Tags » Living With Chronic Illness

Your Tribe Will Get You Through the Unknown

If you follow my blog you know that I travel around the country for work, months at a time. I work long hours and in return my time off is really off. 574 more words

Greg Katz

Back in the saddle again!!

First off, many thanks to Aerosmith for providing my latest theme song!

In case the title of this post didn’t give it away, I am back up and running again. 512 more words


Symptom-land Remix

The whole gist of this blog is to share my journey with a chronic, progressive illness.  You will notice that I actually don’t spend a lot of time talking about the illness or my symptoms, however. 552 more words

Life With PLS


Disturbances alarm me
an intentional bystander
burying my head,
avoiding conflict.

Strife spills over
butting up against
personal limitations
forgetting myself
I engage
finding unforeseen strength, 83 more words


Humbly Grateful

I wrote a couple of posts about the magic of my Cali trip, and I have to tell you that the magic seems to continue.  Therefore, I have to share. 341 more words

Life With PLS

Day 253 Power

Hope glides
on the wings
of the early morning
dawn; awakening.

new beginnings
bright possibilities.

Hope smiles
electric blue,
sunshine yellow
darkness receded. 89 more words

Day 252 "Discomfort"

I exist
somewhere betweeen
here and the Netherworlds.
a ghost woman,
lost soul.

I exist
on the periphery
inept at

I exist… 68 more words