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Blogs about: Primary Progressive Multiple Sclerosis

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Baclofen Pump Refill3 comments

atypicalms wrote 1 year ago: I have had my baclofen pump for about three months now.  It has made a huge difference in the qualit … more →

Tags: Chronicles of ITB Pump, Multiple Sclerosis, Atypical MS, health, Baclofen pump

A long time diagnosing1 comment

atypicalms wrote 1 year ago: As many of you know, it took about 18 months before I was diagnosed with multiple sclerosis. I and m … more →

Tags: Diagnosis, Atypical MS, health, McDonald Criteria, Multiple Sclerosis

Cytoxan prep5 comments

atypicalms wrote 1 year ago: In June 2007 was my first chemo treatment. You can read about that experience in my Cytoxan post. I … more →

Tags: chemo, Multiple Sclerosis, Cytoxan, Atypical MS, health

Filling in the blanks

atypicalms wrote 1 year ago: Okay, so I thought I would go back to the last part 2006. Finally diagnosed in fall of 2006, and set … more →

Tags: Multiple Sclerosis, Atypical MS, health, Steroids, solu-medrol

Change

atypicalms wrote 1 year ago: While waiting at my recent neurologist appointment, a discussion in the waiting room occurred. Sever … more →

Tags: Living With MS, Atypical MS, health, Multiple Sclerosis

All in the Family

atypicalms wrote 1 year ago: Sometimes life throws you bittersweet moments. I was privy to one these the other day. Returning hom … more →

Tags: Living With MS, Atypical MS, health, Multiple Sclerosis

Just Living5 comments

atypicalms wrote 1 year ago: So, it’s been awhile since I’ve written. I guess I’ve been just living. Enamored w … more →

Tags: Living With MS, Multiple Sclerosis, Atypical MS, health

A month later

atypicalms wrote 1 year ago: Wow, I can’t believe a month has passed since my baclofen pump surgery.  I continue to have th … more →

Tags: Chronicles of ITB Pump, Multiple Sclerosis, Atypical MS, health, ITB Therapy, Baclofen pump, Baclofen

Learning to Live with MS6 comments

atypicalms wrote 1 year ago: Okay, so back to 2006. It was autumn 2006, a good year and a half had gone by before I was diagnosed … more →

Tags: Living With MS, Multiple Sclerosis, health, Steroids, solu-medrol

Hey, look ma no crutches!

atypicalms wrote 1 year ago: Well, I am three and a half weeks post surgery.  And look ma, no cruchtes!  That is right. I shed my … more →

Tags: Chronicles of ITB Pump, Multiple Sclerosis, Atypical MS, ITB Therapy, Baclofen pump

Recovery from Surgery2 comments

atypicalms wrote 1 year ago: Well, it’s been two weeks since my surgery to implant my baclofen pump.  The surgery itself we … more →

Tags: Chronicles of ITB Pump, Multiple Sclerosis, Atypical MS, health, ITB Therapy, Baclofen pump

Baclofen Pump3 comments

atypicalms wrote 1 year ago: Tomorrow, July 28, I undergo surgery to implant the baclofen pump (ITB Pump-Intrathecal baclofen The … more →

Tags: Chronicles of ITB Pump, Multiple Sclerosis, ITB Therapy, Baclofen pump, TomAdd new tag

Now we're getting somewhere

atypicalms wrote 1 year ago: I finally found some neurologists, multiple sclerosis specialists, who were willing to work with me. … more →

Tags: Diagnosis, Multiple Sclerosis, Atypical MS, health, neurologist

Real Diagnosis2 comments

atypicalms wrote 1 year ago: In June 2006 after an unsuccessful year of pursuing some treatment with three different neurologists … more →

Tags: Diagnosis, Multiple Sclerosis, Atypical MS, health, neurologist, Steroids, solu-medrol

Multiple Sclerosis Specialists

atypicalms wrote 1 year ago: In April 2006 I felt hopeless, the lowest point in my life. After spending a year trying to find a d … more →

Tags: Diagnosis, the beginning, Multiple Sclerosis, Atypical MS, health, Neurology

Hopeless

atypicalms wrote 1 year ago: In March 2006, a year after symptoms reared their ugly heads, I was still no closer to a diagnosis l … more →

Tags: the beginning, Multiple Sclerosis, health, neurologist

Seizures v. Complicated Migraines

atypicalms wrote 1 year ago: In June 2005, I was under the care of Dr. Headupmyarse. After my MRI showed only one white spot, my … more →

Tags: the beginning, Atypical MS, neurological, Neurology, neurologist, Seizures, Topamax, migraines, complicated migraines

TIAs v. Seizures

atypicalms wrote 1 year ago: In June 2005 after a hospitalization for episodes, from which I never fully recovered, of slurred sp … more →

Tags: the beginning, Multiple Sclerosis, Atypical MS, Neurology, Tias, Seizures, Depakote, Topamax

CellCept2 comments

atypicalms wrote 1 year ago: Currently, I am migrating from Cytoxan-chemo-to CellCept. Yes, cellcept is usually used for transpla … more →

Tags: chemo, Multiple Sclerosis, Atypical MS, health, Cellcept


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