Tags » Neurofibromatosis

Young Edmonton-area boy battling serious illness receives unexpected gift from complete strangers

Watch above: A Sherwood Park mother, who has watched her son endure live-long complications from a severe neurological condition, says she’s grateful for the actions of a group of complete strangers. 487 more words


Welcome to NFCA Pittsburgh

Welcome to new client, the Neurofibromatosis Clinics Association (NFCA) of Pittsburgh, a regional, non-profit dedicated to serving people with Neurofibromatosis and their families.

We helped setup their social media presence. 70 more words

Social Media

Person of Interest: Bobby Gill

Pondering the most standout way to raise funds and awareness for the Children’s Tumor Foundation? Bobby Gill may have got you beat with DC-based, non-profit, Cupid’s Undie Run. 834 more words

Vitiligo and acupuncture procedure

As the anguish relieving great things about acupuncture be well known within the United States, the procedure is become a lot more accepted and sought after here as well.  435 more words


Why NF1 Is Not About The Tumors

Over the past few days, I’ve had the opportunity to read various blogs written about children being newly diagnosed with the dreaded  Neurofibromatosis disease. I have also spoken with mothers who worry about the effects of this disease. 266 more words

Special Needs

Motorcycle Ride for Neurofibromatosis

My daughter and I rode in a charity ride supporting Neurofibromatosis (NF).  The ride was hosted by NFmidatlantic.org and the Baltimore Ramblers Motorcycle Club.

NF is the most common of the “rare” diseases.  288 more words


A Librarian at Retirement Remembers Her Mentor

I want to thank my good friend Ellie, who is retiring this month, for this terrific post on her mentor. The Enoch Pratt Free Library has to be one of the most beautiful in the United States, but this is a story about the beauty found within people.   783 more words