Tags » Invisible Disease

living with the invisible diagnosis

I have waited a long time to write about this. The reasons for that wait will probably become clear as I write. In part, it is because I have never (and still do not) feel as if I can articulate the issue as clearly as I would want. 713 more words

New Video Made By M.E. Patients in the UK: Disease Effects Clearly Described

I found a video made in the UK, with M.E. sufferers making short comments regarding the way they have been “hit” with the disease.  These patients very clearly outline the different ways in which this multi-faceted and multi-symptomed chronic illness manifests itself. 55 more words

Health Issues

Even in the Midst of Your Worst Flare... Find the Positive!

What the hell is going on?!! I ask myself this every day. It’s a question that has a bullshit answer. You know exactly what I mean… you’ve been here.  1,077 more words


A Day in the Life of a Person with Chronic Pain

While looking for resources for an article, I came across this YouTube video called “Struggling to be me with chronic pain”. I watched the entire video (it’s not long really) and I REALLY liked the way the actor stated the basics of living with chronic pain. 58 more words

Chronic Pain

No pot for me...

I am sure that everyone with an invisible chronic illness can relate to some of these stories. It appears now that my illness is open to any form of suggestion for diagnostic terms of what people think might cure it. 770 more words

My Invisible Disease

I am writing this blog because I think it is important to share my story so I can vent and because I am sure there are others out there with invisible diseases who feel the same as I do. 637 more words

Defined by our disease.

We say not to let our diseases define us. I think a healthy person came up with that. Because my disease defines every part of me. 312 more words