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Blogs about: Marfan Syndrome

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Sharing Mayo Clinic in the News

Lee Aase wrote 11 months ago: Darren Rosenberg was one of the first patients (he’s also a Mayo employee) to share his story … more →

Tags: employee stories, Patient Stories, News, Blog, Sharing Mayo Clinic

My Year In Lists, part two: We'll be the man with the broom if you be the guts of the room.2 comments

Lollipop Gomez & Marco Sparks wrote 1 year ago: “Everything that has a beginning has an ending.” Do you remember how bad the Lord Of The … more →

Tags: People who have faces that look like Halloween masks., Net Fu, Ass-slapping good time!, the time is now, Dancing about architecture, Music Reviews, Lollipop Gomez, Hot Chip, 2008

GenoHype! Genetics and Athleticism2 comments

Allie Janson wrote 1 year ago: The ultimate Nature vs. Nurture debate The world of professional sports is littered with examples of … more →

Tags: Her Nature Posts, Genetics, Gene, athlete, athletics, Therapy, doping, Ability, Sports

Walking from the Heart8 comments

ownyourhealth wrote 1 year ago: This fall, I participated in the American Heart Association HeartWalk in Boston. This was significan … more →

Tags: health, chronic pain, Pregnancy, Stroke, Heart Arrhythmia, boot camp, Heart Disease

Hello?3 comments

Mellybeanz wrote 1 year ago: Do you here the echo around here? lol I have only myself to blame…just too busy! Yes…WL … more →

Tags: AORTA, Girl Stuff, kids

Robert Johnson - Poison Didn't Kill Him! - Part 12 comments

thedeltablues wrote 1 year ago: The Truth Surrounding Robert Johnson’s Death It has long been rumored that Robert Johnson died … more →

Tags: Robert Johnson, Delta Blues, Blues, Robert Johnson death

The Trivial Lincoln: Let's Get Physical

Michael Lynch wrote 1 year ago: One of my favorite classes to teach is Lincoln’s Life and Legacy, an introductory course that  … more →

Tags: Civil War, history and memory, Abraham Lincoln

Scientists find other genes that contribute to aortic aneurysm

GodsGadfly wrote 1 year ago: This both helps to identify non-Marfan causes of aneurysm and to explain variances in manifestation. … more →

Tags: Disability

Healing Arts for Marfan and Chronic Pain6 comments

ownyourhealth wrote 1 year ago: I recently helped to organize a Healing Arts workshop for the National Marfan Foundation annual meet … more →

Tags: Alternative Medicine, health, Traditional Chinese Medicine, chronic pain, Complementary medicine, Alexander Technique, Tai Chi, Acupuncture, Craniosacral Therapy

DID YOU KNOW (Part 2) ABRAHAM LINCOLN

awesometalks wrote 1 year ago: As we move closer towards the 200th anniversary of Abraham Lincoln’s birthday (February 12, 20 … more →

Tags: Abraham Lincoln, Abraham Lincoln Presidential Library, assassination, David Herold, Ford's Theatre, Garrett farm, History, John Wilkes Booth, Old Arsenel Penitentiary

Boot Camp for Back Pain2 comments

ownyourhealth wrote 1 year ago: A relatively new approach to chronic back pain is beginning to make headway into mainstream medicine … more →

Tags: boot camp, chronic pain, back pain, Physical Therapy

For a Friend Who Died of Marfan Syndrome8 comments

ownyourhealth wrote 1 year ago: Cleaning out an old filing cabinet, I came upon a poem I had written 24 years ago, just after I had … more →

Tags: Poetry

Have a Heart for Marfan Month!

GodsGadfly wrote 1 year ago: As you know, February is National Heart Disease month, and, as such, it’s also National … more →

Tags: American Life League, ESCR, Disability

Why I Like Tai Chi1 comment

ownyourhealth wrote 1 year ago: The slow, flowing movements look like a dance, but it is what goes on inside the body that makes Tai … more →

Tags: health, Traditional Chinese Medicine, chronic pain, healing, boosting immunity, aging, Tai Chi, Pain, Osteoporosis

The Power of the Flower2 comments

ownyourhealth wrote 2 years ago: Recently, my doctor prescribed a drug to regulate my heart rhythm—something that I have periodically … more →

Tags: doctors, health, Heart Arrhythmia, Medicine, arrhythmia, digitalis, digoxin, Foxglove, Heart

Project DOCC1 comment

FXSmom wrote 2 years ago: Here is Sally’s column for November.  Good stuff *  *  * Project DOCC by Sally Nantais, published No … more →

Tags: Etc, Autism, breast cancer, duchenne muscular dystrophy, Fragile X, FRAXA, mp3, HPS, Sucks

Sorry it has been so long- but please do me this favor1 comment

bennylee wrote 2 years ago: Heather is one of the chairs of the Massachusettes chapter of the National Marfan Foundation, of whi … more →

Tags: M&A, Request

Restoring the Rhythm of the Body1 comment

ownyourhealth wrote 2 years ago: If your health problems include chronic pain in your joints or back, headaches, or ear infections, y … more →

Tags: Alternative Medicine, health, chronic pain, Complementary medicine, healing, Childrens' Health, Ear Infections, cold shower health benefits, headache

Using the Mind to Free the Body4 comments

ownyourhealth wrote 2 years ago: A lesson in the Alexander Technique is one of effortless ease — almost as if you were floating witho … more →

Tags: Alternative Medicine, health, chronic pain, Complementary medicine, healing, Stroke, Alexander Technique, Arthritis, headaches


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