Blogs about: Ehlers Danlos
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EDS Alert Newsletter No. 35
• Blog Posts/Online Diaries • Blog: 30 Things About My Invisible Illness You May Not Know « Practicing Intentional Gratitude • Blog: A coworker asked me to post… • Blog: Bad Glue: Ugh this sound… more →
EDS Alert Newsletter
My First Post!
wrote 1 day ago: I have been thinking of starting some blogs for a few years now but this is my first blog and first … more →
Semantics, Syndromes, and Symptoms
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wrote 1 day ago: First off, I would lake to thank everyone who commented here or elsewhere for your kind words of enc … more →
Life as a Zebra
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wrote 1 day ago: Life as a Zebra I’ve pinched this from the HMSA facebook page, because this is a brilliant des … more →
New Beginnings
wrote 2 days ago: Maggie’s First Adventures These first two weeks with Maggie have been great! Maggie does not h … more →
Olkaortoosi, vartalokiinnitteinen
wrote 3 days ago: Viimeinkin oikea olkapääni on runtattu sinne missä sen olisi tarkoituskin olla. Eilisestä asti olen … more →
...And the Verdict Is
wrote 4 days ago: Hello everyone! Today I had my appointment with my autonomic specialist to go over the results of al … more →
PLAYING DOCTOR OVER SHARK FIN SOUP
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wrote 5 days ago: Image Source: http://www.chinavista.com Getting a diagnosis for a chronic illness is everything. It … more →
EDS Meet Up
wrote 6 days ago: So today I met up with fellow EDSers for the first time. A group of us had been put in touch via EDS … more →
Tosi kova meno, tiukka etukeno... kups!
wrote 1 week ago: Huuh, mikä päivä. Aloitettiin aamu piänen futistreenillä (tunti ulkona), tultiin pikalounaalle, peru … more →
Soaked!
wrote 1 week ago: Today, we needed to go shopping. It was nice and dry until we got about ten minutes from the house, … more →
EDS awareness month
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wrote 1 week ago: So here’s some EDS awareness for you…http://hypermobility.org/ - This is the site of the … more →
Book Review - Managing Ehlers-Danlos (Type III) - Hypermobility Syndrome by Isobel Knight
wrote 1 week ago: ‘Don’t worry if you end up teaching someone who’s double-jointed. It just means t … more →
Toeing the line
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wrote 1 week ago: Last night, my toe decided to just pop out of joint. My poor husband, who’s been through quit … more →
Awareness Months...Disease and Diet.
wrote 1 week ago: Its Ehlers- Danlos awareness month. As a sufferer, its my job to help promote our little insignia … more →
Back to Writing :)
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wrote 1 week ago: As I sit here in the early hours of the morning again with a cuddly, but far from sleep, little boy … more →
May is Ehlers Danlos Syndrome Awareness Month!
wrote 2 weeks ago: I posted this photo on Facebook Yesyerday… I though it would create a visual snap shot of some … more →
Gastroparesis
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wrote 2 weeks ago: It seems somewhat paradoxical that my gastric emptying time is so slow. When I say slow, I mean it … more →
Concentration
wrote 2 weeks ago: It’s amazing how exhausting concentrating on simple things is. I’ve got to watch how I w … more →
Drugs are fun and I love my GP!!!!
wrote 3 weeks ago: So, the diagnosis is no “hard damage” so my bones are all in one piece for the moment. N … more →
