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Blogs about: Neonatal Hemochromatosis

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Differences between hereditary hemachromatosis and NH

trentandmary wrote 5 months ago: Over the years quite a few people have posted comments asking about whether neonatal hemochromatosis … more →

Welcome Cara Grace Jordan!4 comments

trentandmary wrote 1 year ago: We’re thrilled to announce the arrival of Cara Grace Jordan. Born Tuesday 19 August at 10:38, … more →

Tags: Cara Grace

It's a Baby Girl!1 comment

trentandmary wrote 1 year ago: It’s been a very long time since we last posted here. And there’s been a lot happening! … more →

Tags: Mary's Pregnancies

New research article in Pediatrics

trentandmary wrote 1 year ago: Dr Peter Whitington and Susan Kelly have just had their latest research published in Pediatrics.  I … more →

Alice Rowlands

trentandmary wrote 1 year ago: We hear from people reasonably regularly who have lost children through NH.  We recently heard from … more →

Australian Story hits home

trentandmary wrote 2 years ago: We shed a few tears this evening watching Australian Story (an Australian TV program). This week … more →

Tags: Grief

Exchange transfusions a treatment for NH?

trentandmary wrote 2 years ago: An Italian team of doctors has now published a paper (abstract here) where they appear to have succe … more →

NH - congenital alloimmune hepatitis

trentandmary wrote 2 years ago: Dr Peter Whitington, who developed the IVIg gestational treatment that Mary underwent, has published … more →

Early antioxidant treatment for NH?6 comments

trentandmary wrote 2 years ago: There appears to have been quite a bit of coverage lately on a recent journal article by Grabhorn et … more →

More good news on NH1 comment

trentandmary wrote 2 years ago: Here’s some more good news on the treatment of neonatal hemochromatosis (NH). Over at the Macc … more →

Teyte1 comment

trentandmary wrote 2 years ago: Andrew and Stacey contacted us a while back after they tragically lost their son Teyte to NH.  They … more →

Father's Day update

trentandmary wrote 3 years ago: It’s been an amazing few months.  As I’ve been telling people, when I went to work durin … more →

Tags: Harry McKenzie

Harry makes the Front Page!1 comment

trentandmary wrote 3 years ago: In case you didn’t catch the Townsville Bulletin last week, Harry’s story made the front … more →

Tags: Harry McKenzie

Harry at a perinatal conference!1 comment

trentandmary wrote 3 years ago: NH Poster It’s not been one of Harry’s better weeks. His ‘hospital adventure … more →

Tags: Harry McKenzie

Better late than never... Summary of the NH treatment experience4 comments

trentandmary wrote 3 years ago: It's only eight months down the track but we got around to posting a summary of Mary's exper … more →

Tags: Mary's Pregnancies

Experiences with NH

trentandmary wrote 4 years ago: If you go surfing the net to look for information on other family’s experiences with NH then i … more →

Ellen Elizabeth Jordan

trentandmary wrote 6 years ago: Ellen was born on Sunday 9 November 2003 at approximately 11:30am and died on the following day.  We … more →

Tags: Ellen Elizabeth


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