Tags » Hypoplastic Left Heart Syndrome

Bennet's Story - The Pulse Ox, The Diagnosis & The End of Our Old Life

August 24th, 2012….

I hate sleeping at the hospital! I had made it very clear that I wanted all the doctors (OB, Pediatrician, etc) to do what they had to do in the morning so that we could be discharged asap. 1,179 more words

Congential Heart Defect

Thankfulness pt. 2: My Family

This is the second entry in a series about thankfulness.

What would I do without my family?  We’re like a basketball team…but with only one tall player.   506 more words


Thankfulness pt. 1: Levine Children's Hospital

We’re coming up on Thanksgiving and I like to use this time to reflect on the things I’m thankful for.  I’m trying really hard not to re-write the last Thanksgiving post I did.   860 more words


2014 Heart Walk & Changes for AHA?

This post is WAY after the fact, but I still wanted to write about it anyway.  In September we got to participate in the American Heart Association Heart Walk.   499 more words


The Club No One Wants To Join

There is a really amazing writer out there named Jon Acuff.  You may have heard of him: he wrote a blog called Stuff Christians Like (still writes it) and it eventually became a book which led to several other great books.   616 more words


Normal Nostalgia

We used to be normal. The kind of normal who fought over Matt getting home late from practice and fought over the rude way that I told him he was late. 400 more words

Ok I'm Gonna Go Full Nerd For a Minute

Ok so am I the only heart dad out there whose kid (feeding tube or not) is kinda like the Borg from Star Trek?  Yes…I went there.   427 more words