Tags » IIH

About a Brain

I don’t intend for this blog to be all about my health issues. I figured that I would explain my crazy brain, though. I have two rare neurological conditions. 358 more words

Our Journey

Milton Keynes Shine Drop In #SpinaBifida #Hydrocephalus @mk_citizen @mkcouncil

Event Date/Time: April 10, 2014 10:30AM – 12:00PM
Location: Macintyre at The Point, Central Milton Keynes, MK9 3NB

Anyone living with IIH, spina bifida or… 78 more words


Cough cough splutter splutter! Aaaarrrrggggghhhh!!! Pain!!!!

Having a chest infection when you have cystic fibrosis (CF) is no laughing matter. But when you have Idiopathic Intracranial Hypertension (IIH), coughing is a whole other experience. 1,178 more words


YOU'RE invited to Sunday Lunch in Bedford! #SpinaBifida #Hydrocephalus @bedfordtweets

Event Date/Time: April 13, 2014 12:30PM – 3:00PM
Location: The Orchard, 1 Riverfield Drive, Bedford MK14 0UE

Come and join Shine’s Support and Development Worker, … 125 more words


It's Back

It has been 5 days since I had a lumbar puncture to relieve some of the pressure and fluids. With the exception of the actual day of the procedure, I felt great for all of 4 days. 209 more words


What is it?

What Is Pseudotumor Cerebri?

Pseudotumor cerebri is a condition in which the pressure around your brain increases, causing headaches and vision problems. The name means “false brain tumor,” since its symptoms are similar to those caused by brain tumors. 550 more words


The Beginning

How it all began…….

Around Thanksgiving (November 2013), I started having headaches, and blurry vision. I thought at first because they were at night I was just tired. 531 more words