Blogs about: Nf

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Facing the Challenge of NF.

taquemeaway wrote 2 days ago: If life  hands you cow pies, make a brick, throw it through the window and breakout.        I am not … more →

Tags: on my soapbox, neurofibromatosis, Depression

Heads Up

pawndemonium wrote 4 days ago: Bomb’s away… Sounds like a TF2 entry, but this actually is a small comparison between th … more →

Tags: NavyField, deck gun my ass, pss, pure speculation, SS4, stern tubes yourself, Type IX, Type XXI, Type XXI as SS4 ftw

NF Threaten Northern Pride March... Join the anti-fascist contingent

outagainstthenazis wrote 5 days ago: Next Saturday will be Newcastle (Northern) Gay Pride. We have learnt that the National Front will be … more →

Tags: northern pride, UAF, National Front

Living with Neurofibromatosis2 comments

deacmegmeg wrote 6 days ago: The effects of NF vary from person to person and can be as mild as a few birthmarks and freckling to … more →

Tags: about nf, Story, neurofibromatosis, Running, Tumors, neurofibroma

Sepoi Angin...38 comments

Nisa wrote 1 week ago: kurasakan angin sepoi berhembus lembut menyibakkan kegundahan mengalir bersama doa-doa berputar di a … more →

Tags: Indahnya Kehidupan, Perjalanan Kecil, Alumni, bkb nurul fikri, Kehidupan, maple, Perpisahan, persiapan SNMPTN, PerTeMUAN

"and I still haven't found what I'm looking for...."

nettie wrote 1 week ago: ::TAKE A PAUSE:: one of my best blog posts even written according to the comments and speaking of m … more →

Tags: Life, Love, Relationships, "I still haven't found what I'm looking for" U2, "thy will be done" trust, afraid, broken road, dating and relationships, ex-boyfriend

Half Marathon!

deacmegmeg wrote 2 weeks ago: The inaugural Seattle Rock’n'Roll Marathon and Half Marathon on Saturday June 27th went extrem … more →

Tags: Training, half-marathon, Running

Injury? And Team update

deacmegmeg wrote 1 month ago: I’d like to think that I am injury proof, and I have been quite good throughout the years at s … more →

Tags: Training, Injury, marathon, neurofibromatosis, Running

817 Votes Allowed the BNP to Win a Seat2 comments

cllrssd wrote 1 month ago: This from Blackburn Labour As the sample figures began to emerge last night, it was clear that unde … more →

Tags: Conservative Comment, General, Personal, 817 votes, BNP, brons, fascits, National Front, Nick Griffin

Running Well, Going the Distance

deacmegmeg wrote 1 month ago: It’s not supposed to be this beautiful in early June.  Not in Seattle anyway.  The sun is shin … more →

Tags: Story, Training, Charity, marathon, neurofibromatosis, NY Times, Running

Sneak around that, ya phony scoundrel!

pawndemonium wrote 1 month ago: It got quite silent in the seas when it comes to meeting U 1337. This has nothing to do with the rec … more →

Tags: NavyField, ASW, Hedgehogs, high cooldown, long range, NFEU>NFNA, strange balancing, useful tag

First update

deacmegmeg wrote 1 month ago: Consider this blog launched!  I will post training updates, as well as facts about NF and my own sto … more →

Tags: about nf, Training, marathon, neurofibromatosis, NF1, Running

What I learned about NF.1 comment

nettie wrote 2 months ago: Last Saturday I went to the NF Symposium at CHOC in Orange.  Even though this event was focused for  … more →

Tags: Learning Disabilities, NF Awareness, genetic disorder, cafe au lait, NEUROFIBROMAS, freckling

Genius at work.1 comment

nettie wrote 2 months ago: OK. maybe I think too highly of myself to be a genius in certain subjects, but I do have my moments … more →

Tags: Birthdays, Flowers, islander, Birthday Project, creative genius at work, colors, Letters, Hawaiian

I saw the sign.2 comments

nettie wrote 2 months ago: NEUROFIBROMATOSIS is the word I’ve been trying to infect the truth  my family and friends with … more →

Tags: twitter, SUPPORT Neurofibromatosis, neurofibromatosis, facebook, Google, My Space

Mending my wings.1 comment

nettie wrote 2 months ago: For the glory of God, I found a way to heal myself.  I’ve been contemplating of whether to do … more →

Tags: Art, Love, Life, God, Art projects, mended wings, Birthdays, Graduation, Secret Project

NF Symposium..here I come!1 comment

nettie wrote 2 months ago: Tomorrow is the NF Symposium at CHOC in Orange. ::yay!!! :: I’ve been looking forward to this … more →

Tags: Love, God, SUPPORT Neurofibromatosis, cerritos, HB, Forgiveness, Fullerton, artsy mood, Art Project

letting go.....2 comments

nettie wrote 2 months ago: Lately, I’ve been letting go alot of my negative energy to art,music,blogging and now through … more →

Tags: God, Prayer, Tears, Pain and suffering, Art, Letting Go, Blogging, Music, Therapy

"Chill to the next episode...."2 comments

nettie wrote 2 months ago: This week was quite a roller coaster of emotions. it feels like its 2005 again. losing a job followe … more →

Tags: Art, Creative, mom's day, Creativity, mom's day project


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