Tags » Neurofibromatosis

Giving Tuesday

MASON CITY, Iowa – Giving Tuesday has been celebrated since 2012. It’s designated as a day to donate to an organization in need.  It’s also an opportunity to recognize someone who gives to others, and on this year’s Giving Tuesday, a local hero was honored as an example of how your donation really does make a difference. 302 more words


Sharelle, Thomas and Harry

Some of you may remember that in May I wrote a post about NF Awareness Day. I wrote about my friend Sharelle and her son, Thomas, who has neurofibromatosis. 1,906 more words

In The Spotlight

A Visit to Comer Children's Hospital

Another hospital visit.. this marks the third hospital and the fourth doctor in less than 6 months. I feel like I should have a punch card or something for a free visit after so many times…. 381 more words

Brandon Merritt was an amazing guy I had the pleasure of calling my friend. He was a warmhearted, welcoming, fun loving guy who impacted my life & made me PASSIONATE about doing my part to help find a cure for NF. 35 more words


A year at home with Lyla - Me vs. NF1

In March of 2013, we received the news that our daughter, Lyla, who has NF1 had a tumor along her optic nerve in her brain. And so we learned that  725 more words