Blogs about: Nf2
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Tricks of the trade
For unfamiliar territory and unknown walking distances while still building balance and stamina, I’m advocating the wheelchair over the walker. It’s great for stability and utility (e.g. c… more →
anomalous adventures
firsts
przybysz wrote 1 month ago: Today First time rising unassisted from a low (standard height) household toilet seat since February … more →
cooler head
przybysz wrote 1 month ago: First unassisted shower and day of outpatient therapy sessions without wearing a hat. (This resulted … more →
Little Zackary's wish will cost you less than a dollar! Great way for your children to give!
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inspiredbyanother wrote 2 months ago: Zackary’s story (real name) Seven year old Zackary would like one thing to brighten his day! He w … more →
PLEASE VOTE FOR MY PHOTO ENTRY! (NF)
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Anne wrote 3 months ago: PLEASE VOTE FOR MY PHOTO ENTRY! DONT WORRY ABOUT THE PREVIOUS ONE, BECAUSE THIS ONE IS DOING BETTER! … more →
Believe in the RUN! Please vote (green button) for my entry!
Anne wrote 3 months ago: BELIEVE IN THE RUN Sponsored by Visit NIKE USA It was my dad t … more →
Experiencing loving kindness
przybysz wrote 4 months ago: Ok, the deal tmrw: we check into pre-op at 7am, then it’s a couple hours to actual surgery sta … more →
Anne wrote 6 months ago: Hey, other BTE-users- bloggers! Does anybody know if these (or something else??) would be recommende … more →
Moisture problems with "Behind-The-Ear" sound processors??
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Anne wrote 6 months ago: I need suggestions! … I got the Freedom (by cochlear co.) BTE sound processor for my ABI, b … more →
Children's Tumor Foundation
Anne wrote 7 months ago: What is Neurofibromatosis? Neurofibromatosis (NF) has been classified into three distinct types: NF1 … more →
Auditory rehabilitation with cochlear implantation in patients with neurofibromatosis type 2
Callier Library wrote 7 months ago: Conclusions: New technological developments will most probably improve the efficiency of auditory br … more →
Kcat fundraising (a little help can make a difference)
Kamalayang Kalayaan wrote 9 months ago: Hi ! Can I ask a small favor? I’m helping my friend Kcat Yarza to promote her site because s … more →
Kcat fundraising (a little help can make a difference)
Kamalayang Kalayaan wrote 9 months ago: Hi ! Can I ask a small favor? I’m helping my friend Kcat Yarza to promote her site because s … more →
The Clinical Fallacy of the Assumption of Positive Normalcy
Mike O wrote 1 year ago: First off, the great news. My son’s condition apparently is not as bad as first feared: it is not l … more →
uberzone
przybysz wrote 1 year ago: It kind of figures. The day after I pop Liquid California in the tape deck, I receive confirmation o … more →
Family Fear: will Grandma outlive Grandson?
Mike O wrote 1 year ago: My mother is 91 next month and smokes a pack a day. A few days ago, we found out she has an outside … more →
eye candy
przybysz wrote 1 year ago: I’m a bit late to get a post up for this, but there’s a day remaining to bid in Neurofib … more →
Clay Walker at the Houston Livestock Show and Rodeo, 3/14/08
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Reggie Bibbs wrote 1 year ago: Wow! Tonight I was invited to the Rodeo once again. It was a more then Terrific night. The music wa … more →
Neurofibromatosis: MRI can help!
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tomography wrote 1 year ago: Today, I was browsing WordPress randomly, and I came across a blog titled Neurofibromatosis Cafe. It … more →
Rodeo Night With Martina McBride
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Reggie Bibbs wrote 1 year ago: Tonight was another great night at the Houston Livestock Show and Rodeo! I started out with the live … more →
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