I thought I’d share some more of the photos taken when Sian went to the Arethusa Centre recently. These are just amazing – I still can’t believe that it’s Sian on the climbing … more →
Sian's Mum - Living with Methylmalonic AcidaemiaSue wrote 2 days ago: I thought I’d share some more of the photos taken when Sian went to the Arethusa Centre recent … more →
Sue wrote 1 week ago: Well, we almost made it to 3 months without a hospital admission … but not quite! Sian started … more →
Sue wrote 3 weeks ago: We go for weeks without doing much, other than the routine stuff and suddenly have a few weeks where … more →
marbleroad wrote 1 month ago: Amyloidosis refers to a variety of conditions in which amyloid proteins are abnormally deposited i … more →
Sue wrote 1 month ago: Friday was Sian’s final day in school. I’m not sure it has really sunk in yet, either fo … more →
Sue wrote 2 months ago: The last two weeks seem to have flown by. Sian has remained well, no vomiting and no hospital admis … more →
Sue wrote 2 months ago: I’ve struggled a bit with the blog this week and had planned to update it sooner. Up to this p … more →
Sue wrote 2 months ago: We’re almost up to date with Sian’s story and I’m planning to continue to update t … more →
Sue wrote 3 months ago: Sian came out of hospital at the end of December, just in time to see in the new year. We have never … more →
Sue wrote 3 months ago: I haven’t written much about Bethan, knowing how much she values her privacy, but one of our p … more →
Sue wrote 3 months ago: 2008 started with a planned hospital admission to remove and replace Sian’s portacath which, a … more →
Christine Dusenbery RN, CHPN wrote 3 months ago: I caught my passion for teaching from my high school biology teacher and my passion for helping oth … more →
thespiritdog wrote 3 months ago: We just had a 4 year old female (spayed) lab mix diagnosed with renal failure. It came on quickly bu … more →
myfacetiouswisdom wrote 3 months ago: I read an extremely interesting article the other day and I just have way too many comments to keep … more →
Sue wrote 3 months ago: Sian celebrated her 18th birthday, a milestone we never dreamt she would reach, on 31st January 200 … more →
Sue wrote 3 months ago: Sian celebrated her 17th birthday at the end of January 2007 and discussions about transition from p … more →
Sue wrote 3 months ago: Writing about Evelina’s Pride and OTW has prompted me to think about Demelza, another organisa … more →
Sue wrote 3 months ago: Over the Wall (OTW) is a UK charity providing residential activity camps for children and young peop … more →
Sue wrote 4 months ago: Sian transferred back to Guy’s in September 2005 and was on the move again 5 weeks later when … more →