Blogs about: Epidermolysis Bullosa
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Ancient Celtic Knots inspire scientific breakthrough - Science News
wrote 1 week ago: Minute knots and chains have industrial and medical uses Scientists have devised a new molecular tec … more →
Hillary is Back!
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wrote 1 week ago: Every time Hillary is in town, for sure there is a whirlwind of activity happening in Helping HOW he … more →
The "Butterfly Children"...
wrote 1 month ago: Kids with EB (Epidermolysis Bullosa) have affectionately become known as “Butterfly Children … more →
My Butterfly...
wrote 1 month ago: I’m new to blogging. I’ve never really done it before so I’m not exactly sure … more →
My college years and future
wrote 1 month ago: I haven’t written anything in a while, but today I wanted to share my thoughts and dreams. As … more →
!Advance Tabco EB-SS-244 48-in Work Table w/ Open Cabinet, 24-in Wide, Stainless, Each
wrote 1 month ago: You can buy !Advance Tabco EB-SS-244 48-in Work Table w/ Open Cabinet, 24-in Wide, Stainless, Each h … more →
!Advance Tabco EB-SS-243 36-in Work Table w/ Open Cabinet, 24-in Wide, Stainless, Each
wrote 1 month ago: You can buy !Advance Tabco EB-SS-243 36-in Work Table w/ Open Cabinet, 24-in Wide, Stainless, Each h … more →
!Advance Tabco EF-SS-3610 120-in Work Table w/ Open Base & 1.5-in Rear Edge 36-in W, Each
wrote 1 month ago: You can buy !Advance Tabco EF-SS-3610 120-in Work Table w/ Open Base & 1.5-in Rear Edge 36-in W, … more →
Scioderm Receives FDA Breakthrough Therapy Designation For Epidermolysis Bullosa
wrote 1 month ago: Scioderm announces on April 29, 2013, that the company’s investigational topical cream, SD-101, rece … more →
In your skin
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wrote 3 months ago: Profile Name: Ingrid Jageneau Country: Belgium Occupation: Activist Quote: “To recognize epide … more →
Bad Collagen leads to painful sores in kids with epidermolysis bullosa - with photos and links!
wrote 3 months ago: This was on CNN a week or so ago, but because I had so much to write on last week, I’ll post this to … more →
Rear Diease Day
wrote 3 months ago: What’s My Rear Disease? Epidermolysis Bullosa “The Worst Disease You’ve Never Hear … more →
A child's struggle inspires drive for cure
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wrote 3 months ago: Click link below picture . Rafi Kopelan is a typical 5-year-old. She’s mastered Candyland. She … more →
Making Progress
wrote 3 months ago: Excited the I refuse campaign for EB is putting the story I wrote on there website!!!!! … more →
Golden Corral SHAME ON YOU!!
wrote 3 months ago: This is absolutely ridicules. In Michigan well-known restaurant Golden Corral denied service to a … more →
[VIDEO] WELCOME TO - SD FT GINO MARLEY
wrote 4 months ago: … more →
A little sunshine...
wrote 4 months ago: I remember when I first saw that bubbly smile…the joy that emanated from this little lady … more →
A gift to the EB Community...
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wrote 4 months ago: I remember when I first starting advocating for those with EB. I was a bit overwhelmed and to be ho … more →
Where have you been my butterfly friend?
wrote 5 months ago: Today a little butterfly flew by me. I thought to myself where have you been little butterfly. You c … more →
