Tags » Hypoplastic Left Heart Syndrome

Sometimes You Just Need a Laugh

Hey fellow heart parents!  Listen, we all know that life is tough with juggling our heart warriors’ needs, work, play, school, etc.  So this post isn’t meant at all to focus on those things…in fact, today’s post is to help us all remember to take a step back and smile and laugh a little bit in spite of some of the challenges in our life.   186 more words


When Is God Good?

If I could write a letter to me and send it back in time to myself circa 2013, to whoever I was pre- life-shattering news day…it’d sound a lot like a letter I might write to you, circa today, pre- life-shattering news in your life. 431 more words

Attention Heart Dads: You are Mighty

Hey you…Heart Dads.  Yeah, I’m talking to you.  Ever feel like you’re the forgotten one sometimes?  Hey it’s ok, it happens…our kiddos are the stars (and rightly so), Heart Moms are Super-Moms (and rightly so) and Heart Dads?   1,385 more words


Annie's Mom

Oh, YOU’RE Annie’s mom!

Oh, you’re ANNIE’S mom!

Oh, you’re Annie’s MOM!? I know, I look young enough to be her sister, right?, I’ve resisted replying to this intonation. 581 more words

Brotherly Love: Montco Girl's Heart Defect Inspires Fundraiser

By Ukee Washington

PHILADELPHIA (CBS) — A Montgomery County couple whose daughter faces a life-threatening birth defect is stepping up to help people in the same situation. 344 more words


More Than a Song

Anyone who really knows me knows that I’m a music nut: I love all types of music and have really enjoyed discovering new stuff over the last couple years.   1,141 more words


Dear God, I forgive you for ruining my life!

“Dear God, I forgive you for ruining my life…or at least I’m trying,” I finally confessed last week. Remember when I said that Annie’s heart defect wasn’t anyone’s… 584 more words