Tags » IIH

T minus 13 hours...

Tomorrow at this time, I’ll hopefully be resting and recovering from shunt surgery. These loverly stickers on my head were placed before I had a CT. 85 more words

Our Journey

Too hot to sleep!

Tonight is my twelfth night in hospital and it is blisteringly hot. My fan is on full blast, my window and blinds are open wide and I am wide awake. 399 more words


Health and Doctors

Sadly one place we wanted to go before we headed home we didn’t get to make. We had booked a cabin at Lake Roper for a few days but had to cancel. 2,148 more words

General Ramblings

Pain - my enemy!

As the night ticks by and the morning slowly dawns, I lie in my bed, struggling to sleep, pondering the pains wracking my tired and sick body. 2,026 more words


#Cambs 0-5 years support group - July event @PeterborougTel @PeterboroughCC #SpinaBifida #Hydrocephalus

Event Date/Time: July 9, 2014 10:00AM – 12:00PM

Location: Shine HQ, 42 Park Road, Peterborough, PE1 2UQ

A support group for parents/carers of children aged 0-5 years who have spina bifida and/or hydrocephalus/IIH. 114 more words


Shine High Wycombe Drop IN @wycombedc #SpinaBifida '#Hydrocephalus

Event Date/Time: June 12, 2014 6:30PM – 9:00PM
Location: The Hub, Union Baptist Church, Easton Street, High Wycombe, HP11 1NJ

Come along and meet others living with spina bifida, hydrocephalus, idiopathic intracranial hypertension (IIH) or normal pressure hydrocephalus (NPH). 57 more words