Tags » Hydrocephalus

Update sept 30

Since the last time I posted I’ve had about 3 biophysical profiles and they have all gone really well.  The baby’s lateral ventricles have not grown at all in the past 6-8 weeks, which is amazing!   642 more words


Holding, Number 5 on the Defense

Mac has learned a new sign over the last few weeks. J and I are football fans, I grew up watching the San Francisco 49ers play, and J loves the Alabama Crimson Tide, so we are most happy during Sept. 601 more words


The J.P. Story: Mixed blessings

Dad’s note: In honor of J.P.’s 12th birthday, I’m writing “The J.P. Story,” which looks back at our journey through birth and now approaching teen-hood. I hope you enjoy. 583 more words

About Us

Spina Bifida 101

This blog is very important to me, especially given it’s timing. Spina Bifida Awareness Month is October. Here’s my story:

I was born with myelomeningocele (pronounced “Milo My Ninja Seal”) Spina Bifida at the L1, L2 region of my spine. 1,323 more words

Bladder Augmentation

Aeva's little friend: Ellie the Eel

(Whatever the situation is, always look your best.)

Don’t worry, we are not giving her a pet Eel. It seems like this symbolizes what had just happened recently. 432 more words

Mother's Blog

@ShineUKCharity runners part of #GNRMillion celebrations @Great_Run

With the race organisers marking their one millionth runner, the 2014 Great North Run promised to be a memorable race. This was the first IAAF event to reach such an incredible achievement. 560 more words