Tags » Living With MND

Blog 28- Walking through the ancient forest

I have just got back from South Wales … We stayed in a former tavern called George House in Solva which is brilliant cottage with so many antiques and interesting paintings, it is so old but the owners have made it so easy with updated appliances. 863 more words

Living With MND

Blog 27 - Capture the moments

The day outside is magical I feel that spring has that intensity of light,sharp and vivid. We have sunshine every day, Solva is a village just out of St David’s , I think the artists have moved into Pembrokeshire as Cornwall is saturated . 490 more words

Living With MND

Blog 26 - Flowers to fill the house !!,

Blog 26
I have made it to Spring ! The branches of the cherry blossom tree are sprouting leaves from the tight buds. I have spent a few days lying in the garden and listening to the song birds, babbling water and the tinkle of wind chimes with the sun on my face while I read my book. 558 more words

Living With MND

Blog 25 - A bundle of joy

It is while since I wrote a blog, the days have been so full and so I had so much to do despite that my energy is dissipating. 597 more words

Living With MND

Blog 24 - Accept the wheel of change

When I reflect of past events I realise that my life is changing rapidly. Last year I was planning a holiday to Croatia, I hadn’t started my blog as I was getting my head around my diagnosis, I could still eat and drink and I was independently meeting my sons in York as I could walk without falling! 624 more words

Living With MND

Blog 23 - Slow down and focus on the light ,

Over the past few weeks I have recognised when I have dark thoughts I try to turn them around. Today I was filling my syringes with water to put down my monster tube …I have to do this four times a day and fill about 8 syringes each time and I had a thought ‘this is so laborious why can’t I just eat food again” As the thought came to me I recognised that was a negative perspective so I tried to turn it around and thought I have so much time with my sons because of my tube, reframing makes the task easier. 575 more words

Living With MND