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Blogs about: Mixed Connective Tissue Disease

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Beyond tired16 comments

WendyUsuallyWanders wrote 1 day ago: Just as I was falling asleep tonight, I could smell smoke concentrating in my CPAP mask. That’ … more →

Tags: apartment, Attitude, Disabled, feeling yucky, grumpy, Health Care, Hurt All Over, Lupus, OWIe

I feel like a failure6 comments

WendyUsuallyWanders wrote 4 days ago: I did not want to admit this to myself or anyone else…but I am seriously sick I am humongously … more →

Tags: Lupus, feeling yucky, Myasthenia Gravis, apartment, OWIe, Hurt All Over, Fibromyalgia, night sweats, Truth

Trying not to scream

WendyUsuallyWanders wrote 5 days ago: Stupid pleurisy! It seems to be gaining on me. It now hurts a lot before my next dose of Motrin is d … more →

Tags: feeling yucky, Myasthenia Gravis, apartment, OWIe, Hurt All Over, Attitude, Queasy, headache, Chest Pain

Ahhhhh....some decent sleep :-)5 comments

WendyUsuallyWanders wrote 1 week ago: Oh, my gosh! I got to sleep two long blocks of hours. If my bladder did not wake me up, I’d st … more →

Tags: Lupus, feeling yucky, Rheumatoid Arthritis, Myasthenia Gravis, apartment, Joy, Yikes!, Life, happiness

Interesting IVIg facts

WendyUsuallyWanders wrote 1 week ago: I started writing this Friday night… I’ve been having a whole slew of strange symptoms a … more →

Tags: Lupus, feeling yucky, Rheumatoid Arthritis, Myasthenia Gravis, OWIe, Tired, Awful!, Queasy, Confused

The day after4 comments

WendyUsuallyWanders wrote 1 week ago: I bounded out of bed this morning! It’s nice to have my strength back Now I am waiting for my … more →

Tags: Lupus, Rheumatoid Arthritis, Myasthenia Gravis, apartment, Joy, Life, happiness, Wendy, Positive

IVIg a success!

WendyUsuallyWanders wrote 1 week ago: Summer view from infusion room. Today was A LOT different OK…I’m home What a loooooooong … more →

Tags: Love, Lupus, Rheumatoid Arthritis, Myasthenia Gravis, hospital, happiness, Wendy, Zeke, dog treats

CBC, SED rate and CRP results

WendyUsuallyWanders wrote 1 week ago: Hemoglobin normal 12-16  mine is 11.4 Hemoglobin is the protein molecule in red blood cells that car … more →

Tags: Lupus, Rheumatoid Arthritis, Myasthenia Gravis, hospital, Yikes!, Wendy, night sweats, Tired, horrible

I Dream of Free Childcare

MommaStroller wrote 2 weeks ago: Things are tough all over right now. Bankruptcies are at an all-time high – more than two-thir … more →

Tags: AutoImmune Disorders, Spiritual Health, Natural Medicine, Rare Diseases, autoimmune disorder, Lupus, SLE, MCTD, polymyositis

Polymyositis and the Crash Wean1 comment

MommaStroller wrote 2 weeks ago: When I was diagnosed with Polymyositis in July 2009, I had no idea where this disorder would take me … more →

Tags: AutoImmune Disorders, Spiritual Health, Natural Medicine, Rare Diseases, autoimmune disorder, Lupus, SLE, MCTD, polymyositis

An "interesting" life?7 comments

WendyUsuallyWanders wrote 2 weeks ago: One thing about having Myasthenia Gravis and Mixed Connective Tissue Disease, plus a few other thing … more →

Tags: feeling yucky, Myasthenia Gravis, apartment, OWIe, Yikes!, Queasy, Crying, headache, Sigh

Gave in and took a Vicodin14 comments

WendyUsuallyWanders wrote 2 weeks ago: For every time I think about taking a Vicodin, I give in and take one hardly ever. That’s how … more →

Tags: Myasthenia Gravis, apartment, OWIe, Attitude, Choice, Funny, horrible, Awful!, Snicker

Tired bum

WendyUsuallyWanders wrote 2 weeks ago: I slept most of Friday. It’s the kind of sleep that means my body is trying to repair itself. … more →

Tags: feeling yucky, Rheumatoid Arthritis, Myasthenia Gravis, apartment, OWIe, Hurt All Over, Attitude, Tired, Queasy

Trashed lungs2 comments

WendyUsuallyWanders wrote 2 weeks ago: Thursday I was sooo happy to have my aide here! I’ve been falling behind in housekeeping. Afte … more →

Tags: feeling yucky, Myasthenia Gravis, apartment, OWIe, Hurt All Over, night sweats, Attitude, Crazy, Tired

C-Reactive Protein Results2 comments

WendyUsuallyWanders wrote 2 weeks ago: From this blog on November 19th…. I have a couple of lab slips for blood tests. The doc is doi … more →

Tags: Florida, feeling yucky, Myasthenia Gravis, Attitude, Low-Income, Awful!, huh?, grumpy, Health Care

Sundays are usually tough2 comments

WendyUsuallyWanders wrote 3 weeks ago: The first time I woke up Sunday morning, I was thinking maybe I should not drive. I went back to sle … more →

Tags: mormon, Latter-day Saint, LDS, Myasthenia Gravis, van, Jesus, God, apartment, OWIe

Ouchies

WendyUsuallyWanders wrote 1 month ago: My days and nights are all mixed up. I went to bed about 6 this morning and woke up at noon because … more →

Tags: Lupus, feeling yucky, Rheumatoid Arthritis, Myasthenia Gravis, hospital, OWIe, Hurt All Over, Fibromyalgia, horrible

Very long day for me!

WendyUsuallyWanders wrote 1 month ago: I left home at 12:30 and got back at 5:15 PM. Because I have not had a haircut since August, I was f … more →

Tags: Myasthenia Gravis, van, OWIe, Food, Hurt All Over, Zeke, Food Storage, dog treats, Frugal

I am a broken record

WendyUsuallyWanders wrote 1 month ago: I went to bed shortly after 9 PM and sort of slept four hours. I don’t feel good Each time I w … more →

Tags: feeling yucky, Myasthenia Gravis, apartment, hospital, OWIe, night sweats, Attitude, horrible, Awful!


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