Blogs about: Renal Failure

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Staying Active

Sue wrote 2 days ago: I thought I’d share some more of the photos taken when Sian went to the Arethusa Centre recent … more →

Tags: Chronic Illness, health, Family, Metabolic Disease, Chronic Renal Failure, Illness, Challenge, Disability, gastrostomy

Back In Hospital - July 20092 comments

Sue wrote 1 week ago: Well, we almost made it to 3 months without a hospital admission … but not quite! Sian started … more →

Tags: Chronic Illness, Chronic Renal Failure, Family, health, Metabolic Disease, Acidosis, adpating, carer, childrens hospice

Social Butterfly1 comment

Sue wrote 3 weeks ago: We go for weeks without doing much, other than the routine stuff and suddenly have a few weeks where … more →

Tags: Chronic Illness, health, Family, Metabolic Disease, Chronic Renal Failure, Metabolic, hospital, Diagnosis, Illness

Amyloidosis2 comments

marbleroad wrote 1 month ago: Amyloidosis refers to a variety of conditions in which amyloid proteins are abnormally deposited i … more →

Tags: amyloid, amyloid proteins, amyloidosis, Chip Miller, Congo red staining, health, Healthcare, marbleroad, Orphan Diseases

Leaving School - Another Transition.

Sue wrote 1 month ago: Friday was Sian’s final day in school. I’m not sure it has really sunk in yet, either fo … more →

Tags: Chronic Illness, health, Family, Metabolic Disease, Chronic Renal Failure, Metabolic, Illness, Challenge, Disability

Two Busy Weeks

Sue wrote 2 months ago: The last two weeks seem to have flown by.  Sian has remained well, no vomiting and no hospital admis … more →

Tags: Chronic Illness, health, Family, Metabolic Disease, Chronic Renal Failure, Metabolic, hospital, Illness, Disability

GFR Result

Sue wrote 2 months ago: I’ve struggled a bit with the blog this week and had planned to update it sooner. Up to this p … more →

Tags: Chronic Illness, Chronic Renal Failure, Family, health, Metabolic Disease, hospital, Diagnosis, Illness, Disability

2009 - Bringing Sian's Story Up To Date

Sue wrote 2 months ago: We’re almost up to date with Sian’s story and I’m planning to continue to update t … more →

Tags: Chronic Illness, Chronic Renal Failure, Family, health, Metabolic Disease, adpating, Challenge, Disability, hospital

2009 - January to April

Sue wrote 3 months ago: Sian came out of hospital at the end of December, just in time to see in the new year. We have never … more →

Tags: Chronic Illness, health, Family, Metabolic Disease, hospital, Illness, Challenge, Disability, methylmalonic acidaemia

2008 - July to December

Sue wrote 3 months ago: I haven’t written much about Bethan, knowing how much she values her privacy, but one of our p … more →

Tags: Chronic Illness, health, Family, Metabolic Disease, Metabolic, hospital, Disability, methylmalonic acidaemia, Transition

2008 - January to June

Sue wrote 3 months ago: 2008 started with a planned hospital admission to remove and replace Sian’s portacath which, a … more →

Tags: Chronic Illness, Family, health, Metabolic Disease, Direct Payments, hospital, Illness, Metabolic, methylmalonic acidaemia

Who we there most influential people in your life?

Christine Dusenbery RN, CHPN wrote 3 months ago: I caught my passion for teaching from my high school biology teacher and my passion for helping oth … more →

Tags: Introductions, Career, chemical dependent, death, Disability, Dying, Education, elderly, end of life

Canine Renal Failure Dog17 comments

thespiritdog wrote 3 months ago: We just had a 4 year old female (spayed) lab mix diagnosed with renal failure. It came on quickly bu … more →

Tags: Spirit animal sanctuary, Dogs, kidney failure, Renvela, kidney failure dogs, Blood Work, veterinarian

It's my funeral and I'll cry if I want to...1 comment

myfacetiouswisdom wrote 3 months ago: I read an extremely interesting article the other day and I just have way too many comments to keep … more →

Tags: diabetes, Assisted Suicide, Suicide, transplant, Clinic, terminally ill, mentally capable, Debate

A Milestone Birthday (January 2008)2 comments

Sue wrote 3 months ago:  Sian celebrated her 18th birthday, a milestone we never dreamt she would reach, on 31st January 200 … more →

Tags: Chronic Illness, Family, health, Metabolic Disease, childrens hospice, Demelza, Disability, evelina's pride, hospital

Back To Transition (2007)

Sue wrote 3 months ago: Sian celebrated her 17th birthday at the end of January 2007 and discussions about transition from p … more →

Tags: Chronic Illness, health, Family, Metabolic Disease, Metabolic, hospital, Illness, Challenge, Disability

Demelza

Sue wrote 3 months ago: Writing about Evelina’s Pride and OTW has prompted me to think about Demelza, another organisa … more →

Tags: Chronic Illness, health, Family, Metabolic Disease, Metabolic, hospital, Illness, Disability, methylmalonic acidaemia

Going Over The Wall (2006)

Sue wrote 3 months ago: Over the Wall (OTW) is a UK charity providing residential activity camps for children and young peop … more →

Tags: Chronic Illness, health, Family, Metabolic Disease, hospital, Illness, Disability, methylmalonic acidaemia, Transition

Evelina - Getting To Know You ..... Again! (2005 -2006)2 comments

Sue wrote 4 months ago:  Sian transferred back to Guy’s in September 2005 and was on the move again 5 weeks later when … more →

Tags: Chronic Illness, health, Family, Metabolic Disease, hospital, Illness, Crisis, Disability, gastrostomy


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