interactive.htm">Interactive</a><a> &#124; </a><a href="http://www.cushings-help.com/toc.htm#bios">Bios</a><a> &#124; </a><a href="http://www.cushings-help.com/bio-list.htm">Bios Listed by Date</a><a> &#124; </a><a href="http://www.cushings-help.com/forms/bio.htm">Add Your Bio</a><a> &#124; </a><a href="http://www.cushings-help.com/toc.htm#pituitary">Pituitary</a> &#124; <a href="http://cushie.info/index.php?option=com_content&#38;view=article&#38;id=70&#38;Itemid=51">Locations</a><a> &#124; </a><a href="http://www.cushings-help.com/toc.htm#media">Media</a> &#124; <a href="http://www.cushings-help.com/media.htm#forbes">Forbes Magazine</a> &#124;<a href="http://www.cushings-help.com/maryos_story.htm">• MaryO</a> &#124; <a href="http://www.addisonshelp.blogspot.com/">Addison&#8217;s Help Blog</a> &#124; <a href="http://www.scribd.com/doc/85814817/Addison%E2%80%99s-Disease">Addison&#8217;s Disease Knol</a> &#124; <a href="http://cushingshelp.blogspot.com/" target="_blank">Cushing&#8217;s and Cancer Blog</a> &#124; <a href="http://cushie.info/index.php?option=com_content&#38;view=category&#38;id=34&#38;Itemid=70" target="_blank">Guest Speakers</a> &#124; <a href="http://www.blogtalkradio.com/CushingsHelp/2008/01/03/Interview-with-MaryO-Cushings-Helpcom-founder" target="_blank">Archived Interview</a> &#124; <a href="http://www.blogtalkradio.com/cushingshelp" target="_blank">Archived Interview The Coffee Klatch &#124; </a><a href="http://www.blogtalkradio.com/CushingsHelp/2008/04/09/SPECIAL-Cushings-Awareness-Day-Voice-Chat" target="_blank">Cushing&#8217;s Awareness Day Testimonial</a> &#124;<a href="http://cushingshelp.blogspot.com/2009/10/participatory-medicine.html" target="_blank">Patient Empowerment</a> &#124;<a href="http://www.cushie.info/blog/category/cushings-awareness-challenge/" target="_blank">2012 Cushing&#8217;s Awareness Challenge</a> &#124;<a href="http://patientcommando.com/stories/how-i-became-an-e-patient-through-cushings-disease/" target="_blank">On Patient Commando</a> &#124; <a href="http://www.cushie.info/blog/2013/04/18/cushings-on-capitol-hill-cushings-awareness-challenge/" target="_blank">MaryO On Capitol Hill</a> &#124;</h5>
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<title><![CDATA[Pruning Leads to Restoration]]></title>
<link>http://pushingjesus.wordpress.com/2013/04/29/pruning-leads-to-restoration/</link>
<pubDate>Mon, 29 Apr 2013 14:29:45 +0000</pubDate>
<dc:creator>Jack</dc:creator>
<guid>http://pushingjesus.wordpress.com/2013/04/29/pruning-leads-to-restoration/</guid>
<description><![CDATA[  Father, There was a path that seemed so promising— A road that looked like it was Your way, but it]]></description>
<content:encoded><![CDATA[  Father, There was a path that seemed so promising— A road that looked like it was Your way, but it]]></content:encoded>
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<title><![CDATA[Chapter 11]]></title>
<link>http://memoirsofthemisunderstood.wordpress.com/2013/04/29/chapter-11/</link>
<pubDate>Mon, 29 Apr 2013 04:12:07 +0000</pubDate>
<dc:creator>rldamery</dc:creator>
<guid>http://memoirsofthemisunderstood.wordpress.com/2013/04/29/chapter-11/</guid>
<description><![CDATA[“Why are you here?!” Liam signs to me, his eyes crazed with anger and I stand there. “I’m here to he]]></description>
<content:encoded><![CDATA[<p><i>“Why are you here?!” Liam signs to me, his eyes crazed with anger and I stand there. </i></p>
<p><i>“I’m here to help, I couldn’t let you do this on your own, you are not alone in this, I love you!” I say back and he shakes his head. </i></p>
<p><i>“Go away Riley, I don’t want you here, you shouldn’t be here!” his fingers sign angrily and he turns and walks away.</i></p>
<p>&#160;</p>
<p>I come awake in a panic, my throat hurts and I can only imagine it was from yelling, from fighting back tears, my eyes feel bruised from the tears I cried the night before and I lay back down, thankful it is still dark out, that means I have at least an hour to sleep before I have to get up from work. I think back to the dream and seeing Liam signing to me. Everything is falling away like clouds being pushed away by wind. Pieces just out of reach as to what we were arguing about and why I was in the UK with him. The thing that strikes me as the most odd is that he was signing. Liam was born almost two months premature, and his lungs suffered. Even as an adult now, they have never been full size and they seize up when he tries to speak. He can hear perfectly but it requires too much lung capacity to speak, so he signs to communicate. In all the years I’ve known Liam, he’s never signed in any of my dreams of him. This thought puzzles me.</p>
<p>There was something else too, something else that should mean something to me in the dream, but sleep is pulling me back under before I can focus on it.</p>
<p>&#160;</p>
<p>&#160;</p>
<p>The new medicine doesn’t seem to have any bad side effects except I have to take it at night because it knocks me out, other than that it seems to be working just as well as the Cymbalta did. Work has been hell this week and I am increasingly grateful that Friday has arrived and it is almost the weekend. Today is moving day at work, and I am saddened by this but surprisingly enough, I’m looking forward to it.</p>
<p><i>You just want to have William to yourself. </i> The Hag says and I chuckle in my head.</p>
<p><i>What’s wrong with that? </i>I question her and she is speechless that I’ve responded to her.</p>
<p>All moved, only took thirty minutes and I am highly aware of the fact that I do not like my new desk. It is out in the open, no cubicle walls and I feel like everyone is staring at me. Worse than that, Carl is right beside me which means all of his annoying questions, which used to go to Fran, are now coming to me.</p>
<p>“I miss you,” Amy says with a sad smile as she comes up to my new desk.</p>
<p>“Awww, I miss you guys too,” I respond. She looks around and wrinkles her nose.</p>
<p>“It’s so open,” she whispers.</p>
<p>“I know, I’m in hell,” I laugh. “I have to be quiet, it’s like being a friggin’ library!” we both laugh and I am content that I have at least made an impact enough to be missed from the area I was in before.</p>
<p>The day progresses on, various people, Mark, John, and Harold especially, all come to visit. John remarks on how quiet it is downstairs without me and not in a good way. I am in awe of this almost love that is coming from them.</p>
<p>“Why do they keep coming up to visit you?” Carl asks finally and I shake my head.</p>
<p>“Because I’m me,” I reply sarcastically.</p>
<p>“Well yea, but it hurts a guy’s feelings. They all come up and talk to you and just say hey to me real quick before they leave.”</p>
<p>I cannot tell him that it’s because he is a first rate douche, no I have to maintain some professionalism. So I opt for the easiest partial truth.</p>
<p>“I’ve worked side by side with these people for six years Carl, you’ve been here three months. It takes time to cultivate relationships like we have.”</p>
<p>He rolls his eyes at me and I know he knows it’s a bullshit response. Fact is, I value my job, it’s the only reason I haven’t been honest with him.</p>
<p>&#160;</p>
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<p>Friday night is simple, an easy night with my daughters, no Savannah. I still have no idea when she will come back, and I know it will be soon simply because it’s been a week and she has to be running out of money. Lemar won’t support her for long because he will require her to actually get a job. I put the girls to bed shortly after ten and leave to pick up Tyler. I fake having a massive migraine just so he will leave me alone and just let me drop him off and leave. As I drive back home I feel that nagging again, that need to cry and I turn up the stereo, crank up the most upbeat song I can find, and I ignore it.</p>
<p>&#160;</p>
<p>&#160;</p>
<p>It is Saturday morning, about 10 AM and I am on our front porch, scrolling through facebook posts while having a morning cigarette. The girls are up, finishing up a game before we start cleaning for the day and I glance up to see a black sedan driving down the road, vaguely aware it looks like Dad and Kay’s car before I glance back to my phone and back to facebook. I hear a car pull in the drive only to realize that it was Dad and Kay’s car. I don’t know whether to feel anger or surprise. I hate when people just pop in unannounced.</p>
<p>“Hey,” I say, walking to the car as she rolls down the window and I realize she is alone.</p>
<p>“I’ve been calling for three days and all I get is an odd busy signal,” she says and I wrinkle my nose.</p>
<p>“That’s weird, we’ve been here,” I reply.</p>
<p>“Well I’m going to Warren to the outlet malls and wanted to take the girls, that’s the only reason I just dropped in,” she says. We talk for a while and she lets me know in her own way that my father is out of town for work this weekend and she would like to take the girls overnight. This is Kay’s way of respecting my boundaries of the girls not being able to stay the night if my dad is there, without admitting that she believes he molested Marie. They are my rules, and she knows them. Luckily she’s a better person than my father, because she doesn’t try to overstep them and as long as she gets time with the girls, she is fine with that.</p>
<p>“I don’t mind,” I say as Lyla opens the door and sees her car and comes squealing outside.</p>
<p>“Grandma!!!!” she shrieks and runs to Kay, giving her hugs. The girls pack a bag and they are gone in under fifteen minutes, now I am faced with a dilemma. Do I clean, which is what I’d been planning to do when I came outside, or do I write, now that I have the house to myself?</p>
<p>I opt for writing and for the next few hours I am lost in a world of make-believe, a world I love getting lost in.</p>
<p>3PM hits and I yawn as I type the final sentence on the end of the third chapter I’ve written. I grin at the screen and opt to procrastinate on doing any housework until I’ve napped. Turning on Netflix I fall asleep with Silas curled up next to me, purring loudly.</p>
<p>&#160;</p>
<p>&#160;</p>
<p>Something wakes me up, I’m not sure what it is exactly, but something is wrong. I can feel it in my bones and I feel that panic as I sit up and look around. Silas yowls loudly at the disturbance and I check that all is well with the house. I don’t smell any smoke, the phone isn’t ringing, there is no knocking at the door. I shrug it off and reach for my iPhone, clicking on the display and I see an email from Liam.</p>
<p>Odd because I haven’t talked to him in weeks, and it’s late enough in the day that he shouldn’t be emailing me, in the UK it’s after midnight, he should be asleep.</p>
<p>&#160;</p>
<p><i>I know Ive been away, sry. </i></p>
<p><i> </i></p>
<p><i>Riles, I dnt no what to do right now, Lily has cancer, not even 30 yet, how is that fair? She shud be worrying about familys and babys and stuff like that, not this. Im here with her now, just her and hher guy. She dont wanna tell mum, wants to injoy her holidays that just started. She told me monday after she had a biopsies or sumthin. Sry to be dumpin this on u, didnt no who else to talk to.</i></p>
<p><i> </i></p>
<p><i>Liam x</i></p>
<p><i> </i></p>
<p>The words blind me, make my throat seize up and all that I hear is an empty, mournful howl. It takes me a moment to realize the sound is coming from me, the pain, the grief, all of it. Lily is Liam’s baby sister, she is 27, and his sole reason for being alive right now. I really believe if she weren’t around, he would have offed himself a long time ago. But the big brother has to protect her, it’s what Liam is rather known for, burying his own shit and taking on the world.</p>
<p>I stare at the screen, the words glaring at me and all I see is one line.</p>
<p><i>She told me Monday.</i></p>
<p><i>She told me Monday.</i></p>
<p><i>She told me Monday.</i></p>
<p><i>She told me Monday.</i></p>
<p><i>Monday.</i></p>
<p><i>Monday.</i></p>
<p>MONDAY!</p>
<p>This brings another realization, one that breaks me down even more and I cannot stop as the sobs encompass me, as I start crying to the point of having to throw up and I barely make it to the bathroom before I collapse on the floor, still crying.</p>
<p>Once I have had a moment to calm down, to slowly compose myself, I message Maddie. Maddie had promised when I split with Bryan, that she would still be around, that I was her sister, regardless. Funny, I haven’t been able to get a hold of her in over two months. I know she’s fine, I know she sees my messages on Facebook, but she never replies.</p>
<p>I quickly type to her, watch as the message scrolls up that she’s read it on facebook, but she doesn’t reply. As much as I hate to admit it, I’m drowning. I call the only other person I know that will understand.</p>
<p>Savannah.</p>
<p>She answers on the second ring and I start bawling before I can even explain. She calms me down as I start to ramble.</p>
<p>“I let that bastard tell me it was Satan, let him convince me I was doing something wrong. I ignored it! All the signs Savannah, I ignored all of them! All of them!” I howl in grief and she is trying to make sense of what I’m telling her. I finally calm down enough to tell her that I knew on Monday something was wrong, something terrible was happening to someone and I blocked it because of our dad, and then I tell her about Liam.</p>
<p>Now here is one of the many reasons I love Savannah. She tells me exactly what I need to hear. She makes me feel justified in being angry at our Dad, sympathizes with my plights, whether or not she believes in them. That is just the person she is.</p>
<p>“I don’t know why you listen to him Riley, he hasn’t done shit for you in how long? And you still need his approval in everything,” she says finally. She has a point, one I will never admit to. We get off the phone and I’m still at a loss of what I should do. I’m so conflicted I can’t even begin to think, let alone write Liam back. So I do what I do best.</p>
<p>I pray.</p>
<p>I very simply, in all of my hysterical sobbing wonder, ask God to show me. Show me exactly what this is. If it is demonic as dad says, then tell me, if it isn’t and it is a gift, then show me, but just that I need confirmation of some sort.</p>
<p>I open up an app on my phone, one that shows random bible verses and the one that comes up brings me to my knees, crying even harder.</p>
<p><i>Colossians 3:23-24 – Whatever you do, work heartily as for the Lord and not for men knowing that from the Lord you will receive the inheritance as your reward. You are serving the Lord Christ.</i></p>
<p>&#160;</p>
<p>I blink through my tears, at the screen, saving the verse and I pray harder. Pray for guidance, pray for Liam and Lily, pray for my father… most of all I just give in to everything going on in that moment.</p>
<p>And again I notice, the little girl and the Hag seem to be finding peace in the fact that I’ve gotten answers. Granted they are answers that anyone who has never seen the work of God’s hand in their life will discount as coincidence, but answers that suddenly bring me more peace than I’ve experienced in a long time.</p>
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