Tags » Locked In Syndrome

Teamwork in Healthcare: Michael's Miracle

“Coming together is a beginning. Keeping together is progress. Working together is success.” Henry Ford

Does it really matter if you, or your care giver, are leading the charge as part of your medical team? 599 more words

5 STEPS To Being Your Own Patient Advocate

Proactive Healthcare when Healthcare Professionals Don't Believe You: Michael's Miracle Part II

Last week in my post, I introduced you to my dear friend, Lisa Thelen, and her brother-in-law, Michael. Michael had a massive stroke on September 24, 2014, and all of the initial communication coming from his medical providers was not good at all. 705 more words

5 STEPS To Being Your Own Patient Advocate

Proactive vs Reactive Healthcare: Michael's Miracle

Yes, being proactive in your own healthcare, or in the healthcare of a loved one, DOES matter. And often times can be the difference between life and death. 1,009 more words

5 STEPS To Being Your Own Patient Advocate

Affected by Dysphagia like me? Important new research! #stroke

Could New Research Into Swallowing Function Give Hope to Dysphagia Sufferers?

Swallowing difficulties, broadly categorised under the medical term

Dysphagia, are a debilitating problem for millions of people worldwide. 453 more words

Brainstem Stroke Rehabilitation

dot 29: thought-listening

Telling stories about illness is to give voice to the body.

- Arthur Frank -

I have just read The Diving-Bell and the Butterfly which is the memoir of Jean-Dominique Bauby, trapped inside his body in what is known as Locked-in Syndrome.

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Shock, disbelief & denial - immediately after a severe stroke has struck.

A friend wrote:

I just got an email from a friend to say his wife has had a stroke and is paralyzed. I’ll put the email below.
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Brainstem Stroke Rehabilitation