Tags » Dystonia

I'll take that as a compliment.

The interesting thing about dystonia is that it is so often hidden, so often silent. We have friends that have known my husband for decades and never knew he was suffering from a neurological disorder or was in pain. 612 more words



Starting tomorrow there will be an online petition available to sign in the hopes of making September a Nationally recognized Awareness month for Dystonia in America. 222 more words

The Importance of Giving Back

So I know I’ve only been doing this full time entrepreneur thing for a month, but it has come time to take a break. Am I giving up? 175 more words


Guilty Happiness

Today I felt terrible guilt at my own reaction of happiness.

My little 1.5 year old had a bad day. With Dystonia a bad day is debilitating pain. 579 more words


Horse Riding and Dystonia. Progress Report 27

Progress Report 27. Hmm. Progress? Perhaps not quite the right word. As the weather’s been so good, I’ve spent a lot of time out hacking, mainly due to extreme nagging from the Offspring who likes going in the school as much as a dose of homework. 204 more words


To the mom on the other side of the curtain

To the mom on the other side of the curtain:

My son was 2 1/2, and I was six months pregnant with my second. They say infancy GERD usually goes away by one year and in some cases it can take two years. 1,174 more words


The Beginning.

The beginning.

In the hours following my son’s birth we knew something was different. When all the other babies were cozy and asleep in their swaddles, ours was crying, flailing and visibly uncomfortable. 324 more words