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Blogs about: Hydrocephalus

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November 19, 2008

angelseashore wrote 5 days ago: I’m finding it therapeutic to let myself remember the tragic events of last year so I’m … more →

Tags: Grief, Pregnancy Loss, poor prenatal diagnosis, D & E, birthday in heaven, angel day, pregnacy loss, Depression, Termination

a day at the hospital.3 comments

sherrilee wrote 5 days ago: Miles had his eye surgery today. We have known this day would come since he was about 4 months old. … more →

Tags: Miles

rewind1 comment

angelseashore wrote 6 days ago: It’s 7 a.m. on November 18th of last year.  My husband and I drove to my third ob-gyn’s … more →

Tags: Pregnancy Loss, poor prenatal diagnosis, D & E, angel day, Medical termination, Grief

Just Believe1 comment

okhydrocephalussupport wrote 6 days ago: I thought I’d post today about an organization formed by Jenn Bechard and her mother, Just Bel … more →

Tags: Charity, Christmas, Cysts, Just Believe..., Seizures

my favorite book.4 comments

sherrilee wrote 1 week ago: Here is a video of Miles and I reading his favorite book. You can hear him say a lot of new words (i … more →

Tags: Miles

okhydrocephalussupport wrote 1 week ago: Allright! I wasn’t going to, but a friend, Andrea, did this for her support group, to make it … more →

Tags: Meetings, facebook, social networking

cruising.4 comments

sherrilee wrote 1 week ago: Miles is still not pulling himself up as much as he was about a month ago, but once he is  up he now … more →

Tags: Miles

Riley, in my dreams

angelseashore wrote 2 weeks ago: Shortly after Riley went to heaven, many told me that she would “appear” to me as many s … more →

Tags: Grief, Pregnancy Loss, Future, poor prenatal diagnosis, D & E, angel day, Dreams

isolation2 comments

angelseashore wrote 2 weeks ago: I’ve been living and breathing in isolation.  This is going to be a horribly difficult month … more →

Tags: Grief, Pregnancy Loss, medical interruption, poor prenatal diagnosis, angel day, Depression

Excited... 1 comment

okhydrocephalussupport wrote 3 weeks ago: We have a place and a time for our first Oklahoma Hydrocephalus Support Group meeting! Here’s … more →

Tags: Meetings, Support Groups, Oklahoma

Summer/Fall 09 HA Pathways:

jennbechard wrote 1 month ago: HA JOINS FORCES WITH NEWFANGLED GIZMOS FACEBOOK “Realizing that Facebook is soooo 2008, we hav … more →

Tags: Hydrocephalus Association, Social Media

Why We Do What We Do1 comment

jennbechard wrote 1 month ago: We strongly believe that every life has a purpose, every trial has a reason, and each new day has en … more →

Tags: Detroit Hydrocephalus Walk, Awareness, Hydrocephalus Association, Impact, Purpose

Miles updates.8 comments

sherrilee wrote 1 month ago: Well, we have a few updates from the last couple of weeks.  We recently met with Dr. Legge (Ophthalm … more →

Tags: Miles

First Detroit Hydrocephalus Support Group2 comments

jennbechard wrote 1 month ago: Imagine living in constant fear of your child’s life. Picture the terror you would feel hearin … more →

Tags: Support Group, Detroit, Detroit Hydrocephalus Support Group, Hydrocephalus Association, Hydrocephalus Support Group, Support

The Fundraising Begins on 12/2!

jennbechard wrote 1 month ago: It is time to mark your calendars for one of the many 2010 Detroit Hydrocephalus WALK fundraising ev … more →

Tags: Detroit Hydrocephalus Walk, fundraiser, Hydrocephalus Association, 2010, Awareness, benefit, Cure, Detroit, Donate

Tuesday / 10.13.091 comment

andreajunelleb wrote 1 month ago: Well, 2 appointments down for this week – 2 more to go!! Today we visited Rowan’s Eye Do … more →

Tags: blogs, Cookie Swallow, modified barium swallow, Children's Hospital of Pittsburgh, eye surgery

Rowan's Daily Journey ending 10.12.091 comment

andreajunelleb wrote 1 month ago: Well this is the FIRST “OFFICIAL” post on Rowie’s NEW blog URL! yay! What I WANTED … more →

Tags: blogs, Therapy, PT, WordPress, GabrielsLife

couple new tricks.3 comments

sherrilee wrote 1 month ago: Miles has a couple new tricks! Most people might not think they are a huge deal…but we like to … more →

Tags: Miles

Jenn's Blog - Another friend with Hydrocephalus

andreajunelleb wrote 1 month ago: Hi all! Sorry I haven’t written for a few days!  My 7yr old son Anthony has been here non stop & … more →

Tags: Blogroll, blogs, Detroit, Just Believe...


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