Tags » Hydrocephalus

Cambs 0-5 years support group @PeterboroughTel @PeterboroughCC #SpinaBifida #Hydrocephalus

Event Date/Time: October 29, 2014 10:00AM – 12:00PM
Location: Shine HQ, 42 Park Road, Peterborough, PE1 2UQ

A support group for parents/carers of children aged 0-5 years who have spina bifida and/or hydrocephalus/IIH. 114 more words


It's #Spinabifida and #Hydrocephalus Awareness Week!

Shine’s annual Spina bifida and Hydrocephalus Awareness Week aims to raise awareness of the conditions, while celebrating the fantastic achievements made by its energetic and growing community. 231 more words


So, let's add NTDs to our list of global emergencies

So, it’s Shine’s Spina Bifida and Hydrocephalus Awareness Week ​(unless you’ve come to this blog late, in which case read on because what I am about to say will stand the test of time!). 1,197 more words

Spina Bifida

Weary but heartened- update Oct 15

“Come to me, all you who are weary and burdened, and I will give you rest.”  Matthew 11:28

This has been one of my favourite verses for a long time, and one I have come to often in this journey.   644 more words


A Mother's Plea

This is a story I found on the Forbes site and I thought I would re-post. In the United States they have Hydro walks for fundraising and education. 46 more words


Schroedinger's cat and genetic testing

I don’t pretend to understand quantam physics, but Schroedinger’s thought experiment has always fascinated me. If I understand it in very basic form, there is a cat in a box with potentially lethal items. 532 more words

October 8 2014

Today we had a visit to Southampton General for a neuro outpaitnet appointment with Mr Duffill.  The appointment changed from 1615 to 1330 so that HC could transport her more easily.   347 more words