Blogs about: Dystoniamovement Disorders

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Dystonia--I Swear I'm Not Making This Up!5 comments

Debbi wrote 3 weeks ago: You know it’s bad enough having a movement disorder no one’s ever heard of–and not … more →

Tags: Health/Wellness

Some Thoughts About Progress

Debbi wrote 3 weeks ago: John Steele Gordon puts our rapidly changing technology into perspective with this interesting blog … more →

Tags: Business/Economic, technology

A Moving Depiction of Dystonia

Debbi wrote 1 month ago: I’d like to take this opportunity to share with you, a slide show about what it’s like t … more →

Tags: Video

Tyler's Hope: CNN Discovers Dystonia!

Debbi wrote 1 month ago: Dystonia is certainly making the rounds these days. Not only was it featured on Oprah, the Today Sho … more →

Tags: Health/Wellness, Video

Dystonia Sites of Note

Debbi wrote 2 months ago: Even though dystonia is a rare disorder about which little is known, the Web has quite a bit to offe … more →

Tags: blogs, Health/Wellness, Video

More on Dystonia Advocacy Day2 comments

Debbi wrote 2 months ago: Wednesday, May 6 (Dystonia Advocacy Day) was quite a busy day for me–and a multitude of others … more →

Tags: Government/Politics, Health/Wellness, Legal, Politics

Dystonia Advocacy Day6 comments

Debbi wrote 2 months ago: Just spent the day talking to my Congressional reps (well, really their aides) about dystonia-relate … more →

Tags: Government/Politics, Health/Wellness

'The Doctors' Talk to a Dystonia Sufferer3 comments

Debbi wrote 2 months ago: Once again, the media has taken notice of dystonia. They’ve found someone else who has it … more →

Tags: Health/Wellness, Television, Video

'Dateline' Does Dystonia

Debbi wrote 3 months ago: Seems like perfect timing. Only weeks before I hold my first fundraiser for dystonia–the Freed … more →

Tags: blogs, Health/Wellness, Motorcycles, Philanthropy, Television

Dystonia on 'Today Show'

Debbi wrote 3 months ago: Man, this has been quite the week for raising awareness of dystonia. First, “Oprah” on T … more →

Tags: Television, Health/Wellness, Video

Dystonia on 'Oprah'2 comments

Debbi wrote 3 months ago: Got this great news from my contacts with both the Baltimore and DC-area dystonia support groups. On … more →

Tags: Television, Health/Wellness

Dystonia Featured on Today Show4 comments

Debbi wrote 6 months ago: I can’t believe it! Excellent! Hurray!! (And, it’s high time.) These are some of the thi … more →

Tags: media, Television, Journalism, Health/Wellness

Yoga for Dystonia2 comments

Debbi wrote 6 months ago: I was pleased to find out recently that there’s a book on yoga for people with movement disord … more →

Tags: Books, Health/Wellness

A Dystonia Breakthrough?

Debbi wrote 6 months ago: Up until now, everything I’ve read about dystonia says it’s related somehow to the basal … more →

Tags: Science, Health/Wellness, Research

Dystonia Sufferer Wins Contest, Helps Vets

Debbi wrote 6 months ago: I’m pleased (and a bit proud) to see that a dystonia patient in my area was one of four winner … more →

Tags: Philanthropy, Health/Wellness, Pharmaceuticals

Giving When Times Are Tough

Debbi wrote 6 months ago: I can really appreciate this op-ed about how charitable organizations are suffering due to the econo … more →

Tags: Commentary, Business/Economic, Philanthropy, blogs

Freedom Ride for Dystonia2 comments

Debbi wrote 7 months ago: FYI–I’ve set up a blog for the fundraising poker run I’m organizing (with help fro … more →

Tags: Philanthropy, blogs, Health/Wellness, Events, Fundraisers, Motorcycles

A Couple of Dystonia Fundraisers

Debbi wrote 8 months ago: First, I’d like to let people know about a fundraising bike ride for dystonia being put on by … more →

Tags: Philanthropy, Events

PSA to Raise Dystonia Awareness

Debbi wrote 1 year ago: I’ve cut back to switching off between my blogs and I know I posted here yesterday, but this n … more →

Tags: Disability, Broadcasting, Video


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