Tags » Hypoplastic Left Heart Syndrome

Finding Purpose

Purpose.  Meaning.  I think it’s the great mystery in life.  When you grow up in church, and you’re in youth group and stuff, they always talking about “Finding God’s Purpose For Your Life” (aka “calling”).  808 more words


A Better Introduction

I am Tracy, a 29-year-old G2P1 lady at 37 weeks gestation. I am carrying a fetus identified to have hypoplastic left heart syndrome. 

This is the intro to the letter that Annie’s cardiologist wrote to the NICU staff for instructions about her care during and after delivery.  402 more words

Owen's Story

Owen – 5 years old

Owen was born on June 25th, 2008 with HLHS (Hypoplastic Left Heart Syndrome).  My newborn son was born with half a heart, a condition not compatible with life. 1,141 more words


Easy? Who Needs Easy?

One of the most frustrating parts of having a heart baby is that nothing is just easy.  I’m not talking about the big stuff, like surgeries, caths, and whatnot.  553 more words


San Jose Sharks Make Sam Tageson's Wish Come True

Mercury News–A 17-year-old youth hockey player from Martinez with a life-threatening heart condition is getting a taste of life in the NHL on Tuesday. 266 more words


When I went to the Camp Luck Annual Symposium, one of the coolest sessions they had was the Heart Sibling Panel.  I was particularly interested in this since, well, Nolan has 2 other brothers…not to mention I wanted to get a glimpse into how siblings feel through the heart journey.  369 more words


Meet another HLHS Dad: Matt Hammitt

Believe it or not, I was introduced to the term “Hypoplastic Left Heart Syndrome” before we even knew my wife was pregnant.  I’m 99% sure I was on the Christianity Today website and was reading an article about Matt Hammit, who is the lead singer of the band Sanctus Real: 633 more words