Tags » Dystonia

second round of botox.

Here we go again.

Yesterday morning was my second round of Botox injections for my Dystonia. My appointment wasn’t until 8 a.m. but I was anxious the whole night and got up just after 5 a.m. 381 more words

Glimmer of light at the end of the tunnel.

I finally feel like there is a light at the end of what felt like a never-ending tunnel. Last week I attended an appointment at a local private hospital to see whether they would treat me for Chronic Neurological Lyme Disease. 325 more words


September - Dystonia Awareness month!

Friends, I am inviting you to please sign the online petition asking the White House to recognize SEPTEMBER as the “Dystonia Awareness Month.” Nothing else is needed but your signature – no ice bucket – no donation – no other support – just a signature.  470 more words

In English

Joshua's Story

Here is Joshua’s story. Yes, there are men with dystonia too. He has proven himself time and time again to be an encouragement and a help to others who suffer with dystonia. 385 more words

Day to Day

I sat and watched

Year after year

Your addiction take over

You were left with no fears

You struggled and hurt

The pain never stopped… 148 more words



Lost and losing it

Every twisted position

Each distorted transition

I can feel myself

Slipping away

It’s taking my life

Starting with my energy and my age… 58 more words