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Blogs about: Raising The Bar For Cf Care

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To Travel...

allysallies wrote 1 year ago: … or not? That was the question. When you “live in chronicity” (or parent someone … more →

Tags: Caregiver Support, Living in Chronicity, cystic fibrosis, IV antibiotics, hospital, Travel

Must be doing something right...1 comment

allysallies wrote 1 year ago: These are exciting times indeed! The CFF wins again… sort of. It’s no small feat for the … more →

Tags: The Science, social issues, cystic fibrosis, cff, Cure, Cytic Fibrosis, Advocacy

Long time coming...2 comments

allysallies wrote 1 year ago: Not being one to leave well enough alone, I’m constantly on the lookout for new and innovative … more →

Tags: cystic fibrosis, Project DOCC, chronic, Illness

Interesting Comparisons

allysallies wrote 1 year ago: It comes as no surprise that Germany has been on the benchmarking bandwagon with regard to CF care a … more →

Traveling Parent 2 comments

allysallies wrote 2 years ago: I’ve been “involved” in the world of CF for over four years now. In that time I … more →


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