Tags » Neurofibromatosis

Brandon Merritt was an amazing guy I had the pleasure of calling my friend. He was a warmhearted, welcoming, fun loving guy who impacted my life & made me PASSIONATE about doing my part to help find a cure for NF. 35 more words


A year at home with Lyla - Me vs. NF1

In March of 2013, we received the news that our daughter, Lyla, who has NF1 had a tumor along her optic nerve in her brain. And so we learned that  725 more words

I have a What wrapped around Where?!

Today was finally the day that I got to go to the doctor and hear the results of my MRI and CT tests. More so my CT since I already know that the MRI showed neurofibromas on my brain, spine, thyroid and jaw. 485 more words

Doctor's Visits

Dozens Gather At CBS Studio Center For 9th Annual Neurofibromatosis Walk

STUDIO CITY (CBSLA.com) — Dozens of people gathered at the CBS Studio Center Sunday to fight genetic disorder Neurofibromatosis.

Josh Rubenstein joined participants at the 9th Annual Neurofibromatosis (NF) Walk. 91 more words


Los Angeles Neurofibromatosis Walk To Be Held At CBS Studio Center Sunday

STUDIO CITY (KCAL9) — Co-Chair of the Los Angeles Neurofibromatosis (NF) Walk Kim Robinson and her family stopped by KCAL9 Thursday to tell viewers about this year’s event. 30 more words

Seen On TV

Boy, 10, Helping Raise Awareness of Genetic Disorder

MINNEAPOLIS (WCCO) — Stone Buchanan is a 10-year-old boy with a chronic medical condition called neurofibromatosis, or NF.

Stone is working to help others just like him by raising awareness about the genetic disorder. 39 more words