Tags » Hypoplastic Left Heart Syndrome

Brotherly Love: Montco Girl's Heart Defect Inspires Fundraiser

By Ukee Washington

PHILADELPHIA (CBS) — A Montgomery County couple whose daughter faces a life-threatening birth defect is stepping up to help people in the same situation. 344 more words


More Than a Song

Anyone who really knows me knows that I’m a music nut: I love all types of music and have really enjoyed discovering new stuff over the last couple years.   1,141 more words


More Heroes than a Comic-Con

You’ve seen me post about Camp Luck on here before:

It stands for Lucky Unlimited Cardiac Kids, and it’s a great program for our heart warriors.   348 more words


For Those About to Nom: We Salute You

Hey friends: as promised, I would keep you posted on Nolan’s progress with the g-tube wean.  First thing’s first, I have to admit that this is a major challenge, so if you’re thinking about weaning your child off a g-tube, prepare for a marathon…an uphill marathon…an uphill marathon where you’re carrying a boulder….you get the picture. 456 more words


Heart Dads and PTSD

Can dads experience PTSD while their child recovers from intense heart surgery?  In short, yes.

You’ve read this blog, and you might be going through it yourself, so I don’t have to tell you that having a heart baby is tough.   638 more words


Dear G-Tube: This is Your Eviction Notice

As of writing this entry, Nolan is 19 months old and very soon to be 20 months old.  If you recall from waaaaay back in this blog, he had a G-Tube placed for feeds just before he went home from the Norwood Procedure.   866 more words


HLHS Dad on the Radio!

Last week I had a really awesome opportunity to share my experiences as a heart dad on a very special internet radio show called Heart to Heart with Anna ( 497 more words