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Blogs about: Living In Chronicity

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Yes... I'm staring... at your feeding pump!

allysallies wrote 1 year ago: It was near the end of last summer when I took my girls to see a live Signing Time show at a local s … more →

Tags: caregiver, Caregiver Support, Nutrition, social issues, feeding pump, Moms, Signing Time, Special Needs, staring

As if we needed more proof...2 comments

allysallies wrote 1 year ago: Secondhand smoke is deadly. Dangerous. Downright dirty. So what’s the news? Check out this JAM … more →

Tags: cystic fibrosis, social issues, The Science, smoking

Weighing Heavy...1 comment

allysallies wrote 1 year ago: …on my heart and in my mind Tricia, Nate and Gwyneth. You’ll remember a few posts back w … more →

Tags: Caregiver Support, cystic fibrosis, Faith, lung transplant, Prematurity

To Travel...

allysallies wrote 1 year ago: … or not? That was the question. When you “live in chronicity” (or parent someone … more →

Tags: Caregiver Support, cystic fibrosis, Raising the Bar for CF Care, hospital, IV antibiotics, Travel

Sixtyfive Roses ~ The Book: A Sister's Memoir1 comment

allysallies wrote 1 year ago: For those not in the “know” ~ “sixtyfive roses” is often what little kids ca … more →

Tags: Books, Caregiver Support, social issues

To be in love...1 comment

allysallies wrote 1 year ago: … and then be faced with the daunting reality that your beloved lives with a condition that wi … more →

Tags: Uncategorized

Project DOCC ~ Delivery of Chronic Care

allysallies wrote 2 years ago: I serve as one of three volunteer parent coordinators for a program at our local children’s ho … more →

Giving Thanks...in the ER

allysallies wrote 2 years ago: As life would generally have it, we don’t get to pick and choose the most opportune times to r … more →


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