Tags » Hypoplastic Left Heart Syndrome

Attention Heart Dads: You are Mighty

Hey you…Heart Dads.  Yeah, I’m talking to you.  Ever feel like you’re the forgotten one sometimes?  Hey it’s ok, it happens…our kiddos are the stars (and rightly so), Heart Moms are Super-Moms (and rightly so) and Heart Dads?   1,385 more words


Annie's Mom

Oh, YOU’RE Annie’s mom!

Oh, you’re ANNIE’S mom!

Oh, you’re Annie’s MOM!? I know, I look young enough to be her sister, right?, I’ve resisted replying to this intonation. 581 more words

Brotherly Love: Montco Girl's Heart Defect Inspires Fundraiser

By Ukee Washington

PHILADELPHIA (CBS) — A Montgomery County couple whose daughter faces a life-threatening birth defect is stepping up to help people in the same situation. 344 more words


More Than a Song

Anyone who really knows me knows that I’m a music nut: I love all types of music and have really enjoyed discovering new stuff over the last couple years.   1,141 more words


Dear God, I forgive you for ruining my life!

“Dear God, I forgive you for ruining my life…or at least I’m trying,” I finally confessed last week. Remember when I said that Annie’s heart defect wasn’t anyone’s… 584 more words

More Heroes than a Comic-Con

You’ve seen me post about Camp Luck on here before:

It stands for Lucky Unlimited Cardiac Kids, and it’s a great program for our heart warriors.   348 more words


For Those About to Nom: We Salute You

Hey friends: as promised, I would keep you posted on Nolan’s progress with the g-tube wean.  First thing’s first, I have to admit that this is a major challenge, so if you’re thinking about weaning your child off a g-tube, prepare for a marathon…an uphill marathon…an uphill marathon where you’re carrying a boulder….you get the picture. 456 more words