Tags » Locked In Syndrome

Do you know how to spot a brainstem stroke?

Brain stem strokes can be difficult to diagnose and complex,  according to Dr. Richard Bernstein, assistant professor of neurology in the Stroke Program at  Northwestern University in Chicago. 418 more words

Week 42: The Diving-Bell and the Butterfly

Author: Jean-Dominique Bauby
Pages: 139
Days to finish: 2
Favourite Lines:  “If I must drool, I may as well drool on cashmere.”

“Nothing was missing, except me. 163 more words


Happy, Happy, Happy..... Sad & Disappointed

Yesterday we found out Tony is accepted to the rehabilitation place we wanted in Montreal, the ones that specialize in locked in syndrome.  Initially the news was he could be transferred early next week!   325 more words

What's it like to live with locked-in syndrome? One family's experience

Three years ago, Rabbi Ronnie Cahana suffered a rare brain stem stroke that left him fully conscious, yet his entire body paralyzed. It’s a condition known as “locked-in syndrome.” 3,504 more words


The Diving-Bell and the Butterfly - Jean-Dominique Bauby

UK Publisher: HarperCollins

Length: 144 pages

For Fans Of: The Intouchables, Me Before You, Silvia Plath

Synopsis: At 43, Bauby was defined by success, wit and charisma. 193 more words


Exercise in futility and utter helplessness

Today is October 8th.  Tony has been here at the Enfant Jesus hospital since August 24th.  Yesterday I was told that he’s lost 40 lbs, which I still can’t believe since just 2 weeks ago he’d only lost about 10.   606 more words

Bureaucracy and Bullshit - the Joys of the Quebec Healthcare System

So yesterday the new neurologist (little brunette thing, hate her face) told us the good news – the rehabilitation centre was reviewing Tony’s file and was willing to take him on for a 6 week evaluation period, after which if he’d made enough progress he’d stay on (or else be shipped of somewhere else).   518 more words