Tags » HLHS

More Than a Song

Anyone who really knows me knows that I’m a music nut: I love all types of music and have really enjoyed discovering new stuff over the last couple years.   1,141 more words


More Heroes than a Comic-Con

You’ve seen me post about Camp Luck on here before:

It stands for Lucky Unlimited Cardiac Kids, and it’s a great program for our heart warriors.   348 more words


For Those About to Nom: We Salute You

Hey friends: as promised, I would keep you posted on Nolan’s progress with the g-tube wean.  First thing’s first, I have to admit that this is a major challenge, so if you’re thinking about weaning your child off a g-tube, prepare for a marathon…an uphill marathon…an uphill marathon where you’re carrying a boulder….you get the picture. 456 more words


Fourteen years ago today I was blessed with a second chance. After having seven years of not-so-great sobriety I picked up a drink after my dearest friend committed suicide. 928 more words


Heart Dads and PTSD

Can dads experience PTSD while their child recovers from intense heart surgery?  In short, yes.

You’ve read this blog, and you might be going through it yourself, so I don’t have to tell you that having a heart baby is tough.   638 more words


My CHD book has been published!

I wrote a book titled Raising a Heart Child: A Parent’s Guide to Congenital Heart Defects. It is based on Corey’s journey through the world of CHD. 449 more words

Dear G-Tube: This is Your Eviction Notice

As of writing this entry, Nolan is 19 months old and very soon to be 20 months old.  If you recall from waaaaay back in this blog, he had a G-Tube placed for feeds just before he went home from the Norwood Procedure.   866 more words