Yesterday, Emma seized all day. We tried the Klonopin but it didn’t seem to work. We put Emma to bed last night expecting to call the neuro this morning. Emma was still sleeping at 9am so I woke… more →
Emma's Gracejmadlc55 wrote 1 month ago: EDITOR’S NOTE: This article was first published this past July. I’m reposting it in joyf … more →
lizcgorman wrote 6 months ago: I sometimes joke with our doctors (Maddie has way too many for a two year old) that I am just going … more →
lizcgorman wrote 6 months ago: I want to take the time to explain what is really happening to Maddie right now. Infantile Spasms so … more →
dadministrator wrote 6 months ago: Something for dog lovers everywhere, parents, and those who care for our children… For more in … more →
caseyblock wrote 1 year ago: About a month ago, we were on vacation in Seattle when Hudson gave us a huge scare. Katelyn, brought … more →
doonidesigns wrote 1 year ago: Lavender embroidery awareness ribbon. Customize/Personalize.. add your own text/message. Embroidered … more →
braindiseases wrote 1 year ago: One of my readers emailed me and asked me to talk a little about infantile spasms and hypsarrhythmia … more →
Andi S wrote 1 year ago: Yesterday, Emma seized all day. We tried the Klonopin but it didn’t seem to work. We put Emma … more →
Andi S wrote 1 year ago: …and some days aren’t. The seizures have started again. We went 2 days being seizure fre … more →
Andi S wrote 1 year ago: …many times that Emma rolls over on her own!!! Not once, but twice, did Emma roll from her bac … more →
Andi S wrote 1 year ago: We had our neuro check-up today. We started off with an EEG at 7am. Although they said Emma didn … more →
Andi S wrote 1 year ago: I am so far behind. I know I have a hard time keeping up with this blog. Thank you all for putting u … more →
JP wrote 1 year ago: West syndrome, otherwise known as infantile spasms, is an uncommon to rare and serious form of epile … more →
JP wrote 1 year ago: Epilepsy is a common chronic neurological disorder that is characterized by recurrent unprovoked sei … more →
Andi S wrote 1 year ago: I write this blog not only as an update for all of our family and friends, but as a journal for Jon … more →
Andi S wrote 1 year ago: I write this blog not only as an update for all of our family and friends, but as a journal for Jon … more →
Andi S wrote 1 year ago: The weekend before Christmas all the way until New Years was a really rough time for us. Here is the … more →
babiesrx wrote 3 months ago: One of the biggest challenges when dealing with drug therapy and children is finding the right dose … more →