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Blogs about: Rett Syndrome Intelligence

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Music Frees Me2 comments

spiritdances wrote 5 days ago:   My Songs   We are talking with many people to help get my CD ready to record.  There are a lo … more →

Tags: Disability Awareness, Music & Art, my faith, Rett Syndrome, Understanding Rett Syndrome, Writing Memoirs, composing for piano

My CD is Coming Alive!2 comments

spiritdances wrote 1 week ago: Barbara, Karen and me at our first meeting together I am so excited because yesterday I met with Bar … more →

Tags: Facilitated communication, Music & Art, my faith, piano compositions, Understanding Rett Syndrome, Writing Memoirs, Barbara McAfee, Karen Bohnert board certified music therapist

In Your Words or Theirs...

spiritdances wrote 1 week ago: I had an amazing last few days. On Sunday I shared my writings with the group in our community. It w … more →

Tags: Disability Awareness, Poetry, Rett Syndrome, Understanding Rett Syndrome, writing, Writing Memoirs, In Your Words or Theirs

Peace, Contentment and Hope3 comments

spiritdances wrote 2 weeks ago:     A peaceful day with Beau. He was standing on a step to get behind me. I am so content today.  I … more →

Tags: Companion horse, Disability Awareness, Music & Art, piano compositions, Poetry, Rett Syndrome, Understanding Rett Syndrome, writing, Writing Memoirs

Having Big Dreams1 comment

spiritdances wrote 3 weeks ago: I want to tell you today that I have so much hope for my life.  I remember when I was younger and ho … more →

Tags: Disability Awareness, Facilitated communication, Music & Art, Poetry, Rett Syndrome, Understanding Rett Syndrome, writing, Writing Memoirs, HOPE

My Year of Joy3 comments

spiritdances wrote 3 weeks ago: I have been thinking about all of the things that have happened in my life this year. If I had imagi … more →

Tags: piano compositions, Understanding Rett Syndrome, Writing Memoirs, Joy, Recording CD

My visit with Susan Norwell

spiritdances wrote 1 month ago: Yesterday I got to meet Susan Norwell at my house.  She was so respectful of me.  She works with oth … more →

Tags: Disability Awareness, Facilitated communication, Rett Syndrome, Understanding Rett Syndrome, IRSF 2009 conference, Rett Gazette, Susan Norwell MS ED

Happy Birthday Mom2 comments

spiritdances wrote 1 month ago: When I came to this earth my Mother was 24 years old.  I was welcomed into her loving heart.  There … more →

Tags: Disability Awareness, Rett Syndrome, Understanding Rett Syndrome, writing, Writing Memoirs, inspirational Rett Syndrome, Rett Mom

My Life After Graduation2 comments

spiritdances wrote 2 months ago: I left high school in the Spring of 2007.  I was so afraid of leaving, because I had so many friends … more →

Tags: Rett Syndrome, Music & Art, Facilitated communication, Writing Memoirs, piano compositions, Understanding Rett Syndrome, Rett Research

Rett Researchers and my Role3 comments

spiritdances wrote 2 months ago: I’m excited today because I have been contacted by three different Drs in the past couple of months … more →

Tags: Rett Syndrome, Facilitated communication, Disability Awareness, Understanding Rett Syndrome, Rett Syndrome Research

My View from My Eyes2 comments

spiritdances wrote 3 months ago: 16 months old with my glasses     My sister reading to me My Eyes From my View  Last week, I had a d … more →

Tags: Rett Syndrome, Facilitated communication, Writing Memoirs, Disability Awareness, Understanding Rett Syndrome

An Adventerous Life3 comments

spiritdances wrote 3 months ago: I went to church this morning with my Mom and Gregg and heard a message that inspired me.  It was ab … more →

Tags: Rett Syndrome, Writing Memoirs, Disability Awareness, Understanding Rett Syndrome, a spirit filled life

A Special Request

spiritdances wrote 3 months ago:       Beau came into the house to meet Deb because it was a hot day.  I was so happy to see my new f … more →

Tags: Rett Syndrome, Disability Awareness, Understanding Rett Syndrome

Having a Purpose and Direction1 comment

spiritdances wrote 3 months ago: This is a tribute to Eunice Shriver who spent her life giving dignity and purpose to people who have … more →

Tags: Rett Syndrome, writing, Writing Memoirs, Disability Awareness, Understanding Rett Syndrome, eunice shriver, special olympics

A Life with Purpose5 comments

spiritdances wrote 4 months ago:  While I was at camp, there were some people who wanted me to share my messages on my blogpage. I th … more →

Tags: Rett Syndrome, Facilitated communication, Writing Memoirs, Disability Awareness, piano compositions, Understanding Rett Syndrome, my faith, inspirational Rett Syndrome, Spiritual

I am so Satisfied.2 comments

spiritdances wrote 4 months ago: This has been a wonderful week. I feel great. I visited my friends who are twins with Rett Syndrome. … more →

Tags: Rett Syndrome, Companion horse, Writing Memoirs, Disability Awareness, Understanding Rett Syndrome

I Sit Here Smiling

spiritdances wrote 4 months ago:     Here are some of my memories of camp in Iowa.     There was a dance I have never … more →

Tags: Rett Syndrome, Facilitated communication, Writing Memoirs, Understanding Rett Syndrome, caregiver, PCAS, my faith

Afterthoughts From Camp2 comments

spiritdances wrote 4 months ago: Afterthoughts from Camp  Since I have been home from camp, I have received a number of emails and re … more →

Tags: Rett Syndrome, Writing Memoirs, Disability Awareness, my faith, Special Touch Camp

With Gratitude and Peace2 comments

spiritdances wrote 4 months ago: I got home with my Mom and Gregg last night from camp.  I have been trying to find the words to shar … more →

Tags: Rett Syndrome, Facilitated communication, Writing Memoirs, Disability Awareness, my faith, Special Touch Camp


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