Tags » HLHS

The Fontan completion!

I write this message as I sit at home watching Sam play with his Christmas presents. Yes that’s right, we were at home for Christmas!! … 1,885 more words

Hospital And Surgeries

Preemptive Love

In today’s post I will be reviewing the book “Preemptive Love: Pursuing Peace One Heart at a Time” by Jeremy Courtney.  In the end of the post I will talk a bit about this year’s project for CHD Awareness Week, it will all tie together, I promise! 1,356 more words


The 'F' word. Fontan explained.

Friends always ask me to explain what this impending Fontan surgery entails.

Being more of an arts person than a science person I have struggled to answer it with the degree of certainty a perfectionist like me demands. 382 more words

Bi-directional Glenn Shunt

Sobering up

Do tear ducts ever dry up? If so, this week would be a great time for that to happen. Over the last five days we have turned into blubbering messes. 766 more words


After a decade, there will be tears

There is no such thing as insignificant growth. That’s my new mantra. Colman measured 1.6 centimeters taller than he had on our previous trip to Houston. 1,193 more words

Post Traumatic Stress Disorder


I am sure that this blog may be ridiculed by some but certainly not by a parent who has a child with a life threatening health condition.  432 more words

The last four years in an 800 word nutshell

Ted was born with Hypoplastic Left Heart Syndrome. Essentially, half a heart.  There is no cure and his treatment is called a 3 staged palliation. 772 more words

Bi-directional Glenn Shunt