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Blogs about: Jorrp

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Video on RRP

gardencat wrote 2 weeks ago: Here is a link to a video explaining rrp and a few parents who have children effected  like Taylor. … more →

Tags: chronic illness children, HPV, papillomatosis, Recurrent Respiraory Papillomatosis, RRP, Surgery, Tumors, Disease, papilloma

I was hoping for more.

gardencat wrote 4 weeks ago: Well Taylor had her surgery last week.  I had to go without my husband because he had to be out of t … more →

Tags: chronic illness children, papillomatosis, Recurrent Respiraory Papillomatosis, RRP

Sick

gardencat wrote 1 month ago: Taylor was going to have another surgery this morning.    We canceled it.  She started coughing on M … more →

Tags: Recurrent Respiraory Papillomatosis, RRP, Surgery, chronic illness children, recurrent respiratory papillomatosis

It's been a strong 8 weeks.1 comment

gardencat wrote 2 months ago: These past 8 weeks have been the longest that Taylor has had a strong voice.  It just started a coup … more →

Tags: Recurrent Respiraory Papillomatosis, RRP, chronic illness children, papilloma, recurrent respiratory papillomatosis

Good or bad?

gardencat wrote 8 months ago: Well Taylor got scoped on Friday.  She did so well.  I was so proud of her.  She never flinched or a … more →

Tags: Recurrent Respiraory Papillomatosis, RRP, chronic illness children, Disease, papilloma

No choice

gardencat wrote 8 months ago: Well we taking Taylor in for a scope on Friday.  I really don’t want to put her through that b … more →

Tags: Recurrent Respiraory Papillomatosis, RRP, chronic illness children, papilloma, Voice

That bubble burst fast.

gardencat wrote 8 months ago: Well it’s just over 4 weeks since Taylor’s last surgery, the one where we had a little b … more →

Tags: Recurrent Respiraory Papillomatosis, Disease, papilloma, RRP

Good news and sad news.

gardencat wrote 9 months ago: Taylor had another surgery at the beginning of Feb.  I was having problems with my computer and coul … more →

Tags: Recurrent Respiraory Papillomatosis, Disease, papilloma, RRP, Surgery

New Year

gardencat wrote 11 months ago: It’s been almost 6 weeks since Taylor’s last surgery and her voice is still strong.  I a … more →

Tags: HPV, Recurrent Respiraory Papillomatosis, RRP

I'm lost.

gardencat wrote 1 year ago: Taylor had her surgery and it went well.  She of course still cries when she leaves us to go to the … more →

Tags: RRP

Postponed surgery

gardencat wrote 1 year ago: Well the doctors office called yesterday and wanted to reschedule  her surgery that was scheduled fo … more →

Tags: RRP, Surgery, HPV

Still here

gardencat wrote 1 year ago: It’s been a while since my last post.  Things have been crazy around here this past month and … more →

Tags: RRP, artemisinin

embracing your differences

gardencat wrote 1 year ago: Sometimes when it comes to Taylor and her voice I feel like I’m always trying to explain it in … more →

Tags: RRP, HPV, differences, Voice

School

gardencat wrote 1 year ago: Family and Friends keep asking if I’m putting Taylor in school this year.    “No!” … more →

Tags: RRP

It's hard to talk with others

gardencat wrote 1 year ago: Sometimes it’s hard to talk with others that our daughter has jorrp.    I never know how much … more →

Tags: RRP, HPV

Talking about it.2 comments

gardencat wrote 1 year ago: The other day the girls and I were talking at the lunch counter. My oldest said she wanted to be a a … more →

Tags: RRP, Surgery, papilloma

Sometimes I cry....

gardencat wrote 1 year ago: For all the children afflicted with this disease or any disease for that matter.  But since I’ … more →

Tags: RRP, HPV, Disease

Another surgery

gardencat wrote 1 year ago: Well we decided to go ahead with another surgery. It was a bit sooner then we had originally planned … more →

Tags: RRP, Surgery, Versed, Dim

Not much progress.

gardencat wrote 1 year ago: Well Taylor barely has a voice.  The more she uses it the worse it gets.  She doesn’t understa … more →

Tags: RRP, Fear


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