You know it’s bad enough having a movement disorder no one’s ever heard of–and not only suffering real problems that others perceive as being the complaints of a whiner and malingere… more →
Random and Sundry ThingsDebbi wrote 3 weeks ago: You know it’s bad enough having a movement disorder no one’s ever heard of–and not … more →
Debbi wrote 3 weeks ago: John Steele Gordon puts our rapidly changing technology into perspective with this interesting blog … more →
Debbi wrote 1 month ago: I’d like to take this opportunity to share with you, a slide show about what it’s like t … more →
Debbi wrote 1 month ago: Dystonia is certainly making the rounds these days. Not only was it featured on Oprah, the Today Sho … more →
Debbi wrote 2 months ago: Even though dystonia is a rare disorder about which little is known, the Web has quite a bit to offe … more →
Debbi wrote 2 months ago: Wednesday, May 6 (Dystonia Advocacy Day) was quite a busy day for me–and a multitude of others … more →
Debbi wrote 2 months ago: Just spent the day talking to my Congressional reps (well, really their aides) about dystonia-relate … more →
Debbi wrote 2 months ago: Once again, the media has taken notice of dystonia. They’ve found someone else who has it … more →
Debbi wrote 3 months ago: Seems like perfect timing. Only weeks before I hold my first fundraiser for dystonia–the Freed … more →
Debbi wrote 3 months ago: Man, this has been quite the week for raising awareness of dystonia. First, “Oprah” on T … more →
Debbi wrote 3 months ago: Got this great news from my contacts with both the Baltimore and DC-area dystonia support groups. On … more →
Debbi wrote 6 months ago: I can’t believe it! Excellent! Hurray!! (And, it’s high time.) These are some of the thi … more →
Debbi wrote 6 months ago: I was pleased to find out recently that there’s a book on yoga for people with movement disord … more →
Debbi wrote 6 months ago: Up until now, everything I’ve read about dystonia says it’s related somehow to the basal … more →
Debbi wrote 6 months ago: I’m pleased (and a bit proud) to see that a dystonia patient in my area was one of four winner … more →
Debbi wrote 6 months ago: I can really appreciate this op-ed about how charitable organizations are suffering due to the econo … more →
Debbi wrote 7 months ago: FYI–I’ve set up a blog for the fundraising poker run I’m organizing (with help fro … more →
Debbi wrote 8 months ago: First, I’d like to let people know about a fundraising bike ride for dystonia being put on by … more →
Debbi wrote 1 year ago: I’ve cut back to switching off between my blogs and I know I posted here yesterday, but this n … more →