Tags » Dystonia

Against all Diversity-Disability-Dystonia.

Its not very often that someone inspires me, but today I have just discovered a painter who is blind. He is a complete inspiration to any one suffering a disability, his name is Sargy Mann. 687 more words

Lianne Morgan

wednesday's run.

Oh, what’s that you say? I get to have a good hair day and a good run day all in one day? I feel so spoiled. 273 more words

Wobbly Life

Really this should have been my first ever post as it explains why I am writing this blog;

My story is long and the journey to diagnosis for both vasculitis and dystonia was a battle and difficult. 258 more words


We were exhausted. Tired and emotionally raw. Our little boy was finally stable and home from the hospital. He was in so much pain that I was actually surprised and relieved he’d finally fallen asleep. 1,562 more words

Clinging To Hope

Frustration. Worry. Pain. Hope. Joy. A selection of the emotions that over the last few weeks I have experienced. I have improved leaps and bounds since I started new treatment for Chronic Neurological Lyme Disease several weeks ago, there is a long way to go but the improvement are more than I could dared to have hoped for. 414 more words


i ran and damn it feels good.


And not just because I’ve been having awesome sauce hair days. Hi. But because I RAN THREE NIGHTS IN A ROW. 256 more words