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Blogs about: Rare Disorders

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SIRENOMELIA

USA News Online wrote 1 month ago: shiloh pepin,sirenomelia, mermaid syndrome, shiloh pepin mermaid …shiloh pepin,sirenomelia, me … more →

Tags: News, mermaid syndrome, legs, Pépin, tiffany yorks, Sirenomelia sequence, caudal regression syndrome, Shiloh, sirenomelia or mermaid syndrome

Vidya plays Maa in Paa

mathurneha wrote 7 months ago: Vidya Balan is playing a challenging role in Balki’s Paa, her forthcoming film. She will don t … more →

Tags: vidya balan, Amitabh Bachchan, Abhishek Bachchan, Progeria, genetic disorder, health, Conditions and Diseases

rare disorders,

britwriterinphilly wrote 7 months ago: … more →

Tags: Uncategorized

Chasing it-

erareeve wrote 1 year ago: If you read the first post, then you know The National Eye Institute suggested  I should give The Na … more →

Tags: What the professionals say, Eales disease, Add new tag, eye doctors

Weird Symptoms=Sexual Abuse Aftermath?

wildheart87 wrote 1 year ago:      My past haunts me almost constantly.  Flashbacks, nightmares, bouts of rage, lack of sex drive, … more →

Tags: health, Relationships, unknown medical conditions, non-epileptic seizures, Sexual abuse, migraines, rare nervous system disorders, rare heart disorders, Aftermath of Sexual Abuse

Children of a lesser god

mariagumamugam wrote 1 year ago: About a week ago, I stumbled upon a streaming video about two young brothers in Pampanga, Philippine … more →

Tags: Philippines, Lesch-Nyhan Syndrome, Gerald Daza, Joseph Daza, Philantrophy, Akap-Pinoy, genetic disorders

Promoting Awareness- Your thoughts and stories welcome.8 comments

twinklev wrote 3 years ago: In the effort to promote awareness, resources and information regarding Reflex Sympathetic Dystrophy … more →

Tags: Blogroll, RSDS, Neurological Disorder, chronic pain, Depression, Mental Illness Advocacy, NINDS, Pain, CRPS

The Universal Disorder- Part 3, conclusion1 comment

twinklev wrote 3 years ago: … more →

Tags: Blogroll, RSDS, Neurological Disorder, chronic pain, Depression, Mental Illness Advocacy, NINDS, Pain, CRPS

The Universal Disorder- Part 2

twinklev wrote 3 years ago: … more →

Tags: Blogroll, RSDS, Neurological Disorder, chronic pain, Depression, Mental Illness Advocacy, NINDS, Pain, CRPS

The Universal Disorder- Part 1, introduction1 comment

twinklev wrote 3 years ago: … more →

Tags: Blogroll, RSDS, Neurological Disorder, chronic pain, Depression, Mental Illness Advocacy, NINDS, Pain, CRPS

Peripheral Neuropathy3 comments

twinklev wrote 3 years ago: What is Peripheral Neuropathy? Peripheral neuropathy describes damage to the peripheral nervous syst … more →

Tags: Blogroll, RSDS, Neurological Disorder, chronic pain, Depression, Mental Illness Advocacy, NINDS, Pain, CRPS

Facing the Storm- Pain and Mental Illness by twinklev1 comment

twinklev wrote 3 years ago: Facing the Storm Pain and Mental Illness by TwinkleEKV Mental Health, a most fascinating area of stu … more →

Tags: Blogroll, RSDS, Neurological Disorder, chronic pain, Depression, Mental Illness Advocacy, NINDS, Pain, CRPS

Emotional Seperation- RSD in Flight by twinklev

twinklev wrote 3 years ago: Emotional Seperation (RSD in Flight) by twinklev  Written Sept 6, 2005 to current   I have take … more →

Tags: Blogroll, RSDS, Neurological Disorder, chronic pain, Depression, Mental Illness Advocacy, NINDS, Pain, CRPS

What is RSDS/CRPS? 7 comments

twinklev wrote 3 years ago:       What is RSDS/CRPS? What is reflex sympathetic dystrophy/complex regional pain syndrome? RSD/CR … more →

Tags: Blogroll, RSDS, Neurological Disorder, chronic pain, Depression, Mental Illness Advocacy, NINDS, Pain, CRPS

A Compilation of RSD(S)/CRPS Links and Related Resources1 comment

twinklev wrote 3 years ago: The following is a list of resources I’ve compiled through research. My passion is to promote … more →

Tags: Blogroll, RSDS, Neurological Disorder, chronic pain, Depression, Mental Illness Advocacy, NINDS, Pain, CRPS


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