Tags » Hydrocephalus

Brainstorm - Part Two

Will I wake up normal?  Is there a chance that this surgery could lead to unintended consequences?  What if they can’t get the shunt in place and find that there is no plausible way for me to have the device inserted – does that mean this is my life forever?  1,192 more words

New Season, New Directions...

Hello everyone!  I’m so sorry for the mahoosive delay between my last post and now.  I’ve been busy with work, sorting out shunts to send overseas and had not one but two laptop disasters; 1,632 more words


Milton Keynes Shine Drop In #SpinaBifida #Hydrocephalus @mk_citizen @mkcouncil

Event Date/Time: April 10, 2014 10:30AM – 12:00PM
Location: Macintyre at The Point, Central Milton Keynes, MK9 3NB

Anyone living with IIH, spina bifida or… 78 more words


Brainstorm - Part One

By now, I hope you have noticed one common theme in all of my entries – if you haven’t yet, you’ll have to wait until part two of this post for the revelation… 1,106 more words

Berkshire Family Day! #SpinaBifida #Hydrocephalus @getreading @westberkshire

Event Date/Time: April 26, 2014 2:00PM – 4:00PM
Location: The Oasis, 21 Baker Street, Reading, RG1 7XT

“An opportunity for parents and children under the age of 16 to meet and socialise.” 75 more words


YOU'RE invited to Sunday Lunch in Bedford! #SpinaBifida #Hydrocephalus @bedfordtweets

Event Date/Time: April 13, 2014 12:30PM – 3:00PM
Location: The Orchard, 1 Riverfield Drive, Bedford MK14 0UE

Come and join Shine’s Support and Development Worker, … 125 more words


Long time, no post! (Whoops)

Hi everyone, 

I didn’t realise how long it had been since my last post! Such a bad blogger. Haha. Seriously though, it’s been a chaotic few months! 172 more words