Blogs about: Hae
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Second C1 Inhibitor Treatment Approved for HAE
The FDA released this statement on October 9th: The U.S. Food and Drug Administration today approved Berinert, the first treatment for acute abdominal attacks and facial swelling associated with a rar… more →
Faerie♥Kat's Faerie♥Korner
Second C1 Inhibitor Treatment Approved for HAE
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Faerie♥Kat wrote 2 months ago: The FDA released this statement on October 9th: The U.S. Food and Drug Administration today approved … more →
Be a Faerie♥Good Friend
Faerie♥Kat wrote 3 months ago: Have you been a faerie♥good friend lately? It’s easy to do and it won’t cost you anything except a … more →
Cat Owners! Take Heed!
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Faerie♥Kat wrote 3 months ago: My friend, Maddwitch, found an interesting article about the affects of clumping litter on the diges … more →
Annual HAEA Conference Scheduled for 2009
Faerie♥Kat wrote 4 months ago: Announcing the 2009 National Patient Conference and International Leadership Forum October 23-25, 20 … more →
Health Update
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Faerie♥Kat wrote 4 months ago: I saw my new nephrologist today to find out the results of the blood tests he ordered last week. Alt … more →
Why We Love Jakarta
Titania Veda wrote 6 months ago: Published Jakarta Globe, 19 June 2009 Vanessa Hendriadi On Monday, Jakarta celebrates its 482nd ann … more →
Down But Never Out
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Faerie♥Kat wrote 6 months ago: A short post to let you know my recovery from the extreme HAE agony and distress my body underwent t … more →
Perfect Proof -- Just Not the Booze Kind!
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Faerie♥Kat wrote 6 months ago: For those of you who have had the tenacity to follow the trials and tribulations of my most recent h … more →
And That's When the Iceberg Showed Up...
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Faerie♥Kat wrote 7 months ago: Dear Friends Yesterday I found out that there was a possibility that either (1) I had been dehydrate … more →
And Then a Truck Ran Me Over...
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Faerie♥Kat wrote 7 months ago: I received a call from my immunologist’s office two days ago, Tuesday, at noon. He ordered me … more →
Traveling with Cinryze - Research Update
Faerie♥Kat wrote 8 months ago: Here are the results of my research so far into traveling with Cinryze, as previously promised: Firs … more →
Traveling with Cinryze
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Faerie♥Kat wrote 8 months ago: One of the things your Cinryze specialty pharmacy can provide is assistance on how to travel with Ci … more →
SUPER JUNIOR (Come Back Stage in MuBank: Sorry Sorry + Waiting Room + Why I Like You)
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aagizerrific wrote 9 months ago: FINALLY!!!!!!!!!!!!!! They Are Back! and FIRST on Music Bank at 9pm, March 13, 2009. They Open their … more →
Call for New Vices
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Faerie♥Kat wrote 10 months ago: I went out with my friends Friday to celebrate Mardi Gras (yes, we know we were early, but having a … more →
Why is Cinryze So Expensive? -- Correction
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Faerie♥Kat wrote 11 months ago: When I’m wrong, I’m wrong, and I’m not afraid to tell the world. I managed to get … more →
Getting Your Swell Facts Straight
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Faerie♥Kat wrote 11 months ago: I cannot remember how many times, but it’s far too many, people with Hereditary Angio Edema (H … more →
More to Cinryze Than Meets the Eye
Faerie♥Kat wrote 11 months ago: I received my second shipment of Cinryze today and I have more information and tips to share. Unlike … more →
Why is Cinryze So Expensive?
Faerie♥Kat wrote 11 months ago: In the past, when HAE patients imported C1 Inhibitor from overseas, the product they imported was Be … more →
The Sticky World of the Huber Needle and Accessing Your Port
Faerie♥Kat wrote 11 months ago: When accessing a portacath, sterile procedures must be followed. The following steps reflect my pers … more →
