Blogs about: Neurofibromatosis
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Living with Neurofibromatosis
The effects of NF vary from person to person and can be as mild as a few birthmarks and freckling to thousands of small tumors or even brain and/or spine tumors. Sometimes accompanying the tumors and… more →
Running for Research
Facing the Challenge of NF.
taquemeaway wrote 3 days ago: If life hands you cow pies, make a brick, throw it through the window and breakout. I am not … more →
Living with Neurofibromatosis
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deacmegmeg wrote 6 days ago: The effects of NF vary from person to person and can be as mild as a few birthmarks and freckling to … more →
Top ten most photographically disturbing conditions seen at SPD*
Kerri Wachter wrote 1 week ago: from the annual meeting of the Society for Pediatric Dermatology in Philadelphia 10. Neurofibroma … more →
Injury? And Team update
deacmegmeg wrote 1 month ago: I’d like to think that I am injury proof, and I have been quite good throughout the years at s … more →
CHINA'S ELEPHANT MAN
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Garrett Hawley wrote 1 month ago: BEIJING – Huang Chuncai was born with an extreme case of neurofibromatosis, leading to his ni … more →
Running Well, Going the Distance
deacmegmeg wrote 1 month ago: It’s not supposed to be this beautiful in early June. Not in Seattle anyway. The sun is shin … more →
Doodle Do
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dorothyzbornak wrote 1 month ago: What an adorable little doodle, right? It was sketched by none other than Ms. Blanche Devereaux her … more →
First update
deacmegmeg wrote 1 month ago: Consider this blog launched! I will post training updates, as well as facts about NF and my own sto … more →
I saw the sign.
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nettie wrote 2 months ago: NEUROFIBROMATOSIS is the word I’ve been trying to infect the truth my family and friends with … more →
Little Zackary's wish will cost you less than a dollar! Great way for your children to give!
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inspiredbyanother wrote 2 months ago: Zackary’s story (real name) Seven year old Zackary would like one thing to brighten his day! He w … more →
Staying in the moment as a sober mom.
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C wrote 2 months ago: When my youngest daughter, E., was about two years old, she was diagnosed with neurofibromatosis, a … more →
It's time for Doodle Day USA benefitting neurofibromatosis!
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Lou wrote 2 months ago: Reggie Bibbs SEE ALL CELEBRITY DOODLES AT DOODLE DAY USA Reggie Bibbs is a highly inspirational m … more →
My little girl Carin.
John-Roy Photography wrote 2 months ago: My little girl Carin was such a good girl this week. On Tuesday she had several odontomasremoved … more →
Houston Roller Derby Rocked Last Night!
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Reggie Bibbs wrote 3 months ago: Mistilla and Carmen Geddit were awesome last night! They were the last two jams of the night with th … more →
Tax Deductible Donations Now Being Accepted by the Just Ask Foundation
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Reggie Bibbs wrote 3 months ago: Thank you for your interest in helping raise awareness for NF. With your help, I hope to spread th … more →
JUST ASK FOUNDATION is now a 501c3!
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Reggie Bibbs wrote 3 months ago: 501c3-notification We just received terrific news from the Internal Revenue Service. The IRS has d … more →
PLEASE VOTE FOR MY PHOTO ENTRY! (NF)
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Anne wrote 3 months ago: PLEASE VOTE FOR MY PHOTO ENTRY! DONT WORRY ABOUT THE PREVIOUS ONE, BECAUSE THIS ONE IS DOING BETTER! … more →
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