Tags » HLHS

breath in. breath out.

We are coming out of our haze. The shock is wearing off, although it surprises us every once and awhile. We are both finding it easier to write about what’s happening/how we’re doing than answering voicemails and even texts. 306 more words


Keeping healthcare professionals in business this season

Colman and I are headed to Houston this morning for bloodwork, echocardiogram, X-rays and an appointment in transplant clinic. I’m anxious to see what the doctor has to say at this appointment. 713 more words

Happy Heart Day, Nolan!

On this day two years ago, Nolan went in for his first major surgery – the Norwood Procedure.  I remember the absolute terror I was in the day before and every hour the day of as we received updates in the surgical waiting room.   216 more words


the best laid plans...

It is difficult to plan for something you’ve never experienced and even more so something you can’t even conceptualize. We do our best to absorb knowledge, research gear, prepare a space and talk things out, however, you can never be 100% prepared. 362 more words


Cause for Celebration: The Twins Turn Two!

Today is a big, big, big day: Nolan & Grant are two years old!  Man, I can’t believe how fast time flies.  Not a day goes by where I look at them and I just can’t believe that we have twins; lately I’ve been saying I just can’t believe they’re going to be two years old.   232 more words


To the Mother with Empty Arms

The day after delivering Bennet I was discharged to go home. In the midst of the whirlwind surrounding him, the fight to get him stable, they went through the normal procedure of releasing me from the hospital. 945 more words

Congential Heart Defect

Boy with rare heart defect, NFL star Greg Olsen bond at Vikings game

@gregolsen88 @MayoClinicHLHS @MayoClinic great to see Greg Olsen with the smith family. #HLHS pic.twitter.com/MXvwvX06M2

— Tim Nelson MD,PhD (@tjnelson01) November 30, 2014

A young boy with a rare heart ailment had the trip of a lifetime Sunday when he was the guest of honor at the Minnesota Vikings’ home game against the Carolina Panthers.

405 more words